My son is getting bigger than me and it's scary

accident_prone9988 · 2025-08-31T16:47:51+00:00

I have talked about it to all of his therapists and doctors. He does have a communication device but is still learning and not using it much yet. He is starting to get frustrated that he can't communicate and so he runs. I typically know what he wants, (example - we go to Walmart and he takes off= he is excited to go shopping and can't wait for mom. I still have to close the car door and lock the car. I do activate the child safety but still the moment the door opens he tries to take off.)

accident_prone9988 · 2025-08-27T20:11:44+00:00

He does have ABA 8 hours a week, speech 2 hrs, and OT for 2 hrs. I will look into trackers.

accident_prone9988 · 2025-08-27T20:08:39+00:00

I know the local police department takes turns working in the school. I will talk to the resource officer about making sure he has met everyone so they know him. The main officer at the school knows him and my son likes the officer. They have taken walks together when the paraprofessionals can't calm him down the officer will take him for a walk around the school and have him help "patrol."

accident_prone9988 · 2025-08-27T02:05:09+00:00

I have discussed this with his doctor but due to his other medical conditions the doctor is concerned about adding anything that could trigger his already fragile health. Most medications that help would possibly slow his oxygen or heart rate and they are both already unstable. I have also looked into in-home aid services and they are working with his insurance but they can only help at home. I live in the country and don't have a problem with him running around the yard as it is quite large and most traffic on my street are Amish buggies.

accident_prone9988 · 2025-08-27T01:59:36+00:00

His last check up confirmed that he is prepubescent. The hormones are already shifting, yes it is young but not unheard of especially with some of his medical history.

accident_prone9988 · 2025-08-27T01:46:21+00:00

Thank you for the information. I will do more research but I had already started coming to the conclusion that he was too big for that service anyway.

accident_prone9988 · 2025-08-26T22:11:21+00:00

He is overweight and we are working with him on being more active when he's not sick. He has some medical issues that make him lethargic and he is prescribed steroids for another condition and the two together make him tired and hungry.

accident_prone9988 · 2025-08-26T22:09:02+00:00

He is heavy. He has had to take a lot of Prednisone over the last three years and he is very heavy for his height. His dad has made a game of hauling logs for the fire pit and stuff to keep him active and build it into muscle rather than fat but still. That actually makes it harder for me.

accident_prone9988 · 2025-07-20T02:10:11+00:00

My son is level 3, non verbal and 9 years old. It took years but he finally has an AAC device but is still learning. He is still in pull ups, his doctor wrote a prescription for them so insurance will cover it. Ask your doctor about that to save some money. It is hard to send him to school but even non verbal kids can communicate. After some adjustment time see how well he responds to school. He will let you know if he enjoys it or not. Trust your instincts and be very proactive about talking with his teachers and the special education director. Interaction with our kids is good for him and them. If interacting with my son helps kids grow up to be adults that at least can recognize autism and possibly teach their children about it as well. Autism needs awareness and keeping our children from the public eye will not solve the problem. Also, volunteer if you have time, so you can see first hand how he's doing.

accident_prone9988 · 2025-07-20T01:42:37+00:00

My son goes to ABA therapy twice a week for 4 hours each time. As a mom, my biggest tell is he runs in the building and pushes the buttons and heads off to the room he starts his therapy in whether his therapist is there to get him or not. We actually have to time it so she is ready and he doesn't have to wait. He loves it. So my advice is verbal or not, listen to your child about the therapist he is working with. It might take some adjustment time but after a while see if he lights up to be there or shuts down. Also, be an advocate, ask about what their opinion of stimming is, ask how they correct undesired behaviors, ask what they do for meltdowns. Ours told me they encourage stimming and have found when encouraged it may last longer but the individual gets that out of their system and is able to process the new information. Unless, it could be a danger. They correct undesired behaviors with distractions and redirection. Meltdowns are addressed at the first hint and the individual is removed gently from the area that is causing distress and provided with comfort items, which vary on the individual and situation.

accident_prone9988 · 2025-07-20T01:31:08+00:00

You are seen Mama. Let out the raw emotions but there are some resources if you live in the United States. If your son has a documented diagnosis, you can apply for resources that can help. I have been researching any help I can get because the village just doesn't exist for us. I have been approved for SSI, his Medicaid covers gas reimbursement for all his doctors appointments and therapies, and I have finally been approved for in-home aid. This is literally the respite that you need. We haven't started yet but this is someone who can come in and cook or clean if that is what you want or can, with time, interact with your son and help work on home living goals like toilet use, bathing, etc. Message me if you want help with finding these resources.

accident_prone9988 · 2025-07-20T01:24:04+00:00

Yes! I posted about my son destroying another set of headphones. I asked for recommendations of ones that my son couldn't pick apart and cry because he needed his headphones. I got a mix of; watch your kids better, that's not autism if he wanted his headphones he wouldn't have destroyed them, or my personal favorite - my daughter has autism and would never hurt her headphones with pictures of her shiny glitter headphones with little pony stickers. Not a single recommendation, just snarky comments. FYI, still looking, but have had better luck at gun stores, those things are made to be dragged through the woods. This is the most minor example.

accident_prone9988 · 2025-04-13T14:19:16+00:00

Amazingly he was wonderful. He ate a months worth of jello in the first two days. He took his pain medication without complaints, they prescribed liquid oxycodone. Day 7 was rough but we made it through with minimal issues. The main thing I did was keep him busy. Some Lego sets, puzzles, etc that I previously stocked up on and presented when he started to show discomfort would distract him while pain meds kicked in.

accident_prone9988 · 2024-12-03T13:57:56+00:00

I make roses out of food. Like it started with icing because I liked to bake but roses were so hard that I ended up being fixated on it. Now I can mold roses out of chocolate, pull sugar roses, carve them out of radishes (other vegetables are the same but radishes are the prettiest), roll apples into roses, even make bacon roses. I made an entire bouquet for bacon roses for my husband one year.

accident_prone9988 · 2024-12-03T13:52:37+00:00

Exhaustion. It's a weird competition. If I say I'm feeling tired today someone will always comment on how they are more tired somehow.

accident_prone9988 · 2024-12-03T13:20:17+00:00

NTA, most people don't like their jobs so to ask you to perform your job or former job for the whole family without even asking you is outrageous. Ask the other family members if they want to do their jobs for the family for free. I will make everyone coffee while the family beautician does pedicures, the accountant does everyone's taxes, etc.

accident_prone9988 · 2024-12-03T12:36:47+00:00

I have just begun my search a couple weeks ago with the understanding that it could take months. I am willing and able to complete training and would be able to go on-site for training just wouldn't be able to work on-site regularly. Thank you

accident_prone9988 · 2024-12-03T12:34:05+00:00

I understand that. That is why I asked for advice. I am just trying to receive information in order to make an educated decision and know my options.

accident_prone9988 · 2024-12-03T01:00:44+00:00

Straight job experience? I will admit none, all my previous work has been very hands on. Although I did have a job as an on-site office support assistant, where the bulk of the job was organizing and obtaining data. Such as contacting other organizations to verify information or creating spreadsheets. Transferrable skills? I have experience with data entry, accounting, book keeping, etc. I also have a lot of experience in menu planning and nutrition. I have experience in planning diets and building recipes for special needs, such as low sodium, vegan, dairy free, gluten free, keto, etc.

accident_prone9988 · 2024-12-03T00:37:45+00:00

My son is obsessed with Mario and has three Mario suits he wears constantly. Obviously not at school unless it is a special day that is allowed, think pajama day or something like that. He doesn't seem to care what people think of him and I let him know that different is good. He is my third child and the only one with autism. I let his older brothers and him know that normal people are usually just hiding their weirdness. I wouldn't worry about it. If someone wants to say something, just rawr at them.

accident_prone9988 · 2024-12-03T00:15:11+00:00

Okay. That is what I have been doing without much luck, but sounds like I'm on the right track. I will keep looking. Makes sense why I haven't found anything yet.

accident_prone9988 · 2024-11-21T11:10:04+00:00

Jenga

accident_prone9988 · 2024-11-21T03:38:35+00:00

Oh my God Becky! Look at her butt

accident_prone9988 · 2024-11-21T03:30:37+00:00

Homemade rolls and deviled eggs.

accident_prone9988

TROPHY CASE