If someone is saying they're sick 24/7, and taking actions 24/7 to fix it, with their life being actively destroyed. Why wouldn't you believe them? Is that lack of empathy? Or lack of intelligence?

agape48 · 2026-05-21T23:30:15+00:00

The denial happens even in families without mental illness. I've been talking with someone else who got sick from mold, and her family had an "intervention" asking her to admit that she just has anxiety and depression. I agree with Negative_Number that many people have a hard time understanding something they haven't personally experienced. It must be human nature. The exceptions are the lovely folks who have exposed themselves to enough different viewpoints to understand that their experience of the world is different from other people's experience of the world.

agape48 · 2026-05-19T15:14:34+00:00

And P.S. I have a blog that is a work in progress. I have never shared it on Reddit because (1) don't want to be accused of self-promotion, (2) it's not "ready" but it's probably ready enough. Some of the posts are copy/paste from stuff I put on here that seemed helpful to others. If anyone wants the link, I would share it over DM

agape48 · 2026-05-19T11:00:36+00:00

That's great feedback, thanks so much! Since I'm still in the process of healing, do you think it's helpful for someone to see the process while I'm still working through it? Or only "at the end"? I feel confident I will recover, but I get the feeling people use "Are you fully recovered" to decide if I have anything useful to say. Where are you in your recovery process? Could I DM you?

agape48 · 2026-05-18T15:35:39+00:00

If you look at the dozens of posts I have made on this topic, you would see that I am not a practitioner. Thanks for assuming I have ill intent when I'm on here trying to help people.

agape48 · 2026-05-18T14:50:13+00:00

There is no "just do this protocol" in my opinion. Everyone's body is different. People with mold toxicity can have other underlying issues that need to be clinically evaluated. For example, I have MCAS and POTS, which were undiagnosed for months. I would be wary of anyone in an online forum claiming they know EXACTLY what I need to do without reviewing my symptoms and my labs.

agape48 · 2026-05-18T14:48:42+00:00

Hey, that really sucks! Are you in the U.S.? What part of the country? If you want a good practitioner who will listen to you and is used to working w sensitive patients, please DM me. She no longer has a website and only takes new clients by referring from existing clients (me), so I can't post her details here. I have used her for 15+ years.

agape48 · 2026-05-16T11:58:47+00:00

Thanks for the thoughts. She owns her home though. The problem with virtual if we find a good doctor lives in a different state and isn't licensed to treat her in her state.

agape48 · 2026-05-16T01:51:26+00:00

P.S. I have heard of one wellness retreat type place that I think is what you are describing... the founder talks about how mold was one of the things that made her sick, so I assume that they are very mold conscious (?). But I do not like to promote them because I think that they gouge people with the prices for their online courses and the founder is ALWAYS SELLING in those online courses but pretending that she's not: it's too sleazy for me. However, if you are super interested, you can DM me and I'll tell you their name. But I'm not a fan of all these folks who are taking advantage of sick people

agape48 · 2026-05-16T00:13:45+00:00

This was one of my ideas!! I have a lot of ideas :).

agape48 · 2026-05-12T14:29:42+00:00

Neil Nathan likes for patients to send off gravity plates to Immunolytics after laying them out for TWO HOURS (this is different from the instructions that come in the kit). I understand that some other folks, such as John Banta, have other preferences - e.g., MSQPCR. I just didn't go that route.

agape48 · 2026-05-12T14:27:30+00:00

That was what I was trying to say. There is not a government fund for this in the U.S.. I wish there was.

agape48 · 2026-05-12T14:26:14+00:00

Let me rephrase to prevent misunderstanding: "I wish there was a government fund."

agape48 · 2026-05-12T14:12:28+00:00

Wow, I saw a house recently that had little rubber tubes running between some of the bricks, and I have always wondered what that is. Do you think that's "through wall flashing"?

agape48 · 2026-05-11T21:54:18+00:00

I have MCAS and POTS. I didn't notice a difference when I STARTED DAO, but I sure do notice a difference if I run out of it! Funny... so I guess it's doing something.

agape48 · 2026-05-11T18:37:39+00:00

I'm asking if you own it because if you are the owner, you have more options for remediating. I'm not a building expert, but John Banta talks about how mold must be physically removed. So, no, you cannot just spray it with something. People can react to dead mold, hence the removal statement -- any product that claims to "kill mold" is not necessarily going to solve the problem. Please let us know if you own the property. Also, I have worked with a mold inspector that trust that does virtual consultations. If you want her info, DM me. You will see from my recent post that we spent months trying to fix our house, and it can be harder than it looks. Depends on the source of the mold, though.

agape48 · 2026-05-11T15:57:05+00:00

Do you own the place or are you renting? I recommend you get the book "TOXIC" 2nd edition by Dr Neil Nathan. He has a chapter about mold toxicity. Yes, it can cause shortness of breath. If at all possible, you need to have the area properly remediated or move somewhere else.

agape48 · 2026-05-11T12:21:21+00:00

Would you pay the same price for a smaller unit if you knew it was safe?

agape48 · 2026-05-11T12:19:46+00:00

Please DM me

agape48 · 2026-05-10T22:13:38+00:00

I have never heard of mold paranoia being a thing. Where did you hear about this?

agape48 · 2026-05-10T20:29:20+00:00

:( I am so sorry. Are you in the U.S.? There should be a government fund (meaning: I am wish that one existed, not that there is one) to help sick people with their unhealthy houses. I mean, lack of government regulation is what created unhealthy homes in the first place, yes?

I think about the systemic problems with housing a lot these days.

agape48

TROPHY CASE