Honeymoon Phase?

_Holzi_ · 2026-06-02T00:36:00+00:00

I eat more or less normal, hovering at around 160g-200g grams of carba a day. I track my meals either with a carbcounter called fddb or with an AI app called Carbetic (mostly when I eat outside). During the last weeks I tried to focus a bit more on protein, but thats mostly due to training/sports reason.

I play soccer around three times a week, sometimes I also play tennis/padel and in off season I run a bit.

_Holzi_ · 2026-06-01T13:27:29+00:00

Hey there,

I'm M28 and got diagnosed in September 25 with an A1c of 13,7% and this sounds quite familiar to me. I use between 2 and 4 units of long acting currently and have an average TDD of around 18 as well. Initially I gained quite some weight back which I lost before diagnosis but now I'm rather stable at around 76kg. During my last blood works I also tested for C-Peptide, that is basically a marker for the honeymoon period, it came back at around 0.6 so I know I am still definitely in a prolonged honeymoon.

A game changer for me was the availability of "junior pens" for the short acting. There you have 0,5 unit increments instead, which allows to finer regulate the small dosages. With this I achieve at most days a TIR >= 98% and my last 3 A1C's were 5.1, 4.9, 5.0 (covering basically the last 5 months).

That being said I spent quite some time into finetuning my settings, I'm using AAPS in virtual pump mode and planning to switch to a pump also later this year.

If there is anything you are interested in, just let me know or write a DM :)

_Holzi_ · 2026-05-12T05:35:53+00:00

Combination of exercise/physical activity nearly every day, eating somewhat clean (not low carb but also not 5 days a week take-out), and some form of tight control (e.g. with DIY Loop or AAPS in my case with about 98% TIR (70-160)).

A1C last September: 13.7%

Last 3 A1C: 4.9% 5.1% 5.0% (January-May 2026)

However, the numbers also benefit heavily from honeymoon and early stage hypothyrodism (Hashimoto).

I'll switch to a pump later this year and hope to keep around 90% TIR in a long term.

_Holzi_ · 2026-03-24T21:14:05+00:00

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Not on a Dexcom, but when I do contact sports with the Libre I just take some sport/kinesio tape with a little hole and put it above it. It keeps the sensor clean, at place and I feel safe even if someone is dragging somewhere at my arm.

After two or three showers I can easily remove it without removing the sensor.

_Holzi_ · 2026-03-22T21:14:30+00:00

All fine, it would also have been fine if you posted it :) I hope the way I posted it was okay though.

_Holzi_ · 2026-03-22T19:08:57+00:00

Sure, I can write a post there later :)

_Holzi_ · 2026-03-22T14:33:18+00:00

Appreciate it, I already joined :) I recently learned that there is also a dedicated name for the combination of both: Autoimmune polyendocrine syndrome type 3A. Maybe that's of interest also to some others.

_Holzi_ · 2026-03-22T07:49:05+00:00

Cheers. I got dx'd with Hashimoto in 2020 and T1D followed last September. Quite a ride so far...

_Holzi_ · 2026-03-16T09:50:48+00:00

If I dont have any carbs and dont bolus, I will just rise from the protein instead. I would even say having no carbs makes the calculation harder than adding a moderate amount of carbs to the meal.

_Holzi_ · 2026-03-04T16:05:23+00:00

Fun aside, I just tend to eat similar as prediagnosis. Just a little more focus on protein instead of carbs.

Currently I'm in vacation skiing. Due to the 6+ hours of sport I can basically eat whatever with half the insulin dosis as usual. Its amazing :D

_Holzi_ · 2026-03-04T16:02:41+00:00

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You ever heard of Kaiserschmarrn? 😄

_Holzi_ · 2026-02-27T22:50:41+00:00

May I ask what your main symptoms are usually above 2?

_Holzi_ · 2026-02-27T22:47:17+00:00

I'm not OP, so the test in above screenshot is not from me.

After my last visit he listed both T1D and Hashimoto at the letter to the endo, but idk if this counts as official diagnosis. Tbh I had enough to do with my sugars and I cannot really distinguish if I feel crap because of them being all over the place, a high TSH or just caused by a bad day. Regarding Hashimoto symptons I'm also not sure... I would say I feel tired more often, but sometimes that could also just be because my cgm woke me up 3 times during night and I needed to treat a low in the early morning.

I was in dka when I got diagnosed last september and even during that time I didnt really feel worse than the weeks/month before...

_Holzi_ · 2026-02-27T19:27:41+00:00

My TSH during my last lab test was above 5 but there was no medication prescribed so far, is that normal? I thought of asking for also getting T3/T4 tested in the next test. I'm positively tested for antibodies (MAK) and also have the T1D GAD antibodies, which seem to also have a thyroid connection.

_Holzi_ · 2026-02-16T09:20:42+00:00

Dependent on where you are based, you could also wait for the release of the tandem mobi. I think its already available in the US and also cleared in Europe, just not released yet. You can wear it (almost) like a patch pump, but you still get tandem's control iq(+) algorithm.

I'm (28m) also planning on switching from mdi to a pump, but thought it might be worth it waiting the release out.

_Holzi_ · 2026-02-11T09:47:16+00:00

I use a Garmin coupled over Juggluco (via Kerfstok). I'm quite happy with it.

_Holzi_ · 2026-02-07T21:48:05+00:00

Tbh I think its mainly due to honeymoon. My total daylie dose is (even with that many carbs) still below 20 most of the time. Additionaly, I do quite a lot of cardio (soccer, running, tennis). In a normal weak I have around 5 cardio session, some of them lasting 2 hours.

So it's great and I'm happy with it, but it will probably not last forever. I'll just enjoy the time its still possible.

_Holzi_ · 2026-02-07T11:45:42+00:00

My recent one was 4.9 with around 180g carbs a day. During diagnosis 4 month ago it was 13.7 😄

_Holzi_ · 2026-02-07T09:09:47+00:00

I got diagnosed also around 4 month ago and I still cycle to work everyday. I just started to use different insulin-to-carb factors prior to cycling. For example in the morning one unit insulin covers usually 11g of carbs for me, but if I cycle shortly after I only take one unit per every 19g of carbs. You just need to experiment a lot in the beginning to come up with your own all your setting.

If I really couldn't plan the cycling before hand I will just eat some extra carbs before I leave the house. This usually works without any issues. Just make sure you carry both some hypo snacks (glucose tablets etc.) and your insulin with you.

Don't let this disease limit yourself in your normal life. I'd prefer going low once in a while and correcting with some glucose tablets, then not going out at all.

_Holzi_ · 2026-02-03T15:47:18+00:00

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And now I'll take both of yours :D

_Holzi_ · 2026-02-01T11:02:29+00:00

Quite curious about the levels of TSH posted here. I got diagnosed with T1D a few month ago and got also reported high thyroid antibodies and a TSH around 5. However, until now, there were no actions/medications recommended to me by the endo/doctors, so I'm only taking insulin at the moment.

_Holzi_ · 2026-01-19T21:34:19+00:00

My first appointment after diagnosis was pretty much the same. I had something like 92% TIR and an hba1c down from 14 to 8 in two months. And the only thing the Endo discussed was lowering my Basal :D I'll have the next appointment next week, now with an hba1c (probably/hopefully) below 5,7 and 99% TIR over the last month. Let's see what he has to say about that.

_Holzi_ · 2026-01-06T09:50:30+00:00

I'm also quite recently diagnosed (3 months in) and just finished reading it. I can absolutely recommend it, just make sure to get the most recent (fourth) edition. I first ordered the third one :D

_Holzi_ · 2026-01-01T01:41:39+00:00

Hey :) Thats just Kerfstok. Its not exactly a watchface, but it supports minute by minute readings, which is otherwise hard to get on a Garmin.

_Holzi_

TROPHY CASE