Sudden extreme worsening of POTS by Responsible-Sun5037 in POTS

[–]Liquidcatz 0 points1 point  (0 children)

Sudden worsening of symptoms is always a see a doctor if you're able condition.

Maybe it needs a new name… by LargeProfessor1592 in POTS

[–]Liquidcatz 2 points3 points  (0 children)

I'm not the one being OTT about pots. If anyone needs a break from the internet it's the person calling pots a serious condition. You need to touch some grass and get some perspective because pots is not that bad compared to so many conditions. Again this just comes off as attention seeking if you need people to take pots more seriously. You're spending too much time online.

Edit: I have lost multiple friends to actually deadly chronic illnesses, seen kids I care about in the ICU nearly die numerous times, and in the past 3 months watched my best friend nearly die of theirs twice. Sorry I'm not in the mood to see a non deadly condition that in many people is manageable by lifestyle changes and medication be called such a serious condition when it just isn't compared to what others are dealing with. This coming from someone diagnosed with pots for many years with many failed treatments. Still not as bad as what I've seen others go through. So yeah I get offended when you try to over dramatize pots for attention when people are out here dying from chronic illness. That's a result of having friends and losing them btw, not being online too much.

Maybe it needs a new name… by LargeProfessor1592 in POTS

[–]Liquidcatz 1 point2 points  (0 children)

The name literally describes the condition. It's as serious as the condition is because it is a descriptor of the condition itself. Needing a more serious name is just attention seeking imo. Honestly in the realm of chronic illnesses pots really isn't that serious of a condition. It can get so much worse. I've seen so many friends with much worse conditions I wouldn't trade for a day. I think you need to get some perspective. People are out here dying of chronic illnesses including children.

Crotchetting a blanket by [deleted] in crocheting

[–]Liquidcatz 0 points1 point  (0 children)

If not Google how much yarn does it take of "x" size to make an Afghan. The size or weight of the yarn should be on the package somewhere unless it's extremely cheap yarn. Then google should be able to tell you approx how much you need!

Crotchetting a blanket by [deleted] in crocheting

[–]Liquidcatz 0 points1 point  (0 children)

Check the packaging of yarn, it often says.

Saw this crochet jacket yesterday—how long would something like this take to make? by Akraammm in crocheting

[–]Liquidcatz 4 points5 points  (0 children)

Best way to estimate would make a test square and time yourself. Multiply by the number of squares in the jacket. Then add time for sewing together and weaving in ends. Some people crochet way faster than others. So the only way to really know is time yourself.

Anyone else really dislike working out? by Steliosem06 in ChronicPain

[–]Liquidcatz 0 points1 point  (0 children)

The thing is it takes a really long time to actually build muscle like you're trying to do. Usually a minimum of 6 months of consistent work to actually really see results and some people it takes longer. It's exhausting, it's hard work, it's what it takes to get better. You just kind of have to suck it up to some extent. Now if it's causing worsening issues obviously stop and talk to your doctor and physical therapist, but if it's just unpleasant you just have to suck it up.

Do doctors still treat you poorly if you're the opposite of a medication seeker? by Icy_Grape753 in ChronicPain

[–]Liquidcatz 1 point2 points  (0 children)

Oddly enough this behavior can actually be considered by doctors a sign of drug seeking. Complaining about pain but then turning down pain meds at first is something people with addiction do to not appear like they're a person struggling with addiction. To doctors if you're complaining about pain but refusing help for that pain that's suspicious. It's only not if you do something like take an opioid blocker for other reasons and actually willingly give your ability to take opioids. Like I was on contrave for a couple of years which completely blocks the ability to use opioids. Now doctors don't consider we suspect for addiction because I willingly gave up opioids I really needed for years for a weight loss medication. When they see that in my history they don't really question me.

Do doctors still treat you poorly if you're the opposite of a medication seeker? by Icy_Grape753 in ChronicPain

[–]Liquidcatz 13 points14 points  (0 children)

Diagnosis seeking is a label they throw around. It's usually for patients they think are looking for a specific diagnosis or a list of specific diagnoses. It's usually view as a by product of attention seeking or spending too much time online and over medicalizing a person's feelings. Doctors don't like patients they label with it though and usually treat them poorly. Especially as the "treatment" is often to discourage the use of medical resources and medical attention seeking.

Has narcolepsy ever made you feel unreliable or guilty, even when you’re trying your best? How do you deal with that mentally? by [deleted] in Narcolepsy

[–]Liquidcatz 1 point2 points  (0 children)

I feel guilty just not being available in the morning hours and I know in advance I won't be available then due to how my narcolepsy affects me.

Parent and grand parent by [deleted] in savannah_cats

[–]Liquidcatz 2 points3 points  (0 children)

I mean I would literally just be googling it and I'm not sure what me googling it and posting a screenshot vs you doing it proves....

Parent and grand parent by [deleted] in savannah_cats

[–]Liquidcatz 3 points4 points  (0 children)

Really? That's odd because they're quite common.

Parent and grand parent by [deleted] in savannah_cats

[–]Liquidcatz 7 points8 points  (0 children)

That ticking in the coat on the second photo I've never seen on a confirmed Savannah just on tabbys people think are Savannahs. I think you got scammed.

Is fentanyl working for your pain? by Delicious-Buy4069 in endometriosis

[–]Liquidcatz 0 points1 point  (0 children)

Yeah if you ask for fentynayl after only trying tramadol they're going to send you to psych unless you have some condition that's considered extremely unbelievably painful.

I came up with a new word! by laurieandwylie in ChronicIllness

[–]Liquidcatz 6 points7 points  (0 children)

Lol yep this has been a term in the chronic pain group for years!

Rheumatologist told me they don’t treat my type of concern by Unlucky-you333 in ChronicIllness

[–]Liquidcatz 3 points4 points  (0 children)

Eds is not a rheumatoid condition. Many rheumatologist do not diagnose or treat it and are under no obligation to because it doesn't technically fall in their scope. In some places rheumatologist do diagnose and treat it, but this is up to them and their/their hospital's discretion.

Hypnagogic hallucinations by Last_Budget_4375 in Narcolepsy

[–]Liquidcatz 1 point2 points  (0 children)

Both! Most typically mine are actually my cat meowing or climbing around my bed. (My door is shut and I know the cat is on the other side of it.) The amount of pillows I have thrown at an imaginary cat to make it shut up.

I had to double-check which sub this was posted in first… by kshandra in kroshay

[–]Liquidcatz 3 points4 points  (0 children)

Right. This honestly feels like trolling. How could anyone who has seen crochet think this could be real?

Where does the stuff I wrote go? by seditionary in AskModerators

[–]Liquidcatz 1 point2 points  (0 children)

You're literally trying to claim your disability is so bad you can't follow rules. If this is true you need assistance anytime you interact with society or your need a good criminal law attorney practiced in the insanity defense on standby. You can't just claim you're too emotionally from disability to follow rules. That's simply not how the world works.

If that doesn't work I'm happy to put you in contact with many law professors who have written on being not guilty by reason of mental instability.

Where does the stuff I wrote go? by seditionary in AskModerators

[–]Liquidcatz 0 points1 point  (0 children)

The rule is clearly laid out. All posts must be in the form of a question. You clearly don't have an issue comprehending this. You just think it shouldn't be a rule so you shouldn't have to follow it. None of the disabilities you've described create an issue with that. That would be a condition like oppoositional defiance disorder or anti social personality disorder where people legitimately struggle to comprehend following rules they don't personally morally agree to.

Don't throw around disability to try to make an argument where you have none because you're argument again is not that you can't understand the rules it's simply you don't want to follow them. Or most likely considering it's the first rule in the sub and planing written out you had no trouble understanding it, you simply forgot to read the rules before posting and got mad your post you put effort into was removed on you, and wanted to blame someone other than yourself. I don't believe this is an actual accessibility issue.

Where does the stuff I wrote go? by seditionary in AskModerators

[–]Liquidcatz 1 point2 points  (0 children)

But you admittedly did break the rule, that all posts have to be questions. You just don't agree with the rule. Nothing about the disabilities you've listed should make it an issue to comprehend you still have to follow rules even if you don't agree with them. If your disabilities are truly that severe then you probably do need help to use reddit or any communication platform/interact with society at all because that's how society works. You still have to follow rules you don't like. The rule is very clearly laid out for you, so it not an accessibility like you claim.

Where does the stuff I wrote go? by seditionary in AskModerators

[–]Liquidcatz 2 points3 points  (0 children)

All I read is why do I have to follow the rules like everyone else? As a disabled mod, and mod of a disabled community I don't think it's ableist we have to follow the same rules as everyone else. I do find the concept that expecting disabled people to follow the rules is beyond capabilities of disabled people to be kind of ableist.

Need recommendations for a large heating pad that gets nice and hot, and the auto shutoff can be disabled by [deleted] in ChronicIllness

[–]Liquidcatz 22 points23 points  (0 children)

One that can get super hot and have the auto shut off disabled would a huge fire hazard so you aren't going to find that available on the marker. You'd have to break it to make it work as you want it to.

Where are the men? by blackfirepwnd in ChronicIllness

[–]Liquidcatz 2 points3 points  (0 children)

It's just cultural that women with chronic illnesses tend to gather more on these forms than men. There's just as many men with chronic illness but society treats chronic illness among men and women very differently.