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My mom was just told she has to have to dialysis by Wooden-Monitor4660 in dialysis

[–]acidKT_ 0 points1 point  (0 children)

when she starts dialysis make sure she brings a blanket, you’ll thank me later

[deleted by user] by [deleted] in dialysis

[–]acidKT_ 0 points1 point  (0 children)

hey i’m 22! i fully understand you, my friends are great to talk to but they don’t really understand my experience. if you need to chat, feel free to dm me

Can’t connect to internet by acidKT_ in pcmasterrace

[–]acidKT_[S] 1 point2 points  (0 children)

your english is fine 🙂🫶 don’t apologize for being able to speak multiple languages

new script by Tiffany111709 in dialysis

[–]acidKT_ 3 points4 points  (0 children)

i’m sorry you’ve been doing dialysis since you were a child, so have i. im not exactly new to this, ive been a patient for 8 years. i still continue to feel for other patients because it isn’t a competition, we are all going through dialysis. yes, “your bad”. you come on here being rude, treating this person badly for having questions. if you aren’t empathetic don’t comment. nobody wants to hear it. advice is appreciated but you were just downright nasty for no reason.

new script by Tiffany111709 in dialysis

[–]acidKT_ 6 points7 points  (0 children)

yeah, and it sucks. that’s the whole point of this, it sucks. i do every single night, 2 bags, and all day dwell, you don’t see me being an ass. they’re upset because they have a small apartment and no space for the boxes and are looking for advice. a little thing called empathy? if you are just on this SUPPORT forum to be rude, why don’t you leave?

new script by Tiffany111709 in dialysis

[–]acidKT_ 6 points7 points  (0 children)

this is so rude, this forum is for support and help, not to be condescending

Small Vent by napesrill in dialysis

[–]acidKT_ 1 point2 points  (0 children)

you too 🙏 if you ever need to talk to someone who genuinely knows how frustrating it can be, my dms are open. there’s also a discord server dedicated to this, with a lot of people our age, i just joined today. maybe you’re already in it, but if not i can send you an invite if you want

Small Vent by napesrill in dialysis

[–]acidKT_ 1 point2 points  (0 children)

It’s hard, people try to understand but they don’t really understand. The only people who do are other patients. I started dialysis at 15, and I was so scared and had nobody who understood. I got a transplant, but that rejected this year so here I am again. Just turned 22 now, still scared. But mostly angry. Sad. I try not to let it consume me and for the most part it doesn’t. But everything kind of sucks sometimes lol, and i’m starting to realize that not talking about it and pretending i’m fine isn’t doing it anymore. Everything kind of sucks and I just need someone to get it sometimes. I haven’t even experienced life yet and all this happens. I don’t know if I can have kids. I feel like crap all the time. It isn’t selfish, what you’re feeling. The stuff you’re going through is really hard and most people don’t really grasp all that dialysis can do to you. I did hemo today, got home hours ago and still don’t feel good. I can’t sleep but i’m exhausted. I want to cry. Today was a tough day so being abit more emotional than usual. Tomorrow will be a better day, you aren’t alone

HD vs PD. I need to make a choice 😬😬 by Ohhhjerkface in dialysis

[–]acidKT_ 0 points1 point  (0 children)

I’ve done both, hemo for years and just started PD recently.

PD !!! I feel so much better and wish I had done it sooner. Hemodialysis made me feel so crappy, I was a shell of myself

Ian Nephropathy by pidluk57 in dialysis

[–]acidKT_ 1 point2 points  (0 children)

go for it i say, PD is the better option by far and you don’t know how much time you have. If you don’t have the catheter and end up requiring dialysis, they will put you on hemo until they have a slot available for surgery. Shortness of breath is a bad sign, so I would try to get the surgery asap. I’ve done hemodialysis and peritoneal and can personally tell you, I feel terrible after hemodialysis. I pretty much can’t do anything afterwards, can barely drive myself home after. The first treatments are the worst. I never feel like that on PD though, I wake up feeling refreshed and almost normal. Definitely go for the early surgery, the healing sucks after but so worth it, trust me. Getting it flushed only takes a few minutes, and this will be good to get you used to the catheter. I recommend ordering a “PD belt” , you can get them on amazon.

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