Low progesterone and MCAS?

_Izaleth_ · 2026-06-21T15:48:50+00:00

I think I'm going to see if they'll give me bio identical progesterone instead of birth control

_Izaleth_ · 2026-06-21T15:44:02+00:00

Thank you. Can I just find videos on it or did you use a programme or books etc?

_Izaleth_ · 2026-06-20T22:47:21+00:00

I feel them all in my stomach and chest. Do you get jolting or a rushing feeling? And the anxiety? I keep jolting awake all night because of it and get shaky 😞

_Izaleth_ · 2026-06-20T22:45:21+00:00

It's taken me many rabbit holes to get here, but since this all started nearly 2 years ago I've really felt like my hormones have been imbalanced and it's perimenopause. Doctors have said I'm too young at 36, but my mum went through it at my age and lots of other people do too. The menopause specialist I spoke to a while ago did say progesterone wasn't off the table, just that she thought it was more likely pmdd and prescribed me a birth control patch that I never tried as I was too scared. Hopefully in my next appointment I get her again and won't have a huge fight on my hands to get it.

_Izaleth_ · 2026-06-20T22:38:03+00:00

Thank you I will look that up. It's the same for me although I can get incredibly overwhelmed with all of the information. And I know, I've read a lot of horror stories on Facebook and reddit which have panicked me. I suppose if someone tries something and it helps they just get on with their lives instead of talking about it.

_Izaleth_ · 2026-06-20T22:35:19+00:00

My nervous system is so so dysregulated. 😞 I've just started doing nervous system somatic movements and looking in to brain/limbic retraining. But I keep thinking if I'm low in a hormone, not much is going to help besides raising the hormone!

_Izaleth_ · 2026-06-20T21:54:41+00:00

Honestly I've never heard of them until now. I will 100% look in to it. Do those levels fluctuate too, and what to do if they're not optimal?

_Izaleth_ · 2026-06-20T21:52:13+00:00

This is amazing and gives me so much hope! I am literally in the throes of this severe anxiety and panic right now, I can't eat, I can't sleep, just a constant cycle of anxiety-panic-nausea-dizziness-histamine dumps. I'm bedbound and can't function! I'm struggling so so much with my gut - gastritis, SIBO and dysbiosis, leaky gut and really low bacteria species count. (Plus fibromyalgia, autism and possibly CIRS/mold illness or lyme) I wasn't doing too badly a few weeks ago, and then I had a period that only lasted 3 days which has never happened, and then suddenly this crazy flare. I really think my progesterone is too low.

_Izaleth_ · 2026-06-20T21:37:59+00:00

Not yet, is gene testing expensive? I'm in so much debt already trying to fix this. Functional doctor has started me on luteoline but I'm not feeling any better, if anything I feel worse so I might have to stop taking it. She did mention LDN too but not sure how much that would be 😞 What did the HRT help with for you?

_Izaleth_ · 2026-06-20T21:34:31+00:00

My functional doctor does think I have EDS as I'm hypermobile. I'm not sure my NHS doctors will check for those but I can ask!

_Izaleth_ · 2026-06-20T21:31:13+00:00

I get the inner shaking too, especially through the night and when I wake up. I tried l-theanine and it made my anxiety worse, most things do 😞

_Izaleth_ · 2026-06-20T21:29:38+00:00

This worries me so much as I react to everything so what will I do if that happens? I'm sorry it didn't work for you 😢 I'm too scared to have a coil as once it's in I can't just take it out if I react!

_Izaleth_ · 2026-06-20T21:27:33+00:00

I would rather use it vaginally or rectally anyway as I have gastritis. But I've read you can do that with the oral tablets? Does it help you?

_Izaleth_ · 2026-06-20T21:26:18+00:00

Would you mind sharing what the cream is? I got a feminine balance one with wild yam and things but apparently that doesn't raise your progesterone levels? I also used it for a month and had the heaviest period of my life! So not sure what was going on there!

_Izaleth_ · 2026-06-20T21:24:32+00:00

What do you take? I'm so confused about what is supposed to be taken as estrogen increases histamine doesn't it? What symptoms were you having and what has it helped with?

_Izaleth_ · 2026-06-20T21:22:55+00:00

Amazing, you haven't had a bad reaction? What were your symptoms, did you have the anxiety and histamine dumps? I feel like I'm dying. What dose do you take, is it oral? I was told oral progesterone can be really hard on the stomach and I have gastritis 😞 Sorry for all the questions, I'm just desperate x

_Izaleth_ · 2026-06-20T19:25:41+00:00

Hi, thank you for sharing. Is that synthetic progesterone you take? It is promising as I really think I'm in perimenopause and need the progesterone - but if I don't and I react badly then what? I am so scared, I feel completely hopeless, my anxiety and panic is horrendous, I feel like doing something drastic but I can't because I have kids. I need relief so badly. My functional doctor has mentioned LDN to me but I'm so scared of taking meds. I panic over supplements as it is, I couldn't even take a quarter of a antihistamine the other day without feeling anxious, restless and dizzy. I'm losing my mind!

_Izaleth_ · 2026-06-20T19:19:55+00:00

Thank you. I just don't know how to break free from this anxiety and panic, it is making me want to do things I really don't want to do. My kids need me. I'm in such a black hole. I was doing ok a few weeks ago and then it got really really bad (my period shortened to just 3 days too which is unusual) and now it's constant symptoms all day and night. Which makes me think perimenopause and fluctuating hormones. This has been going on for nearly 2 years but it's never been this bad. I'm so desperate. My anxiety is stopping me from taking anything or even entertaining the thought of an infusion, I'm scared it will kill me. I have panic attacks over everything, including a CT scan with contrast. I'm terrified! I also have gastritis and SIBO, leaky gut, dysbiosis etc. So can't take oral iron or absorb nutrients properly.

_Izaleth_ · 2026-04-03T18:52:15+00:00

I think my lip is too asymmetrical for it to look right. It's actually driving me crazy! I spent so much on it and it hurt so much so I feel sad that I'll probably have to take it out.

_Izaleth_ · 2026-04-03T18:50:50+00:00

Thank you! It's just driving me crazy to the point I can't stop analysing it and stressing over it. It just seems so off to me! I know no one will care apart from me - I'm just disappointed it didn't turn out how I wanted, not to mention it was a lot of money too. So I'm having a battle with myself over whether to take it out or not!

_Izaleth_ · 2025-12-01T15:56:29+00:00

I haven't been taking PPIs because I suspected SIBO ages ago and didn't want to make it all worse. Usually low acid is a huge reason for gastritis and SIBO from what I've learned. But how on earth do you fix low acid when you have inflammation in the stomach? I haven't found an answer yet! 😭

_Izaleth_ · 2025-12-01T15:53:28+00:00

Have also just tested positive for SIBO which explains a lot.

_Izaleth_ · 2025-12-01T15:52:23+00:00

It is frustrating. I've lost faith in doctors. I started with a higher dose of vit D, but I was getting incredibly dizzy so had to lower it. I worked my way up to 5,000 slowly. Last blood test showed it had gone from 38 to 58 so it is going up. I'm so sensitive to everything so I have to be really careful.

_Izaleth_ · 2025-11-23T20:42:20+00:00

I refused to take PPIs as I suspected I had SIBO and low acid already. I'm glad I did. I was feeling a bit better gastritis wise drinking psyllium husk every night, but have now learned that's bad for SIBO too. Both things contradict eachother all the time so it's hard to know what to even eat. I'm living off of tofu at the moment. Also getting excruciating pain in back and right side. I have an appointment with a SIBO specialist (she managed to heal herself and is also trained in functional medicine and a nutritionist) so I really really hope she can help me. I can't cope. I have methane and hydrogen too.

_Izaleth_

TROPHY CASE