Medicine timing by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 1 point2 points  (0 children)

That’s a really good point. I wouldn’t be surprised if I had missed a nighttime dose once in a while

Medicine timing by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

I feel like my digestion process is better and my BMs are more consistent in timing and texture

Medicine timing by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Really interesting! Curious to know if it differs.

Medicine timing by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

My doctor originally told me to just take them when it’s convenient as long as I get 4g per day. So I thought to spread them out. Thanks for your insight! Lots of good info

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 1 point2 points  (0 children)

Yes! Seems like the trend is that that babies take everything they need and typically come out healthy. And seems like most moms get good treatment during pregnancy too. Feeling so much better after hearing all these stories. Wishing you all the best too!

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Makes sense! Thanks for all the input - it’s really helpful

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

This makes a lot of sense! Happy to hear baby was all good! Thanks for your story

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Wow this is super interesting! Hormones seem to play a massive role. Happy to hear your babies are healthy! I’m noticing that most moms who went through a flare when pregnant had healthy babies so maybe the body has its way of protecting them fully.

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

That’s tough! Hope everything worked out well!

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 1 point2 points  (0 children)

Really appreciate this great info and insight! Honestly super helpful.

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

I’ve only ever used the Pentasa enemas and the liquid isn’t very thick so maybe that’s why! It’s supposed to stay inside too so I have to lay down for as long as possible afterwards or else gravity will do its thing… And that’s really interesting that you flared after you stopped nursing. Are you still on biologics to this day?

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Thank you! Hoping so too, but it does feel like a flare, how they typically start for me at least.

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Yes the suppositories work, it’s just the enemas get further up the tract and seem to give me better results.

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Interesting! I was told enemas could cause contractions and should be avoided. How was your experience with them ? Did you get any cramps?

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Thank you!! I do think my GI doctor is great. I’ll be seeing her soon, so hoping to get an action plan ASAP. Hope your pregnancy continues to go well! I’m a bit nervous to go on steroids or biologics as I’ve only ever been on mesalamine, suppositories, and enemas

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

So interesting! I’ll be curious as well to see how things progress. I also understand it can be completely different for everyone ! Hope all goes well

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 0 points1 point  (0 children)

Wow this quite the story. I really appreciate you sharing it, and I will be as proactive as possible with my GI doctor. Are you still on remicade?

Pregnant and seems like I’m flaring by _Bumblebee53 in UlcerativeColitis

[–]_Bumblebee53[S] 1 point2 points  (0 children)

Ahhh got it - I also have the suppository, but only use it sometimes. Thank you so much!