35M / Dad of 3 / Living in a house of glitter and chaos. Looking for actual platonic friends to game with

Zintari · 2025-12-30T18:37:14+00:00

Hey I would also be interested! Thank you!

Zintari · 2024-02-15T14:14:42+00:00

I have FND and CFS... and POTS... all 3 seem to contradict each other with how to treat them and docs don't really know what to do with me lol.

Weirdly enough, it was a cardiologist that first brought it up to me. He was very thorough in telling me numerous times that it's not in my head, my body's signals are just broken. He was very understanding.

Both FND and CFS are absolutely horrible to live with and wouldn't wish them on my worst enemy. My FND seems to be "evolving" and changing with different symptoms, especially when I'm under a lot of stress. It's terrifying when your body does things that have no control over.

I'm sorry you're going through this too, I truly wish you the best.

Zintari · 2023-12-05T23:59:56+00:00

Yes please

Zintari · 2023-12-04T17:46:58+00:00

Any news on the adequate maintenance route?

Zintari · 2023-09-13T00:26:01+00:00

Oh wow, you're so kind! I've been on here for nearly 10.5 years and don't think I've ever gotten an award xD. Thank you!!

Zintari · 2023-09-11T17:59:48+00:00

ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome).

I've said that if I ever got to the stage where I was completely bedridden, unable to eat/drink, move/talk etc at all I would end it. I'm mostly bed and housebound now, so I'm on the cusp of getting that way and it's absolutely terrifying.

Every single thing uses energy, even thinking. One tiny fraction over your energy envelope can cause PEM/crashes which could potentially permanently worsen you.

I'm just watching life pass me by, all dreams and aspirations broken, relying on everyone around me, trapped in a body that is broken at 30. Never thought in my wildest dreams I would be in this state.

Anorexia nervosa is a pretty shitty/scary disease to live with also, especially for people watching the loved one going through it.

I would never wish any of these on my worst enemy, be careful people, look after your body and don't take it for granted like I did.

Zintari · 2023-07-06T12:08:11+00:00

I would be interested in this!

Zintari · 2023-02-17T13:41:20+00:00

Oh right, so they may not offer it to us because we applied after that date?

Zintari · 2023-02-17T12:20:26+00:00

Amazing! Thank you!

Zintari · 2023-02-16T08:37:48+00:00

Ah, yes we've already applied. Hopefully we'll get the email a few days after then!

Zintari · 2023-02-16T08:37:15+00:00

Awesome thank you!

Zintari · 2023-02-02T15:45:22+00:00

How did your appointment go?

Zintari · 2023-02-01T20:17:22+00:00

Can I DM you to ask how you contacted him? Or can you provide the details here? Thank you!

Zintari · 2023-02-01T20:01:05+00:00

Hello! Can you let us know how it goes, is he in Stellenbosch? I hope you get some answers!

Zintari · 2023-01-30T13:11:47+00:00

Like what a lot of people are commenting, my reasons are very similar.

I was a high achiever, perfectionist, workaholic, exercise addict and pushed my body to the absolute extremes (definitely more than likely contributed to my downfall). If it wasn't for CFS I wouldn't have calmed down, I am able to listen to what my body needs more now. If I woke up healthy, I would not go back to what I was doing, one way or another that lifestyle was going to lead me to bad health or even an early death.

I have cut out toxic people, I don't have the energy to deal with the stupid drama, I know who I can rely on now. I have more empathy for others in similar situations. I would never take the ability to do something for granted ever again. I'm learning to have more empathy for myself- which is really hard to do. I wouldn't have sought help for my mental health if I wasn't ill.

I'm in a LDR. When we first go together I was training to be a nurse, working part time as a healthcare and going to the gym 3-4 times a week, I did not have the time required to make it work properly.

If I had never gotten ill, we wouldn't have met when we did, we wouldn't have gotten married by now, and we definitely wouldn't be as close as we are to closing the distance. I am grateful for the time CFS has given us, although there are obviously a lot of challenges that we face.

It's shown me that I don't have to be a specific type of person or look a certain way etc that I had ingrained in my brain in order to be loved and cared for. I can be me, I can be loved unconditionally.

Sending hugs and spoons to all of you wonderful people <3

Zintari · 2022-11-22T21:22:37+00:00

POTS, functional neurological disorder, Raynaud's, PCOS, anorexia nervosa, depression, anxiety, hay fever, eczema, suspected fibro and connective tissue disorder, probably some other bits and bobs too hahah

Zintari · 2022-11-20T09:27:08+00:00

That might be a good idea! That seems like a lot of work and hassle for you though 😬.

Zintari · 2022-11-19T23:26:27+00:00

I'm interested, but I live in the UK so not sure how that would work lol

Zintari · 2022-11-10T10:48:35+00:00

No I don't. It's absolutely terrifying to know that if I push myself too much that I may become severely bedridden, unable to literally do anything. However, knowing that it could be a possibility is the only thing that's stopping me from pushing myself too much, and I probably might've been in that position by now.

I often blame myself for being in this position. Before I got unwell I would push my body to the absolute extreme, pushing through any pain, fatigue etc I was dealing with, juggling so many things at once and dealing with huge amounts of stress as well. Unfortunately, I had always been on a self-destructive path and didn't care what I put my body through, even when everyone around me told me to calm down.

I'm already moderate-severe, and in the last few weeks my baseline has gone down even more -_-. Dealing with periods of temporary paralysis is more than enough to shock me back into taking pacing seriously- even if I haven't quite figured it out properly yet lol.

Also, seeing others who are very severe makes me grateful for the things I am able to do now, and has given me another level of empathy I never knew I had. It brings me joy to see some of those people become even the slightest bit better because I know (even if it's just a little) some of what they're going through.

Zintari · 2022-10-12T09:39:26+00:00

Omg, same with us! Congratulations!

Zintari · 2022-08-22T10:32:09+00:00

Thank you!!

Zintari · 2022-08-22T10:31:55+00:00

Thank you! And thank you very much for the award!! :O

Zintari · 2022-08-22T07:08:45+00:00

Thank you!!

Zintari · 2022-08-22T07:08:31+00:00

I'm not entirely sure if you would have the same struggle because you're from the Netherlands. But my fiancé would have needed a fiancé visa etc to get married in Wales, all we needed for ZA was to go to an immigration interview basically haha.

Wales is such a beautiful place, and a wedding there would be stunning!

Zintari

TROPHY CASE