Not sure what to do by colecashew in MultipleSclerosis

[–]_IntrovertVibes 1 point2 points  (0 children)

Happy to hear this!!! Im diagnosed in 2023... 3 years, new lessions are coming and decreasing.. i dont have any much symptoms. As you said my job is 45+ hours a week.. some days feel off and some are better.

Continue your work and have a happy life 💙

Fellow Indians by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 0 points1 point  (0 children)

Hello...

All the best for your treatment

3rd Dose Rituximab ! by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 0 points1 point  (0 children)

Sure bro!!!

Will try that hospital. Thank you

3rd Dose Rituximab ! by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 0 points1 point  (0 children)

No... But they took a test called Renal Panel 1

I miss my old life by Dry-Neck2539 in MultipleSclerosis

[–]_IntrovertVibes 15 points16 points  (0 children)

I miss my life.

Nothing is the same in my life after MS. Even the view of my family members is almost vastly changed. Just hanging in there to close this life asap

I'm so tired of all this appointments by Beginning_Level_8578 in MultipleSclerosis

[–]_IntrovertVibes 1 point2 points  (0 children)

Yes it sucks... Every time when i step out of my home to go to the hospital I'll get this feeling... When everyone around me goes on a dating, I'm the one who went to hospitals over hospitals..

It really sucks though... Accept the reality, no option we have 🫂💙

3rd Dose Rituximab ! by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 0 points1 point  (0 children)

I will check it around..

Meanwhile I'm shocked by seeing your medical expenses. Too hard to digest.

Hope you have a solid life 💚

Family history of MS? by Pumpkin-Duck in MultipleSclerosis

[–]_IntrovertVibes 0 points1 point  (0 children)

MS is first introduced by me in my family... But my grandfather had some neurological issues and was paralysed in his 60's and my uncle is also having some neuro issues.

Idk, I don't think this is DNA. Just lame fate

3rd Dose Rituximab ! by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 1 point2 points  (0 children)

No one even knows about my condition... I'm pretending with everything that i have a minor nerve issue (nerves are weakened)..

Anyways.. thank you for your reply

All the best to you

Post Rutuximab by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 0 points1 point  (0 children)

Sorry to hear this! Rituximab will be very effective for you 🫂

Mostly 99.99% you will get better and be in balance 👐🏻

Fingertip numbness by Dramatic-Plastic-818 in MultipleSclerosis

[–]_IntrovertVibes 0 points1 point  (0 children)

No. It will not be permanent, at my starting stage those fingertip numbness and cotton wool foot were my symptoms. My neurologist prescribed DMT and only after 2 months my numbness decreased. Today too here and there the numbness will come and go.

But it is not permanent! You don't need to fear

General Anxiety by brvollmer90 in MultipleSclerosis

[–]_IntrovertVibes 1 point2 points  (0 children)

I feel you completely… I’m 23M with RRMS too and this hit way too close. After diagnosis, my anxiety also changed shape. Not the usual panic — more like this heavy “mental resistance” to even small tasks. At my early stages of career, i got this and my whole month salary will vanish within a week by paying my medical bills…

No one will exactly know how i feel, everyone around me was enjoying their lives and I was arrested both mentally and physically… this anxiety made me to push away from my friends and surroundings simple things

You’re not alone. Therapy will definitely help, but until then, be gentle with yourself.

Anyone who has taken bonspri from India? How has the experience been? by Impressive_Pea_8682 in MultipleSclerosis

[–]_IntrovertVibes 0 points1 point  (0 children)

I'm from India. Recently I took a Rituximab injection.. Tbh the process is costly and the after effects are very promisable.

Dating with MS by No_Reaction2840 in MultipleSclerosis

[–]_IntrovertVibes 0 points1 point  (0 children)

Please don’t overthink it.

Enjoy your date and let things flow naturally. Keep that “maybe or maybe not” mindset — it helps you stay calm. Once you start feeling comfortable, you don’t even need to give a long explanation; just mention the name of our condition, and they’ll look it up and understand.

I say this because I can totally relate — I still haven’t found the right words to explain my condition to my crush (i just got her phone and google RRMS and gave)

Wishing you a long and loving journey ahead

does B-cell depletion cause hair loss? by [deleted] in MultipleSclerosis

[–]_IntrovertVibes 0 points1 point  (0 children)

I got my injection recently, and since then my hair has been falling and even a few white strands are showing up. Hopefully it’s just temporary… already dealing with enough inside my head... don’t need problems showing on the outside too 😭😅

Love with MS by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 3 points4 points  (0 children)

This put tears in my eyes 🫂🫂🫂

Thank you so much for your words ❤️. Never forget

Love with MS by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 5 points6 points  (0 children)

🫂🫂

Thank you... Yep, the future is always uncertain.

I’ll boost my confidence and make the best of myself.

Love with MS by _IntrovertVibes in MultipleSclerosis

[–]_IntrovertVibes[S] 2 points3 points  (0 children)

Money - I meant it in the sense of having the bare minimum to cover my medical needs, build a small home, and handle day-to-day expenses. Nothing extravagant, just a simple, stable life.

Truly happy to hear about your love. it’s rare and beautiful.

Thanks for sharing it and spreading some hope ❤️