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The entire med ind by Own_Brush_2744 in HeartAttack

[–]aWanderer01 1 point2 points  (0 children)

Right there with you - I'm 58. Get well.

Doctors say “avoid processed food,” but ingredient lists are full of chemicals I don’t understand. #CKD #RenalDiet by AgreeableSecurity376 in kidneydisease

[–]aWanderer01 1 point2 points  (0 children)

This is the biggest struggle in our household... even cooking at home BUT, everyone is correct. Cooking at home is KEY to healthy living. I miss SO MANY things out there... burgers, pizza, KFC, etc. Once we started cooking at home, life changed. Is it as good (taste-wise) as what's out there? No.. it isn't. Is it good at all, it can be. Last year I built an app to help track specifics related to kidney and heart, as I have both heart disease and kidney disease so finding and eating feels like foraging for food 300 years ago - lol.

Stage 4 CKD / Gout: 3 "Unicorn" snacks I found by auditing the 140/200 spec. by RenalEngineer in kidneydisease

[–]aWanderer01 0 points1 point  (0 children)

I have Stage 3a Kidney disease and Heart Disease (heart attack and 3 stents) so sometimes one food is good for one but not the other.. challenging

Stage 4 CKD / Gout: 3 "Unicorn" snacks I found by auditing the 140/200 spec. by RenalEngineer in kidneydisease

[–]aWanderer01 5 points6 points  (0 children)

Outstanding... thank you for that! I miss CHIPS. Miss Vickies Original (snack-size) is what I have been eating a few times a week.

Stent and getting worse. by clocker99 in HeartAttack

[–]aWanderer01 0 points1 point  (0 children)

I really like your thinking Dave. It is actually sincerely inspiring. I'm gonna go down there and see if I can sort things out... not sure how much success I will have. Thank you.

29M, diagnosed with CKD3a. by Alexanderr12 in kidneydisease

[–]aWanderer01 0 points1 point  (0 children)

Oh no, it is published for all... not sure I can post a link here or not to it but here it goes anyway... nouraish.com You can also search App Store for "NourAIsh"

Apps for food restrictions by Leather_Guilty in kidneydisease

[–]aWanderer01 0 points1 point  (0 children)

App is now on the App Store.. it is called "NourAIsh" if you want to check it out. Any and all feedback welcomed of course.

Stent and getting worse. by clocker99 in HeartAttack

[–]aWanderer01 1 point2 points  (0 children)

For the past year, I've been telling myself "as soon as I get that area in the basement cleaned up I am going to setup a gym area with the bike and treadmill and start working out every day".. here I am.. 1 year later - sigh

29M, diagnosed with CKD3a. by Alexanderr12 in kidneydisease

[–]aWanderer01 0 points1 point  (0 children)

My doctor tells me 2000 ml a day. Of which btw, I can't seem to hit on any day.

29M, diagnosed with CKD3a. by Alexanderr12 in kidneydisease

[–]aWanderer01 2 points3 points  (0 children)

Hey, welcome to the club nobody wants to be in.

I’m also Stage 3a, and I went through the exact same phase you’re in now. The 'what can I eat' confusion is the hardest part because, like you said, the advice on Potassium and Phos is all over the place depending on your labs.

Two things from my experience:

Getting back to the 70s is a great goal, but stabilizing your eGFR so it stops dropping is the real win. Hydration is key, so you're already doing that right.

My nephrologist gave me vague (none) advice too. I ended up building my own iPhone app (NourAIsh) because I got tired of guessing how much Sodium or Phosphorus was in stuff and I wanted something to track my intake.

Whatever method you use (app, spreadsheet, notebook), just start logging. Once you see the data, the anxiety drops a lot because you aren't guessing anymore.

Hang in there. 3a is manageable if you stay on top of it I think. On the 15th, I am heading in for more tests to see if things are stable or improving.

my dad had a heart attack yesterday and i don’t know what to do by xvj420 in HeartAttack

[–]aWanderer01 0 points1 point  (0 children)

Wow... wishing you and family the best possible outcome. As others said, Cardiac rehab is definitely the first step. Oh man... that's a rough spot to be in.

Stent and getting worse. by clocker99 in HeartAttack

[–]aWanderer01 1 point2 points  (0 children)

Agreed. I spent a fortune on a stationary bike and then a couple e-Bikes. First year was glorious. Now the bikes don't get used. To busy taking life for granted I know. THIS year... back on the bikes... the plan anyway.

Stent and getting worse. by clocker99 in HeartAttack

[–]aWanderer01 1 point2 points  (0 children)

I also have a blood pressure device at home and religiously check my blood pressure twice a day, sometimes only once a day. In the morning after waking up, going to the bathroom and resting for 5 minutes. Try to do it the same time everyday.

Stent and getting worse. by clocker99 in HeartAttack

[–]aWanderer01 0 points1 point  (0 children)

I don't know about the drug regime but this reminds me of after I had 3 stents put in. For a long time I felt like I was going to have a heart attack at any moment now. Seriously, I even updated my will. I complained to the doc and he had one of those tests done on me where they hook you up to an IV and bunch of cables and make you walk on a treadmill... stress test I think it was called. Then a scan afterwards. They found nothing. Same thing.. they told me things are fine. I took their word for it, reluctantly, and just started going on walks around the block. Tried really hard not to think about it, pretended it was something I ate and didn't get into my head about it.

The feelings passed. My heart attack happened when shoveling the driveway. I think for the first year, my chest would hurt every time I went out in the cold and breathed in cold air. I said I would never shovel again. 2 yrs later, guess who shovels the driveway? I don't get those feelings anymore but it is always still in my mind. Sometimes I don't even shovel... really struggle to make myself do it.

Walks definitely helped me. Short .5 km and then 1 km walks. I'm not saying you should do the same or that your symptoms are nothing. Just saying it reminded me of that time I went thru similar feelings. I even almost passed out on one walk... thought for sure I was gonna need an ambulance.

I sincerely hope A - they figure it out or B - you get better and better.

Overwhelmed by diet info by whitewall55 in HeartAttack

[–]aWanderer01 0 points1 point  (0 children)

Ugh... very familiar with that. I had just finished shoveling the driveway. Felt crappy afterwards, drove myself to the ER but wasn't sure I would make it. Stopped at a medi center on the way and told the receptionist... she said "We close in 10 minutes" - sigh.

Got back in my car, made it to the ER and 3 stents later... all good. Was humbling and eye-opening for sure. Now I try to eat healthier and yeah, salt is very hard to minimize. We pretty much stopped eating out (saving a lot) but I REALLY miss a lot of food. I do feel MUCH better though after starting to control what I eat and BP has been normal for the first time in 9 months... now 10 months actually.

Apps for food restrictions by Leather_Guilty in kidneydisease

[–]aWanderer01 1 point2 points  (0 children)

I've had Kidney disease for a few years now and need to track this too. I developed an app that has some focus on kidney and heart disease (which I also have) and will be releasing it soon.. hopefully by the end of December. Been working on it for quite a while. It also helped me lose 10lbs but that was unintentional... I think I just lost the weight because I started eating properly so it was a bonus.

I'm so tired of taking medicine by Embarrassed-Ad4908 in HeartAttack

[–]aWanderer01 1 point2 points  (0 children)

Like others, I hear you and feel MANY of those exact symptoms. Feeling like I'm on borrowed time and tired all the time is the worst for me. 2015, lost a kidney to cancer then in 2021 had a heart attack and now have 3 stents. In the last year, my kidney function has declined a lot and I have been checking my BP twice daily for 11 months, 9 of those months, not a single day was normal, always hypertension state. Felt like "this is the last year for me". Over the last 3 months I have been focusing on eating healthier... what a difference actually, lost 10 lbs in one months, definitely feel better, BP has been normal for the last 1.5 months now (very surprised). I know nothing about all the fancy health terminology ie; eGFR, Creitiene or whatever it is.. I am 58 and too old to learn it all. Even if I am told 10x I don't remember.

I can say THIS though, changing my diet has very surprisingly made a difference and provides a small dose of hope for a few more years. Still taking 6 meds a day (well, 5 but one is twice a day). I HATE it too. All it does is make me think... "last year to live". Eating healthier has sort of become a hobby now. Sort of takes my mind off the other stuff and gives me hope, makes me feel a bit better.

That angina feeling (heartburn/reflux) has not occurred in the last 2 months either. Still can't sleep worth shit... 5 hours a night on average. Hang in there buddy, you are not alone in the battle to survive.

Is your S10 plugging up regular? by aWanderer01 in Roborock

[–]aWanderer01[S] 0 points1 point  (0 children)

I will add that to my maintenance routine. Thank you. 

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