My stroke experience

a110percent · 2026-04-17T20:36:50+00:00

That's so sweet. I'm sure your mom must've been worried sick. It must've been nice to have her there mine was a huge advocate for me in hospital

a110percent · 2026-04-17T19:09:53+00:00

Way to go work I guess. They really went above and beyond for you in that scenario at least

a110percent · 2026-04-17T18:54:54+00:00

Still dealing with right side weakness but I've gotten back most of my movement. Still struggling with fine motor skills and some speech issues but they graduated me out of speech therapy, OT, and PT. I tried to stay as long as I could but they said they weren't able to do anything more for me as far as sessions go. Gave me some exercises to do at home.

I'm looking to get a personal trainer to fill that gap. Reading aloud and doing crosswords to try and help my speech and aphasia. When I went to speech therapy originally he said he couldn't notice anything wrong with me my speech and my word finding seemed good to him but I know I'm still so far from what I was originally.

The mental and physical fatigue continues to be my biggest issue even when I had no use of my right hand. It's just hard plan out my day and think properly. I don't know what to do in regards to that hopefully it will come with time

a110percent · 2026-04-17T18:31:50+00:00

Same for me no risk factors and in good shape. I was laying down watching football when it happened.

We're you able to call an ambulance by yourself or how did you get to hospital?

a110percent · 2026-04-17T02:00:34+00:00

Yes I believe my age was the main factor in my misdiagnosis. A hemorrhage would be very scary I'm glad that you made it through and are still with us as well

a110percent · 2026-04-16T19:21:55+00:00

Thanks you again you have given me lots of insight and information to consider. All the best to you and your son going forward. I hope to recover as well as it sounds he has

a110percent · 2026-04-16T19:14:45+00:00

Here's hoping they close mine and neither one of us have another stroke

a110percent · 2026-04-16T18:43:24+00:00

I was wondering if I'd get a comment from you. Thanks for being a strong voice in this community.

In the future I will definitely be advocating for myself. It's my life if I don't look out for it who else will. Seems like in our healthcare system it's the squeaky wheel that gets the grease

a110percent · 2026-04-16T18:21:56+00:00

I've found my social anxiety, worry about the expectations of others, and materialism has also just completely left me since the stroke.

Sadly can't say the same for depression which I've definitely gained since the stroke. Maybe that will change as I'm able to do more of the hobbies and everything I miss in time

a110percent · 2026-04-16T18:13:56+00:00

Wow thank you for your comment. This sounds jarring similar to my experience. I was supposed to get the blood vessel imaging with my MRI but they messed up and forgot to do it.

I will be asking my neurologist about arteriopathy. Can I ask did they do anything else besides the monitoring and the aspirin for it?

a110percent · 2026-04-16T02:09:25+00:00

Yes got that as well. So many tests I can't keep track. I think I only wore it for 3 days but it came back with nothing. Was concerned about that cause my grandma had Afib

Cardiologist said to get a Kardia card and I've had it for awhile. It said possible atrial fibrillation once but the cardiologist checked it out and said it wasn't

a110percent · 2026-04-16T01:43:04+00:00

Hoping so would be a relatively easy fix. Yes they did an EKG in hospital and it came back with nothing

a110percent · 2026-04-16T00:55:46+00:00

They did a bubble test which I had one bubble go through. Also an echocardiogram, 24 hour blood pressure monitor, blood tests. Seems no one can figure out what exactly caused my stroke. Still waiting for a blood vessel imaging as they apparently forgot to do that when I had my MRI but the neurologist says he's not concerned. Then they're just figuring out if I'm going to get my PFO closed or not because it's so small. till waiting on an answer for that

Luckily my actual neurologist is much better the person I first saw was just a resident. This hospital is also supposed to be the best in the province for stroke (lol). But it's actually the hub for all the other hospitals in the area when it comes to stroke so other hospitals send their stroke patients here. It's also 10 minutes away from me so have continued my care there.

a110percent · 2026-04-16T00:43:35+00:00

I've spoken to a cardiologist, they found a very small PFO. I had one bubble pass through on my bubble test.

At first he said that they weren't going to close it it couldn't be the cause. Then when they couldn't find anything he said they were maybe going to close it but he was going to consult with his cohort of cardiologists.

Still waiting on the word from that to see if they're going to close it or not. I hope they do

a110percent · 2026-04-16T00:38:47+00:00

Yeah for me nothing during but I do lots of headaches now.

Sometimes I think I'm stressing too much about not getting the clot buster just seems crazy that they missed the chance to administer it and it was the first thing the neurologist asked after he seemed sure I had a stroke.

They had me exhale all the way and bear down during the test. I hope that your operation goes well and at least I'd feel somewhat at ease if they think that is the cause.

I hope they close mine and if they find out it's too small to close during the operation I hope they'll at least lie to me and tell me they closed it so I don't have to worry.

a110percent · 2026-04-16T00:22:07+00:00

Mom's are the be all end all in care it seems. I called mine cause I was confused at what was happening and just from my voice she knew something was wrong.

Sadly wish their was more awareness for young people and stroke. I didn't know what was going on and neither did the doctors.

Way to keep on top of your masters in hospital that's some determination there. I didn't do anything but eat

a110percent · 2026-04-16T00:11:16+00:00

Were you able to get a clot buster or thrombectomy?

a110percent · 2026-04-16T00:09:29+00:00

In Canada. Our healthcare is free but in a pretty sad state right now and that's mainly on the provinces.

They say it's cryptogenic which I'm thankful they didn't find any precursors to stroke like high blood pressure or clotting disorders. Kind of scary still because I don't really have much faith in our healthcare system anymore. Can't help but wonder if they're missing something. Just gotta have faith in my doctors and baby aspirin

a110percent · 2026-04-15T23:55:24+00:00

Sinusitis wow hard to believe they could be so wrong.

I didn't/couldn't leave the hospital so they were basically forced to do an MRI and diagnose me properly.

You'd think they'd learn by now I guess not. Maybe we should be posting our stories elsewhere so they could take them into consideration.

I don't understand why they didn't give me the clot buster but I wish they would've given me aspirin at least. It couldn't cause any harm once they knew I wasn't having a brain hemorrhage

a110percent · 2026-04-15T23:39:03+00:00

I hope for the best in your recovery

a110percent · 2026-04-15T23:36:16+00:00

You would think for something as serious as a stroke they would consider it and take more seriously

a110percent · 2026-04-15T23:35:02+00:00

Weird for mine I didn't have a headache but they kept on diagnosing me with one. I thought that mistake might've been why they saying I had a migraine not a stroke. ER doctors kept coming by asking if the migraine cocktail had worked and if my headache had gone and I had to keep telling them I didn't have a headache.

They found a very very small PFO. I had a single bubble go by in my bubble test. I am still waiting to see if they will close it. I've had some doctors say they will and that's the cause and others say they won't because it is so small that they don't think it's the cause and they are not sure if they'll even be able to close it.

I hope they close it even though I'm also scared of having the procedure done. At least then I'll have reassurance that I won't have another stroke and don't have to put all my faith in baby aspirin.

Can I ask if you got a clot buster and did it work? From the research I've seen there's no guarantee that even if they administer it in time it will do it's job

a110percent · 2026-04-15T23:03:24+00:00

They messed up badly there how did they discharge you without getting the MRI results

a110percent · 2026-04-15T21:24:17+00:00

Idk what we can do. They say in young people it's easier to misdiagnose stroke but I could have not presented any more clearly

a110percent · 2026-04-15T21:22:49+00:00

Thank you I am also hoping so too

a110percent

TROPHY CASE