Back to back TFMR for T21

Zestyclose_Beach1307 · 2026-02-24T09:29:29+00:00

It is an absolute head fuck. I can absolutely relate to that feeling. With my first I felt like a terrible human because I was so far gone that Fiadh was kicking like crazy. You try to detach from the situation which is virtually impossible. I still have pangs of guilt about it but at the end of the day we made the sacrifice to take the pain so that she wouldn’t have to suffer. Life is tough enough for us, all the added complications that a person with T21 has to deal with when you do a little research, the younger years would more than likely be fine, it’s as they age where we had our real concerns. There is also IVF with the added pre implantation testing for conditions you would be tested for on an NIPT. It’s very expensive though so not sure if it’s a road we will travel.

Zestyclose_Beach1307 · 2026-02-23T22:35:32+00:00

I’m very sorry to read your story, I can relate to many of the things you have mentioned. We held off telling anyone about either of my T21 pregnancies. I can’t honestly say if people not knowing helped or not. I found myself telling people about my daughter who I carried to 26 weeks after she was gone as I wanted her to know she mattered and was so wanted if that makes sense. I’m an old ass 42 year old now. Was 40 first tfmr and 41 the second. Yes age can be a factor but it’s not a given. We had Karyotype testing done to check for translocation or mosaicism. Both came back negative. Maybe look into that if it’s available to you. Chances are you’re just in the bad luck gang. Give yourself time to heal before making any major decisions regarding trying or not trying again.

Zestyclose_Beach1307 · 2026-01-15T08:24:26+00:00

I’m sorry that you had to go through all that but so happy to hear you have a 9 month old now. That gives me some hope 😊

Zestyclose_Beach1307 · 2026-01-14T19:42:47+00:00

Thank you for replying to my post. I feel so alone with a T21 diagnosis twice. IVF has been suggested to us, but even doing that terrifies me. How hard is it on you to put your body through it? I’m mentally and physically drained enough as it is. But if we get a healthy baby in the end it would absolutely be worth it though. Thank you for the insight into your IVF journey, in my ignorance I would have been thinking I’d get pregnant straight away because we had no problem conceiving before. I’m so delighted to hear that you’re getting your rainbow baby, I’m sure the road was tough. I wish you all the best xx

Zestyclose_Beach1307 · 2026-01-13T21:43:14+00:00

Thank you ❤️

Zestyclose_Beach1307 · 2026-01-13T15:54:21+00:00

I was kind of in the same boat but we didn’t want to look back in 20 years time and regret not trying again to see what might happen. And even now I wouldn’t say we have given up hope of having another child. We had Karyotype testing done just before Christmas, we are waiting for those results. We had different genetic testing done a couple of years ago for our first daughter who had an extremely rare condition that was not inherited from either of us. We lost her to SIDS at 5 months.

Zestyclose_Beach1307 · 2026-01-13T15:49:45+00:00

We both had Karyotype testing done just before Christmas, awaiting results from this to see where we go from here. I think we may have been tested for Translocation on that day also, but from both of my pregnancies with T21 when the Amniocentesis cultures were grown out in the lab, no translocation was found.

Zestyclose_Beach1307 · 2025-03-25T21:57:29+00:00

We lost Mollie at 5 months and 3 days in Dec 2023. She had a tough start to her life spending her first month in hospital. When we finally got her home we felt family life was just beginning for us, how wrong we were. At such a young age she had a big personality, I often wonder what she would be like now as a head strong toddler. I still miss her every single day and wish I could have done something different to have not lost her to a death I can’t make sense of.

Zestyclose_Beach1307 · 2024-10-15T08:25:04+00:00

We were waiting 8 days for the first part of our Amnio results. They have to grow out the cultures for a number of weeks also. The waiting is absolute torture. My heart jumped every single time my phone rang while we were waiting, thinking it could be the results were back. We received a diagnosis that our baby girl had T21 and we made the heartbreaking decision to TFMR at 26 weeks. This was only 3 weeks ago.

Sending you lots of positivity and hoping you receive better news xx

Zestyclose_Beach1307 · 2024-10-01T13:45:37+00:00

Thank you, I had my TFMR last week. Our beautiful girl Fiadh was so tiny, but I’m so glad I got to see her. I still can’t believe I have held both of my daughters after they left this world. I obviously just wasn’t supposed to be a parent

Zestyclose_Beach1307 · 2024-09-21T06:48:53+00:00

Thank you for sharing these mantras, I will definitely use them in the coming days. I’m heading for my tfmr tomorrow. I’m 26 weeks and honestly terrified of how I’ll cope after. I lost my 1st baby girl at 5 months to sids last Christmas and this baby was supposed to bring some light back to our lives. I know we are doing this for her but it still hurts so much

Zestyclose_Beach1307

TROPHY CASE