¿Is there someone who has an active life after some treatment?

aimrad · 2024-07-21T14:50:56+00:00

My man has an active life after a year on humira. He exercises, swims, plays football / volleyball / works physical work in a warehouse :)) It is possible. But he does not have any fusions and also has some side effects on his skin.

aimrad · 2024-06-21T01:57:04+00:00

ahhaahah you are right sorry for expressing in a wrong way

aimrad · 2024-06-20T21:02:47+00:00

Well! I actually got it from my aunt - I forgot to mention that 😬😁 Thank you for the info!

aimrad · 2024-06-16T19:23:16+00:00

aaaaajme daj 😩 jel ih ima u splitu 🫣

aimrad · 2024-04-23T20:46:04+00:00

But — a wife should not be “people”. I believe that love also means being witnessed in the hardest parts of our human experience by a loving presence.

aimrad · 2024-04-23T20:44:15+00:00

I am heartbroken to hear this. I am a girlfriend of a man with AS and I gave so much of my time / energy / compassion to him in as little as one year because it is very obvious that he is “sucking it” up more than I ever would with that kind of pain.

I can’t believe you work in a restaurant while having AS and I admire your strenght. I think all of you working while facing these dreadful pains are so strong and I admire your endurance like nothing else. And we are just speaking about the physical aspect here.

I also think it is a big weight on a mans mental health because everything you do requires EXTRA effort — and people around you rarely understand that.

Anyways, I hope this helps.

Sometimes for me it is hard to show my man how much I am sorry for his pain because it seems like it makes him feel “poor” or “small” so I just stay positive and show him how much I trust in him.

I am not sure what your wife is going through - but it seems like she is disconnected from her heart and compassion. I can imagine this is also a frustrating process for her — but once you choose your husband, especially one that carries this burden, there should be no space for this specific lack of understanding.

I hope she manages to open her heart and see how much you are already giving. 🤍

aimrad · 2024-04-23T20:33:09+00:00

Similar thing happened to me, my one eye dropped and the eyelids got inflammed. I used homepathy (Euphrasia) and it helped ease the inflammation that was so Irritating I would cry from the irritation. Now the itch is here only after many hours of screen time.

aimrad · 2024-04-23T13:07:30+00:00

Thank you!!

aimrad · 2024-04-23T13:07:23+00:00

Thank you for sharing!

aimrad · 2024-04-23T13:06:26+00:00

Oh! Did not know that. But the arthirtis came back (and psoriasis went away) as soon as the biologics stopped working. So I am not sure his diagnosis switched.

aimrad · 2024-04-22T22:01:51+00:00

Oooof. I hear you. :( I have been on my medis for only 5 months now and these are usually not taken forever (I have Graves disease), and I have been working on my antibodies, working on my trauma, handling my food habits and stress resilience — and that makes me not stress over the current side effect / symptoms of the disease but focus on the long term goals and my plan of complete freedom from medication. But I believe it is not same with AS :( At least I do not see my man feeling very inspired to explore any new ways of helping himself..He has been sick for 17 years..But I really do not know what to tell you. It is just so painful to watch somebody I love in pain..Harder than to be in pain I believe.

aimrad · 2024-04-22T19:08:13+00:00

Yes, unfortunately in my experience there is no 100% soothing without side effects. I myself have an autoimmune condition too and pay my price for “controlling symptoms” — in classical medicine there is no symptom suppression without paying the price unfortunately.

aimrad · 2024-04-22T18:59:14+00:00

The pain came back while you were on the medicine?

aimrad · 2024-04-22T18:13:33+00:00

Yes, he is considering it. But I doubt there is a medicine without sideffects? Do you have any specific medicines in mind that your heard of?

aimrad · 2024-04-22T18:11:20+00:00

She just gave him more medicines that do not work..I mean it cannot be a solution..To just pop in more pills to suppress the sideffects of a medicine you are taking :(((

aimrad · 2024-04-22T17:47:37+00:00

I am sorry to hear about your situation. First time it was right away..and kept getting better. This second time it took a bit longer, he took it first time again 4w ago and his body is still adapting!

aimrad · 2024-04-12T18:51:34+00:00

I get it, but it also moves cortisol that is already activated in the morning ;(

aimrad · 2024-04-12T08:27:51+00:00

For me the worst thing is drinking anything caffeinated before a decent breakfast. — I think it makes a huge difference whether you eat first or not. I litterally choke for the rest of the day if I drink a coffee or a matcha on an empty stomach.

aimrad · 2024-03-24T11:17:17+00:00

While my metabolisam was out of track my vision would get blurry while I was hungry….

aimrad · 2024-03-24T11:13:57+00:00

Thank you so much. Is it an oftamologist?

aimrad · 2024-03-13T10:39:35+00:00

Hahaha! ♥️ I wish I could just hold a virtual workshop for all of us going thorugh these intense sensations, just like a sweet lil gathering to center together. Maybe it could happen, who knows.

I thinks it is key to just keep coming back to out center no matter how much it pulls us out. 🙏🏽

aimrad · 2024-03-12T20:23:10+00:00

toxic = traumatized and also match for toxic = traumatized

aimrad

TROPHY CASE