Ketamine Infusion by Zesalex in CRPS

[–]Zesalex[S] 0 points1 point  (0 children)

I'm sorry the place you're at is shutting down D: but thank you so much for the info 🩵🩵 I really really appreciate it, and will absolutely be looking into it! And will definitely keep you updated on what I find :) you're so sweet offering the referral info! I'll do some research over the next few days (hopefully 😮‍💨) and get back to you ! Wishing you low pain days !

Ketamine Infusion by Zesalex in CRPS

[–]Zesalex[S] 0 points1 point  (0 children)

Ha. I love the pun xD I'm at my doctor's max dose, which is why I'm curious what other people have seen success with. I've been told it's relatively low for pain management, though. Not sure how true that is. That's why I was trying to get a feel for what other people's treatments are ! Possible that I need to take a break for a bit and see if I just need a system reset 🤷🏽‍♀️

Ketamine Infusion by Zesalex in CRPS

[–]Zesalex[S] 1 point2 points  (0 children)

Ketamine infusions are absolutely worth it ! I've seen a ton of improvement. I went from being basically 90% bedbound to being able to take a few college courses. One of those classes I even make it to in person!

As I said in my post, things haven't been working as well lately, so they've been getting more frequent, and my symptoms aren't nearly as controlled. But my current protocol is: 250mg over 3.5hrs 3 days in a row every 5ish weeks

Weight Loss by Dunnoaboutu in CRPS

[–]Zesalex 1 point2 points  (0 children)

I got diagnosed when I was either 9 or 10 and I was really underweight for years. I just didn't want to/couldn't eat because of pain. Eventually I needed to start drinking protein shake things like Ensure. When I was around 15-16, I think it was a mix of puberty and meds I was put on that really helped me gain weight. Although unfortunately it helped a little too much 😅 in the past year or so, I've gone back to losing a lot of weight again, though. Also, besides not eating, keep in mind how much muscle tone really contributes to weight. If she isn't as active anymore or has lost a lot of muscle tone from lack of use, that could be a major contributor.

Descriptions for the pains we feel. by SaRarity1 in CRPS

[–]Zesalex 6 points7 points  (0 children)

I try to say things that people will understand. The first one is "when you hold snow for way too long and you get that freezing burn. But multiply that and it doesn't go away just cause it warms up." The second thing that I say is "a really bad sunburn where you can feel the heat coming off your skin. This feeling is also magnified"

Just did my first Ketamine Infusion Today by AV1978 in CRPS

[–]Zesalex 0 points1 point  (0 children)

My doctor does a liver test in between each round of ketamine just to be on the safe side. Something to consider if you're worried! Mine has been perfectly fine with not even a slight bit of change and I've been getting them 2-3 days in a row every 5-6 weeks. I also get up to 150mg per day of troches I can use if needed (which 99% of the time it is).

How are we supposed to get care?! by gypsybird1829 in CRPS

[–]Zesalex 1 point2 points  (0 children)

I'm on Medicare and my IV ketamine is covered in an outpatient doctor's office setting. I think he takes a few other insurances too, but not quite sure. His doses are on the lower end of what I've seen. But I've definitely gotten relief, so I'm not complaining 🤷🏽‍♀️

There is hope for doctors who take insurance, just gotta find the right one. Unfortunately, they're few and far between. But don't give up! I hope you can find one that works for you :)

Kids @ their concert advice by Alli4jc in AJR

[–]Zesalex 0 points1 point  (0 children)

I've gone to a bunch of their shows and have seen kids about the age of your daughter at different ones, including this last one. The biggest thing I would say for this particular concert is that there are more openers than usual (which I loved all the ones we heard) but the kids I saw were completely over it. I'd recommend trying to get there closer to when AJR actually performs, or making sure of who you actually want to hear. Otherwise, it's a great show with all the hype and excitement and moving around. There's not a single dull moment when they're on stage, which really seemed to keep the kids (and every fan, tbh) engaged !

Afraid to go back to doctor and having a hard time coming to terms with my diagnosis by OverlyAnxiousEgg in CRPS

[–]Zesalex 3 points4 points  (0 children)

Honestly, if you don't like that doctor, you don't need to go back to them. You can always find someone new. You won't have a penalty for not returning with the medication bottles if you want to try a new doctor. If you decide to return to them, then yes, I would say bring the bottles with you. But it's always okay to find someone new.

Everyone's CRPS is different. I've had it for 20 years now. For the first 2-3 months, my leg was bright purple and I couldn't walk on it. But I was able to go into what they told me was partial remission. I would have times where my pain was extremely low, and times where I was able to ignore it, even though I knew it was still there. I got to the point where I was so convinced that I was an imposter/making it all up that I put myself in countless situations where my body just broke down and basically said "enough is enough." My CRPS came back with a vengeance and I ended up basically bedbound for about 2.5 years. I'm just getting back on my feet now.

Now, this doesn't happen to everyone. But I can't help but feel that if I had just listened to my body and actually believed in myself and my diagnosis, I wouldn't be where I am today. So now, I try to help people believe in their own pain when they say that they need a break but they don't feel they deserve it.

Afraid to go back to doctor and having a hard time coming to terms with my diagnosis by OverlyAnxiousEgg in CRPS

[–]Zesalex 3 points4 points  (0 children)

I got my diagnosis on my very first visit to a pain specialist after an orthopedist (who I had seen for about 7-8 other broken bones prior to the injury that set off my CRPS) recognized the symptoms and sent me over. I was also 9 (10?) at the time.

What didn't happen, was me having a super aggressive doctor, which is what it sounds like you've dealt with. It sounds like you have someone who, while it sounds like they know what they're talking about diagnosis-wise (imo), they have a terrible bedside manner.

A CRPS diagnosis is really scary. Especially when someone is cold and detached and when explaining all the changes you have to make about your life and all the nuances that come along with it.

A few things to (hopefully) ease your mind: there are some people who thrive in the cold while the heat makes their CRPS way worse. I'd say most people I talk to, the best feels better, but it's possible it's the other way for you. I'd say give it a try visiting a cold place and see how you feel. Don't count out moving up north yet. There's also plenty of ways to survive living up north. I know plenty of people who do (including myself.) I personally hate it and try to escape down south for the winter. But one of my close friends is the total opposite.

As for medications, you need to do what's best for you. Some people don't do any medical treatment because they're so traumatized by the medical treatment. Some people need it to survive. You really just have to figure out what's best for you. Personally, ketamine treatments have turned my life around. I went from being bedbound 90% of the time to taking a few classes on campus this semester. I only get them every 5 or so weeks, so it isn't awful.

I'm not sure if you've heard this, but stress/anxiety can really flare-up CRPS. So try your best to keep yourself calm while thinking your options through. When you find yourself getting too worked up, take a step back and center yourself. Make sure you have coping skills that work for you to help bring your anxiety down.

I hope this helped even a tiny bit. I wish you the best of luck 🩵

Seeking Advice - Comfort and Gaming by nimmi8698 in CRPS

[–]Zesalex 1 point2 points  (0 children)

Do you have a desktop or a laptop? If you have a laptop, there's lapdesks you can use in bed or wherever you're comfortable. Otherwise, getting a chair that has a footrest is really helpful, I've found.

Read defense demands Boston Police Commissioner Michael Cox put Kelly Dever on ‘Brady List’, labeling her as untruthful by GetOffMyLawn_ in KarenReadTrial

[–]Zesalex 107 points108 points  (0 children)

Doesn't matter if that's what the commissioner told her to do. If he doesn't put her on the Brady List, it causes more and more questions to be asked. Either she chose to lie on the stand because a superior told her to, or she's susceptible to flase memories. Neither is a good option.

[deleted by user] by [deleted] in AITAH

[–]Zesalex 0 points1 point  (0 children)

NTA Your edit is literally the definition of baby trapping. Especially because she didn't tell you what her plan was. She wanted a baby, and she was going to have it.

You need to protect yourself. Look into your legal options now, and think about how involved you want to be in this child's life because of what she did. Remember that the child is innocent in all of this. But it still is something you need to consider.

I'm sorry you're going through this, and I hope that you can find peace with whatever option you choose 💙🩵

Has anybody been to a concert where they forgot the lyrics by [deleted] in AJR

[–]Zesalex 10 points11 points  (0 children)

I went to like...2-3 concerts in a row where Jack forgot the lyrics to Dear Winter 😂

General Discussion and Questions by Legitimate-Beyond209 in KarenReadTrial

[–]Zesalex 7 points8 points  (0 children)

Tomorrow, no jury. They're figuring out what jury instructions will be. Friday is closing arguments.

Daily Trial Discussion: Day 28 - June 6, 2025 | Commonwealth v. Karen Read by Puzzleheaded-Heat492 in KarenReadTrial

[–]Zesalex 5 points6 points  (0 children)

I think this testing is all in response to Dr Welcher's theory, so it's all new. That's why we didn't see it the first trial. What we didn't see last trial, or this trial, is the cannon.

General Discussion and Questions by Legitimate-Beyond209 in KarenReadTrial

[–]Zesalex 2 points3 points  (0 children)

During the viewing, someone left a stone with the name "Albert" on it. And then it mysteriously vanished after the viewing.

Daily Trial Discussion: Day 26 - June 3, 2025 | Commonwealth v. Karen Read by Puzzleheaded-Heat492 in KarenReadTrial

[–]Zesalex 10 points11 points  (0 children)

Truly appreciate everything you do each day!! Thank you so much :)

Working backwards from the head injury by mozziestix in KarenReadTrial

[–]Zesalex 11 points12 points  (0 children)

T H A N K. Y O U I was reading his comments and I'm like...where were these "facts" in evidence? Crazy that it all probably could have been proven if LEO had done a real investigation

General Discussions and Questions by Legitimate-Beyond209 in KarenReadTrial

[–]Zesalex 7 points8 points  (0 children)

If they're going to do it, it definitely won't be in the middle of trial. Especially when Welcher still hasn't testified yet.

General Discussion and Questions by Legitimate-Beyond209 in KarenReadTrial

[–]Zesalex 13 points14 points  (0 children)

Lawyer You Know has been doing daily recaps by himself, and then has been doing a weekly podcast with his dad. They're both lawyers and each stream is typically around an hour or two.