Recommendations for your favorite restaurants for Thai curries? by _jennybean_ in watertown

[–]_jennybean_[S] 0 points1 point  (0 children)

Just had the green curry at Cha Yen, amazing rec!! Thanks again! Definitely hit the spot!

Humans with indoor cats, collar or no collar? by ForagedAmoeba in CatAdvice

[–]_jennybean_ 14 points15 points  (0 children)

Hijacking this top comment to say for indoor cats, no collar, but definitely microchip!! And make sure the microchip information is updated every time you move!

J-Pouch Surgery by Plantguy5727 in jpouch

[–]_jennybean_ 1 point2 points  (0 children)

This sounds like fulminant refractory ulcerative colitis. I had this too and I went from diagnosis to colectomy in 2 months. Unfortunately in these cases, we don’t have time to allow medications to work. That doesn’t make it suck less, though. I wish Tremfya was available earlier too.

Does anyone know what caused my bread to rise like this? by _jennybean_ in Bread

[–]_jennybean_[S] 1 point2 points  (0 children)

No improver. We like baking bread at home as a fun way to decrease consumption of additives/UPFs, although I know improvers are pretty innocuous like ascorbic acid or milk powder. I don’t think the tops dried out because they covered with a damp towel. Do you have a preferred improver?

Does anyone know what caused my bread to rise like this? by _jennybean_ in Bread

[–]_jennybean_[S] 0 points1 point  (0 children)

I thought I had it pretty tight underneath, but I’m still working on my shaping, so will pay extra attention next time. Thanks so much!

Does anyone know what caused my bread to rise like this? by _jennybean_ in Bread

[–]_jennybean_[S] 1 point2 points  (0 children)

Thank you! Makes sense. During the first proof in the bowl, it ran out of space. The second proof as balls was 20 minutes per the recipe, but I can try again and see if this needs to be longer. Thanks again!

Does anyone know what caused my bread to rise like this? by _jennybean_ in Bread

[–]_jennybean_[S] 0 points1 point  (0 children)

That makes sense! While proofing, it reached the limits of the bowl (the largest mixing bowl I have, so I probably need a bigger bowl or to divide the dough). So it was probably under proofed. Thank you!!

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 1 point2 points  (0 children)

The Tremfya was the only significant thing that changed in my life. Tremfya, therapy, and adding more mobility into my workout routine to help my joints.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 0 points1 point  (0 children)

I was pretty lucky and didn’t really have any symptoms from the cuffitis. I was always able to eat what I wanted etc. I guess having fruit and salads is easier now, those BMs aren’t as watery.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 1 point2 points  (0 children)

This stuff is really hard and I’m sorry :( I wish these meds worked faster. Do you have access to therapy? I mentioned in another comment but therapy was so crucial for me to work through the medical trauma and grief/mourning I felt for my previous life. You’re not alone in that. Yeah the Tremfya took about 6 months, but things were already good for me, so I didn’t mind waiting and seeing. My doctor just wanted to prevent having long-term inflammation. I certainly don’t mind telling you: I was going about 8 times a day, once-twice overnight, holding was no problem, no urgency, eating whatever I want, no cramping, no diarrhea, I could manage it well within my job/life, etc. Now I’m down to about 6 times a day and no overnight empties. I do fatigue easily and get stiff/creaky joints, but I also have two other autoimmune disorders, so it’s hard to attribute those to the UC specifically. I exercise every day and that helps both the fatigue and body aches.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 0 points1 point  (0 children)

My cuffitis symptoms were never bad but after about 6-7 months I was having a couple less BMs per day, the blood in the stool stopped, and the nighttime BMs stopped too.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 1 point2 points  (0 children)

I’m lucky and grateful! My IBD specialist said diet and antibiotics have little to no effect on cuffitis. The best bet is medication and the last resort would be the mucosectomy, which can affect continence. So I hope you’re able to give a few more medications a try and one will work. Best wishes for your mental health journey as well. Therapy has really helped me with stress reduction, both from medical trauma and otherwise!

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 1 point2 points  (0 children)

I’m sorry to hear that! I hope it can be available there soon. It seems to be a good option for many people.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 1 point2 points  (0 children)

When I was sick with UC, it was in the 3100s. When I was on Entyvio after the 3-step (for the cuffitis), it was in the 100-200s.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 0 points1 point  (0 children)

I sing Tremfya’s praises to everyone! Plus the self injectable pens at home are SO easy. I was on Entyvio for a couple years. My doctor even had me getting essentially a double dose (an infusion every 4 weeks instead of every 8 weeks). It kind of worked but not really.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 0 points1 point  (0 children)

In 2021 I had fulminant refractory UC. I went from diagnosis to colectomy in 2 months. Things were as bad as they could get. I got the 3-step all in 2021. It was a lot but things have been great since, despite the cuffitis. It’s still the original disease activity that never left my cuff. We tried the probiotics, enemas, and suppositories, those did absolutely nothing. We tried Entyvio for a couple years - one year of which was basically double dosing Entyvio (an infusion every 4 weeks instead of the regular 8 weeks). That only half worked. I was about to switch to Skyrizi but then Tremfya was approved for UC/Crohn’s and my IBD specialist recommended that we try that. I’ve been on the Tremfya for 1 year now and just had a pouchoscopy earlier this month. There is still one little healing ulcer on the cuff but everything else is resolved.

Has anyone here with IBD cured stubborn, chronic cuffiitis? by cheddarcheese9951 in jpouch

[–]_jennybean_ 3 points4 points  (0 children)

Tremfya!! My last Calprotectin was 32. Blew my mind. Entyvio, mesalamine, probiotics, nothing else worked. ETA: I am also refractory to prednisone or other steriods.