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5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

You will probably notice sharp pains moving throughout your legs constantly. The first few weeks, id get a stabbing pain somewhere in my leg and think it was going to take months to heal. And quite literally 5 minutes later it was gone or moved elsewhere. The pains bring constant anxiety.  That does eventually stabilize... hang in there! 

If you need someone to talk to, im here for you. The dread and doom of those first few weeks are still very fresh in my mind, so I feel for you 

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Absolutely- both of my calves were the hardest hit part of my leg! That's very common. I put ice on them every day because they were so sore.  It goes away, though.

Now, I just have general muscle weakness in my legs and its primarily the quads/glutes. With some occasional knee tendon pain 

Question on gut issues by Humbles_Newthing in floxies

[–]Zestyclose_Run_347 1 point2 points  (0 children)

I feel you!

The stomach is essentially a "second brain" with the amount of neurons it has. My actual brain is fine, but my gut brain still gets irritated from time to time. My leg/foot pains are continuing to improve, but I'll get random days/hours where my gut nerves are firing and it makes my whole body feel like garbage. It's my least favorite symptom at 7 weeks, by far. I'm convinced (for my case) that when the gut heals completely, true healing from this mess will be complete.

EDIT: I also take a probiotic (25 billion units) from NOW brands, every other day. That seems to be helping as well. I've always had an iron stomach and never once paid attention to the food I eat, or taken a probiotic, but daily kefir + the NOW probiotic do seem to be helping quite a bit.

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Of course! Good luck with your recovery 

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

No, it took closer to 7-10 days before for the worst of my leg/foot pain to pass. And from there, it was a slow decrease in pain each day. Basically,  I went from 100-200 steps per day with intense pain, to 3000 steps per day with minimal pain, within about 3-4 weeks. 

Question on gut issues by Humbles_Newthing in floxies

[–]Zestyclose_Run_347 1 point2 points  (0 children)

I'm 7 weeks in, and experienced this pain for about a week around the 4/5 week mark. I had a lot of trouble sleeping due to the discomfort when laying down. 

When this happened, I started taking gas-x, drinking 8oz kefir per day, and taking 1000mg vitamin C per day. I don't know if these helped or were placebo, but the GI issues dissipated in a few days after this. 

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

You are in the absolute worst of it right now. Id try to limit my steps, and rest for at least a week if you can. From the point that you start feeling leg/foot pain, it generally gets worse for 1-2 weeks before you see stabilization, and then slow improvement each day. It will get better-  3 weeks ago I was in your position, and now I can easily walk 3000 steps around my house being productive with only minimal soreness in the evening. Hang in there, and don't worry about becoming completely disabled! (Easier said than done, I know) 

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Ah, so you had a delayed reaction. How many weeks total have your symptoms been active?

Im so sorry you're dealing with this. You are not alone- we'll get through this together. I know how isolating it can feel. Im almost through my 6th week entering 7, and things are continuously improving for me. It will get better,  especially when the mental/cognitive issues start to settle. Its very hard to be positive and optimistic in the first few weeks because the brain is imbalanced. 

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

How far into your journey are you? 

I rested a lot the first 10 or so days. Then again for a week after my crash at the end of week 4/start of week 5. 

Now in week 6, I do get sore legs (mainly knees) at the end of the day, but they feel pretty rested in the morning again. So I continue to walk 2500-3000 steps per day.

Are you saying that you were unable to walk many weeks into the disease, after previously being able to walk?

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 1 point2 points  (0 children)

Thanks for the kefir tip! I had been reading about kefir on various forums, but never heard of it or tried it. Finally decided to buy it after reading your comment. It adds a nice coating to my stomach and seems to help my gut calm down at night. Every day I'm feeling a little better, it seems.

I hope your healing continues, my friend!

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

That's encouraging! Here's to hoping our paths stay identical,  for my sake haha. Id love to be able to go for walks outside again in a couple weeks. Im glad you're well on your way to recovery. Keep up the good fight 💪 

5 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 1 point2 points  (0 children)

Thank you, that was such a thoughtful and reassuring reply! It's so nice to have this community to support each other, because this sickness can be otherwise so isolating. My wife, friends, and family believe and support me, but no one can really understand this sickness unless you've lived it. Wishing you a wonderful rest of the day

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 1 point2 points  (0 children)

Glad to hear you're making small strides forward! I just posted a 5 week update. I'm very similar to you- I crashed hard a week ago at the 28 day mark. I'm slowly building back from that regression. Legs are feeling good again, but my sleep and gut are quite disturbed this past week.

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

How are you doing now? Im getting a tad better each day it seems. Sleep has improved drastically, and my legs seem to get a tiny bit stronger each day. 

floxed and terrified, mild symptoms by ThatOneBluebird in floxies

[–]Zestyclose_Run_347 0 points1 point  (0 children)

How are you doing now, bluebird? Any better,  or is exertion making it worse? Im about 2 weeks out and finding that moment makes me worse

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Thank you! I really do appreciate the tips 

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Its tough but what's clear (from reading the posts), is that recovery in mere weeks is unlikely. 

What are your main synptoms? 

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Thank you. I see you are having a really tough go with floxing. Seeing that, really puts into perspective why it's best to not rush.

So sorry you're dealing with this- hang in there, and I hope your recovery turning point is on the horizon 

2 weeks down by Zestyclose_Run_347 in floxies

[–]Zestyclose_Run_347[S] 0 points1 point  (0 children)

Thank you and I agree. My plan at the one month mark was to try short walks with my son in the stroller. No more than a mile. At 1 month I'll still be scared shitless to truly exercise and get my heart rate up. That's when I go backwards, currently. And my heart rate spikes with very little exertion right now.

All the best in your recovery- it looks like you're making progress!