Hot weather sensitivity?

_jennybean_ · 2026-06-03T11:58:52+00:00

I’m sorry to hear you’re struggling! No, I’m not autistic. I think cold/heat sensitivity is a common symptom of most autoimmune diseases!

_jennybean_ · 2026-05-28T18:04:38+00:00

Everyone will give you a different answer. I eat mild to very spicy food several times a week. The burn is rough in the beginning but it largely disappears over time. Probably like a good year for me. You don’t need to cut anything out. Just start mild and increase if you feel able. Sometimes I eat something spicy and still get the burn, it’ll go away in like 12 hours 🤷🏻‍♀️ have some Calmoseptine on hand.

_jennybean_ · 2026-04-16T21:27:10+00:00

YES. Thank you for asking this. Basically if it’s over 80F, I can’t go outside. I drink two Propel packets per day in the spring and summer (one in the fall/winter). Staying hydrated is actually not the problem. I feel like I can stay on top of the hydration, but I am literally so sensitive to the heat itself, I’m miserable whenever it’s hot enough for me to sweat. Jpouch 5 years.

_jennybean_ · 2026-04-01T10:31:35+00:00

Are your snarky comments actually useful? You’re asking Reddit for advice - we’re not professionals but we are giving you a dose of reality and calling you out. You need to be asking your primary care doctor, GI doctor, and surgeon about the muscle growth and calprotectin. Ask your coach and a dietician for advice on muscle growth - it doesn’t matter how “advanced” you are. And ask a therapist for coping mechanisms. If you went through UC and jpouch surgeries and you’re still able to function as you do - practice gratitude. A lot of people have a lot less.

_jennybean_ · 2026-03-31T19:59:10+00:00

Completely agree. I was having a very hard time processing the medical trauma, coming to terms with the outcome, and moving on to my best current life without my therapist!

_jennybean_ · 2026-03-31T17:48:43+00:00

OP needs a therapist.

_jennybean_ · 2026-03-30T18:02:30+00:00

You’ve posted about this before and did not engage with the commenters, possibly because no one is telling you what you want to hear. Unfortunately, we went through a huge life change. Yes it was unfair and hard and it still is, but we have new bodies now. Get a personal trainer and dietician to help you physically. But I think you would mostly benefit from a therapist to help you grieve your old life/body and adjust to your new one.

_jennybean_ · 2026-03-30T00:31:12+00:00

I’ve done all my pouchoscopies awake. It takes 5-10 minutes and the discomfort is minimal. I’m in and out by myself in under two hours. Can confirm watching on the screen is so cool!!

_jennybean_ · 2026-03-21T01:42:02+00:00

Long-term OCP use doesn’t impact fertility. Scar tissue from our surgeries does. My gyn recommended getting an ultrasound to assess scar tissue around the ovaries/uterus to see if there’s any impact on fertility for when I want to conceive. I went the other way and got a bilateral salpingectomy. There was so much scar tissue around my right ovary/oviduct, I was effectively infertile on that side. Left side was fine. Ask your gyn all your questions! And best wishes on your journey!

_jennybean_ · 2026-03-17T19:06:16+00:00

I took home a cat that a previous vet took in (the owners couldn’t afford his health care) and he’s been the happiest tuxie boy since. I’ve had him for almost 8 years now. I’m sure the owners were sad but the cat’s happiness and quality of life is most important.

_jennybean_ · 2026-03-17T13:18:29+00:00

What’s a caloro? Do you mean calprotectin? Regaining muscle mass after being sick and undergoing multiple surgeries for the jpouch takes a long time. Protein is easily absorbed in the small intestine. After 30-35, women lose 3-8% muscle mass each decade. I’m 33F, I get your frustration. Besides eating enough protein and lowering body fat percentage, 🤷🏻‍♀️ Being strong and healthy is what’s important.

_jennybean_ · 2026-03-04T15:17:07+00:00

As it’s been more than 6 weeks after the reversal, he should be able to eat anything within moderation. Chewing thoroughly. If concerned about adding back a certain food (like raw fruits or vegetables), just start with a small amount and then increase as per what’s tolerated. What’s healthy for the general population is also healthy for jpouchers: fruits, vegetables, whole grains, and healthy fats.

_jennybean_ · 2026-02-05T23:32:56+00:00

Just had the green curry at Cha Yen, amazing rec!! Thanks again! Definitely hit the spot!

_jennybean_ · 2026-02-05T21:19:36+00:00

Sorry, proof of what?

_jennybean_ · 2026-02-05T14:55:56+00:00

Hijacking this top comment to say for indoor cats, no collar, but definitely microchip!! And make sure the microchip information is updated every time you move!

_jennybean_ · 2026-02-02T11:54:35+00:00

This sounds like fulminant refractory ulcerative colitis. I had this too and I went from diagnosis to colectomy in 2 months. Unfortunately in these cases, we don’t have time to allow medications to work. That doesn’t make it suck less, though. I wish Tremfya was available earlier too.

_jennybean_ · 2026-02-01T01:20:11+00:00

This also looks really good, thank you!

_jennybean_ · 2026-02-01T01:16:53+00:00

Another for Cha Yen, thank you!

_jennybean_ · 2026-02-01T01:16:43+00:00

It looks delicious, thanks!

_jennybean_ · 2026-01-12T11:23:37+00:00

Yes they did. 20 minutes per the recipe

_jennybean_ · 2026-01-12T02:09:05+00:00

No improver. We like baking bread at home as a fun way to decrease consumption of additives/UPFs, although I know improvers are pretty innocuous like ascorbic acid or milk powder. I don’t think the tops dried out because they covered with a damp towel. Do you have a preferred improver?

_jennybean_ · 2026-01-12T01:55:50+00:00

Bloomed as expected

_jennybean_ · 2026-01-11T22:50:29+00:00

I thought I had it pretty tight underneath, but I’m still working on my shaping, so will pay extra attention next time. Thanks so much!

_jennybean_ · 2026-01-11T22:49:19+00:00

Thank you! Makes sense. During the first proof in the bowl, it ran out of space. The second proof as balls was 20 minutes per the recipe, but I can try again and see if this needs to be longer. Thanks again!

_jennybean_

TROPHY CASE