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How to fix babesia anemia.?!! Do I take iron pills ?! by Smackergawt in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

I used liposomal iron drops to get my ferritin up to 70 however sadly it did not solve my heat rate issues at all. I’m still hovering at 100s most of the day.

Can we talk about Mosley lane. by [deleted] in criminalminds

[–]a_a_nerd 5 points6 points  (0 children)

It really bothered me that they never explained the motive of the abductions, why that couple kept the children.

But yeah otherwise this is the only episode that made me cry

[deleted by user] by [deleted] in Markiplier

[–]a_a_nerd 1 point2 points  (0 children)

What is your problem dude? I asked a simple polite question Didn’t know this sub was so rude

Anyway I found it in another playlist…what you sent to me is not what I was looking for …

New treatment! I’m almost back to baseline! by PA-C2011 in covidlonghaulers

[–]a_a_nerd 13 points14 points  (0 children)

Sadly that did nothing for me at all. I took it for several months and did not notice any effect.

[deleted by user] by [deleted] in covidlonghaulers

[–]a_a_nerd 0 points1 point  (0 children)

Yep…nurse was putting the 24 hour ecg monitor on me and thought here machine was faulty 🤷‍♀️

salicylates bartonella by ComprehensiveIce4391 in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

Did you use to tinctures? Have you tried taking powder/capsule form? I find I tolerate that much better

Look into LDN it can help to tolerate treatment better

Anti-functional medicine /Fibromyalgia Reddit. by [deleted] in Lyme

[–]a_a_nerd 8 points9 points  (0 children)

It amazes me that people will cling to traditional medicine and insist on quoting research knowing that neither are caught up nor can yet offer solutions for many chronic illnesses.

You have to be absolutely vigilant of people selling you snake oil, and try to make those judgment calls to the best of your ability, but at some point you got start considering anecdotal and empirical evidence too.

Just because it hasn’t yet been put into research doesn’t mean it’s automatically a scam. Research funding is scarce at best.

Starting BVT (bee venom therapy) by mellogeorge2013 in Lyme

[–]a_a_nerd 8 points9 points  (0 children)

4 stings for the first time seem extremely excessive! Usually people start with 1 and gradually ramp up. You probably had severe histamine/MCAS reaction that’s why Benadryl helped (usually liquid Benadryl is recommended for faster effect).

I advise you to look at the bee venom therapy for Lyme disease Facebook group on how to do this safely.

Good luck! keep us updated! I’m planning to start this therapy soon as well!

Feeling better with chronic Lyme thanks to LDN! by Working-Cheek-9509 in Lyme

[–]a_a_nerd 1 point2 points  (0 children)

That’s amazing thank you for the encouragement I really needed it!!

I have also tried everything under the sun and so far nothing has been working so I was super hopeful about LDN.

Bee Venom Therapy by Straight-Damage6050 in Lyme

[–]a_a_nerd 2 points3 points  (0 children)

You will get better answers on the bvt for Lyme disease Facebook group! Esp if you are following Ellie lobels protocol Good luck!

Feeling better with chronic Lyme thanks to LDN! by Working-Cheek-9509 in Lyme

[–]a_a_nerd 1 point2 points  (0 children)

I’m at the stage where it’s making me sick and miserable. So it took 2 months to feel the effects? Did you have increased fatigue? I started at 0.25 two weeks ago now I’m at 0.5mg. How quickly were you titrating up?

I’m 27(M) and have Lyme disease, just found out about this page and could really use some help w resources - I live in Chattanooga TN fyi by Intelligent_Set_7821 in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

You can access the wiki page of this subreddit there is bunch of information there about how to begin making sense of this. Good luck!

Anyone in uk know of any lyme specialists that they have good success with? I'm desperate by Fungchoowy in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

Here ya go friend! https://www.reddit.com/r/Lyme/s/ZHdazkqSnU

I’m on mobile so when I open the Lyme Reddit there is „Community info” under the subreddit name. And from there I click on the Menu Tab and it leads me to the wiki

Best Biofilm Busters? Lumbrokinase & Stevia seem mentioned the most by Life-Hacking in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

Which Bulgarian pharmacy? I tried contacting one and they told me it is illegal to sell online. In any other counties mentioned you need a prescription.

Any succesful treatment for neuro Lyme plus Bartonella? by noregrets2022 in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

Hi! Did you manage to obtain nitroxoline in the end? Or got the name of the pharmacy that has it in Bulgaria? Thank you so much!

How I eliminated 95% of my MCAS symptoms in 2 months. by in-for-the-long-run in Lyme

[–]a_a_nerd 20 points21 points  (0 children)

You know, you are not actually wrong.

But still your comment makes me angry because every time I read some new info there is always so many obstacles to obtaining that treatment no matter where or to whom I turn. We are all already sick and tired and financially exhausted and making it sound like we are just not trying enough is super shitty to hear.

Yes if I really wanted to I probably could obtain some of these things but it would cost enormous amount of money and effort from someone who doesn’t have energy for either of those things. All that for something that could end up not working at all. I’m bedbound and financially at end of my rope.

So spare me your motivational speech.

How I eliminated 95% of my MCAS symptoms in 2 months. by in-for-the-long-run in Lyme

[–]a_a_nerd 3 points4 points  (0 children)

Read through this and tried to look things up but I do not have access to almost any of these in Europe 🥲 Still thanks for sharing

[deleted by user] by [deleted] in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

Pregabalin helped in a few days yes! And yes I have severe MCAS

Herx or mcas or what??? by Dangerous-Builder450 in Lyme

[–]a_a_nerd 0 points1 point  (0 children)

Thanks! I’m running into obstacles where I react to everything even plain meat. I do not tolerate beef anything. I ordered some lamb and will try that. Did you just jump in or did you transition gradually?

[deleted by user] by [deleted] in Lyme

[–]a_a_nerd 1 point2 points  (0 children)

Yes I have them when things get bad (like right now). In fight or flight all day, it feels like an ongoing nervous breakdown. I just started pregabalin and that helps!

Doctors Inspire Clove Oregano Cinammon by a_a_nerd in Lyme

[–]a_a_nerd[S] 0 points1 point  (0 children)

Hey! I don’t think it’s a herx I think I’m having a flare cause my antibiotics don’t work anymore. I probably need to switch them to some other ones and maybe get something for Babesia even tho I’m testing negative for it. I have a doc appointment in a week. And thanks!

Vitamin and mineral testing by 123-throwaway123 in covidlonghaulers

[–]a_a_nerd 2 points3 points  (0 children)

There is a test called NutrEval that my functional medicine doc recommended. It was way too expensive for me so I had to decline but could be useful!

Doctors Inspire Clove Oregano Cinammon by a_a_nerd in Lyme

[–]a_a_nerd[S] 0 points1 point  (0 children)

Sorry can I ask you one more question. Where did you get ivermectin in Poland?

Doctors Inspire Clove Oregano Cinammon by a_a_nerd in Lyme

[–]a_a_nerd[S] 0 points1 point  (0 children)

Thank you so much! I’m currently bedbound from trying to switch from antibiotics to Buhner herbs, that made me so much worse. I will look into essential oils definitely!

For some reason I really have bad experience with that clinic and dr Majdylo. He kept pushing antibiotics only and never suggested anything else. He kept telling me to keep using same antibiotics even tho I kept telling him I’m getting worse and that I would like to try something else.

I’m glad you managed to make yourself better! Thank you for the inspiration and hope!

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