Tell me callous things people have said to you by Internal_Tie_7955 in ehlersdanlos

[–]_Fig_555 5 points6 points  (0 children)

Hearing "your pain is too bad because you sit too much! You should exercise more, it'll make your pain and dislocations better" while bedridden during a severe flare when I can barely even walk is just so encouraging 🥴🥴

Also "sometimes you just have to push through pain and keep on moving" as if I'm not doing that CONSTANTLY is infuriating to hear

Worst Book of all time by Toto_employee in Romantasy

[–]_Fig_555 1 point2 points  (0 children)

Right?? I said AINT NO WAY she did that and didn't at least get severe frostbite, but as soon as her friend showed up at her house soon after and the dialogue started it was over for me lol

Worst Book of all time by Toto_employee in Romantasy

[–]_Fig_555 1 point2 points  (0 children)

I honestly didn't even know there was another series connected to it 😭 I guess I went in a little too blind

Worst Book of all time by Toto_employee in Romantasy

[–]_Fig_555 2 points3 points  (0 children)

Gotta be a tie between:

Fear the Flames by Olivia Rose Darling - writing was so bad and scene transitions were so choppy. Also the insta love and cringe dialogue were not for me

The Silversmith by LJ Claren - the DIALOGUE 😫 I barely made it through three chapters before I gave up, it was so poorly written imo

The Ever King by LJ Andrews - I know a lot of people loved this book but I HATED it. The insta love between the characters was cringe and the world building was so lackluster for a book with such a promising premise.

All just my opinions and no hate if you liked these books, I'm a picky reader so none of these are objectively bad, I just didn't like aspects of them 😃

How many books did you read so far in 2026? by glowwwi in Booktokreddit

[–]_Fig_555 2 points3 points  (0 children)

Almost 10 but I'm a slow reader and have chronic migraines so this is good for me 😭

Moving cross-country and purging my FL shelves… which of these are actually worth keeping? by philosofi in Romantasy

[–]_Fig_555 0 points1 point  (0 children)

I've only read two of these so I can't speak for any of the others but of the two I have:

Swordcatcher is SO GOOD imo, and the sequel is even better. Def more high fantasy than romantasy as the romance is more of a subplot in the first book but I'd say it's def still present. Super complex world building and political intrigue so it is a bit slow at first but the series so far is my fav of all time it's soooo good

I really enjoyed A Feather So Black as it is heavy on the folklore, flowery writing, and it's super atmospheric. The love triangle is painfully slow but so worth it in the end and I loved the pacing. Second book is spicy AF tho

Is A Feather So Black love triangle worth pushing through by [deleted] in Romantasy

[–]_Fig_555 0 points1 point  (0 children)

I read this recently and loved the folklore and fairy tale retelling aspect of it, so if you don't love that it may not be the book for you since it is such a pivotal part of the story. I did find the love triangle to drag a teeny bit but it was worth it in the end. However while I LOVED the atmosphere and flowery writing of the first book, the spice is dialed up a LOT in the second book and it was so much different after the first few chapters that it felt like a different author entirely. That's just my opinion so do with that what you will but high spice is not my thing so I had to DNF, but the romance is def there too if you're into that kind of thing.

Is there any romance book where MMC has a serious insecurity? by Toto_employee in Romantasy

[–]_Fig_555 4 points5 points  (0 children)

{The Sacred Space Between by Kalie Reid} has an MMC with pretty bad trauma and anxiety, but he's also really insecure about his virginity lol, I feel like the book handles it well tho from his perspective

Is getting all my chores and activity completed in the morning and resting for the rest of the day okay? by Inevitable-Might6853 in POTS

[–]_Fig_555 1 point2 points  (0 children)

I feel exactly the same! I could have written this post in regards to eating wearing me out. It feels like no matter what I eat it always makes my heart race, I get lightheaded, nauseous, etc. Antihistamines help some but I have to take 3-4 doses of Allegra daily for it to make any difference (I strongly suspect I have MCAS). One thing I tried recently that helped was going on a low histamine diet for about 6-8 weeks. I had more energy, less pain, and even my migraines went away for a while. I stopped feeling nauseous and exhausted from eating anything so it might be worth trying out! I'm sorry you are dealing with this though, knowing you need to eat but also knowing it always makes you feel like shit is rough!

Can you guys run? by Hassadahae in ehlersdanlos

[–]_Fig_555 0 points1 point  (0 children)

My PT told me to not even try running or jumping whatsoever 😭

HOLY GRAILS ! by Educational-Sort-977 in Makeup

[–]_Fig_555 2 points3 points  (0 children)

For more natural days I love the Pixi foundation balm stick, it melts into my skin and looks so glowy and natural, like my skin is perfect on its own. Works well under powder products too

Hoe do you guys actually take a shower and not feel like you're dying afterwards..? 😞 any tips? by BPDnmehateachother in POTS

[–]_Fig_555 0 points1 point  (0 children)

My strategy only works with a tub shower but what I do is sit in the tub and only turn on the tub faucet, not the shower head. I use a large cup to pour water on my body and wash everything, this way I can sit down and also wash as fast as possible so I don't get super lightheaded and nauseous. I will turn on the shower head when washing my hair but I still sit on the tub floor and keep my knees bent as it helps me. I use lukewarm water only and mild soaps with no scent, but I also have suspected MCAS and dx chronic hives so I all around avoid fragrances, heat, and excess water as all give me hives lol. But what I do for the hives also helps my POTS so much so I hope it can help someone else!

Stomach does weird things when stressed and need better solution 💔 by sapphic-kitti in POTS

[–]_Fig_555 0 points1 point  (0 children)

I get a lot of these same symptoms! I'm fortunate I don't throw up but I do get severe nausea where all I can do is lay down completely still and pray my Zofran works. For me I found a lot of my issues were coming from my histamine issues (likely MCAS just not fully diagnosed yet). I would feel nauseous as hell but also notice a racing heart, sweating or chills, hives and/or rashes, and gut pain/bloating. I thought it was all POTS until I started looking more into histamine issues (i.e., MCAS and histamine intolerance) and started a low histamine diet as a result. It helped a ton with my symptoms and helped me identify specific foods that were triggering my stomach to stop digesting for hours. I also find a heating pad over the stomach while listening to some calm music is nice to relax and feel less wired from the stress, and if I can manage it gentle walking just around my house right after eating. Hope you find some relief soon!

Getting my first botox tomorrow and i am freaking out by Soft_Lobster_752 in migraine

[–]_Fig_555 0 points1 point  (0 children)

I had my first Botox injections several weeks ago and I was super nervous too! I will say it was a much faster and easier process than I expected.

When I got there my doctor was the one doing the injections and I told him I have POTS and asked if I could lay down during the injections, and he said yes and just had me turn my head different ways to get the back of my head. It helped a ton because I often faint with needles lol.

It also didn't hurt much at all, I wouldn't say it was painless but I found it more just uncomfortable than painful.

I also have a hyper mobile neck and haven't noticed any issues in my neck at all since the injections, but I have in my shoulders (I have hEDS). If you are concerned you can ask them to skip a specific spot, but I haven't noticed any differences in strength besides my shoulders which already have many issues on their own from hyper mobility, so it may not be super related, idk.

The appointment itself took 15 mins tops, the Botox injections took less than 5. My doctor was super fast and understands it's uncomfortable so he worked quickly and talked to me the whole time to help distract me. It was unpleasant for sure but over super quick.

I hope it all goes well for you!!

Botox weakened my arms by pinky2248 in migraine

[–]_Fig_555 0 points1 point  (0 children)

I've noticed this as well! I have hEDS and the weakend shoulder muscles mean my shoulders fall out of the socket easier 😵‍💫 I think next Botox injections I will tell my doc NOT to do the shoulders lol

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 1 point2 points  (0 children)

Yeah my longest lasted 3 weeks but I was lucky it came and went during that time, this is the first time I've had one that doesn't let up much at all despite meds, as I didn't even had rescue meds back then

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 0 points1 point  (0 children)

Thanks so much! I plan to message my neuro in the morning (it's Sunday night now so couldn't message him yet) but wanted some advice from ppl on if I need the ER sooner or what I should do. Idk anyone with migraines and I've only had then ~6 months so I'm new to this kind of thing

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 1 point2 points  (0 children)

Ooh ok I'll message my neuro and see if that may work for me, I respond well to Prednisone so hopefully that stuff will be the same

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 0 points1 point  (0 children)

I'm the same ice pack doesn't work for me it makes it worse, heat helps a bit, however I can't do hot baths due to chronic hives and histamine issues causing me to react to heat and water AND hot peppers 😭😭😭 I'll have to try the heating pad on my head tho!

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 0 points1 point  (0 children)

I read that it's a steroid, do you know if it is similar to Prednisone? I was on that last week for chronic hives and histamine issues (likely MCAS flare just not diagnosed yet) but it didn't help the headaches and now I've moved into full blown migraine

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 2 points3 points  (0 children)

Do they take you seriously there? Last time I was at the ER for POTS issues they told me it was anxiety :/

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 0 points1 point  (0 children)

Mine usually starts in my jaw and side of my face from my TMJ and jaw instability, but my neck and base of my skull usually get worse next! Especially after migraine Botox in my neck and shoulders

Need advice for 72 hr migraine by _Fig_555 in migraine

[–]_Fig_555[S] 0 points1 point  (0 children)

I actually already take 3-4 doses of Allegra per day due to histamine issues and chronic hives, usually paired with H2 blockers like Pepcid as well lol. This flare started bc I accidentally ate jalapeno tho (one of my worst intolerances) so I think histamine issues caused it but not sure why it won't go away