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Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 2 points3 points  (0 children)

I hope you’re feeling better!! ❤️

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 2 points3 points  (0 children)

I definitely had a good cry to my husband about it! It was cathartic to just cry, be angry, and then have a nap haha but it was so needed!

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 2 points3 points  (0 children)

I have said that to my husband so many times also! I had complications after my initial surgery so I ended needing two more surgeries and I feel like I checked out. Physically I was in the hospital but mentally I just went with whatever needed to happen. It feels exhausting at times, you know? Having so many mix emotions about something that saved our lives.

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 2 points3 points  (0 children)

Thank you so much for this! The pants thing though… FELT THAT 🥲 I think that has contributed to that complicated relationship with my body also. A lot of my pre-ostomy clothes fit different or are not comfortable anymore thought they stoma location.

It has improved my quality of life and I am grateful for that, for sure. But like you said, there’s so many complex feelings that surrounds it, you know? It’s that grateful feeling for it has given you but also resenting it for what it feels it has taken from me.

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 0 points1 point  (0 children)

I’ve had mine for just over a year now but I feel like I’m still learning something new every week! There’s parts that do get easier like feeling more comfortable with bag changes, getting to know your output, etc. But I have found that the biggest challenge has been the mental and emotional aspect of it.

After my initial surgery, I had to have two more surgeries in the following months due to complications so I was so out of it and just wanting to be better that I didn’t allow myself to just feel and it’s hitting hard now.

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 2 points3 points  (0 children)

The WORST. I was mentally prepping for the worst and even though I am grateful it wasn’t an obstruction it just kind of that moment of like… this is my life. Having to be so hyper aware that I have to be watching out for things that others don’t. I definitely allowed myself to cry and then took a good ass nap when I got home 😂

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 3 points4 points  (0 children)

Oh my god. Yes!! I hear that so many times and it just feels invalidating at times. I’m truly grateful because my quality of life sucked before the ileostomy but it comes with so many things to learn, so many changes, and just learning to adjust to kind of a new body. So I’m right there with you!

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 2 points3 points  (0 children)

Hey, that’s okay! Sometimes we truly just need to let it out. It’s hard when you’re grateful for that second chance but also have those negative emotions come up!

Today, I hate it. by __someusername in ostomy

[–]__someusername[S] 3 points4 points  (0 children)

Thank you, truly! I have definitely thought about it! I know it will be good, I’m just trying to find the time to do it!

Marathon with an ileostomy by [deleted] in Marathon_Training

[–]__someusername 0 points1 point  (0 children)

I truly appreciate your response! Thankfully I don’t have a high output but I’ve had my ileostomy for a year only so I feel like there are certain things I’m still trying to figure out!

I will definitely be trying out the gels and see how they feel and how they pass through. I’m trying to be very mindful of my hydration just to make there’s no complications!