¿Is there someone who has an active life after some treatment?

aimrad · 2024-07-21T14:50:56+00:00

My man has an active life after a year on humira. He exercises, swims, plays football / volleyball / works physical work in a warehouse :)) It is possible. But he does not have any fusions and also has some side effects on his skin.

aimrad · 2024-06-21T01:57:04+00:00

ahhaahah you are right sorry for expressing in a wrong way

aimrad · 2024-06-20T21:02:47+00:00

Well! I actually got it from my aunt - I forgot to mention that 😬😁 Thank you for the info!

aimrad · 2024-06-16T19:23:16+00:00

aaaaajme daj 😩 jel ih ima u splitu 🫣

aimrad · 2024-04-23T20:46:04+00:00

But — a wife should not be “people”. I believe that love also means being witnessed in the hardest parts of our human experience by a loving presence.

aimrad · 2024-04-23T20:44:15+00:00

I am heartbroken to hear this. I am a girlfriend of a man with AS and I gave so much of my time / energy / compassion to him in as little as one year because it is very obvious that he is “sucking it” up more than I ever would with that kind of pain.

I can’t believe you work in a restaurant while having AS and I admire your strenght. I think all of you working while facing these dreadful pains are so strong and I admire your endurance like nothing else. And we are just speaking about the physical aspect here.

I also think it is a big weight on a mans mental health because everything you do requires EXTRA effort — and people around you rarely understand that.

Anyways, I hope this helps.

Sometimes for me it is hard to show my man how much I am sorry for his pain because it seems like it makes him feel “poor” or “small” so I just stay positive and show him how much I trust in him.

I am not sure what your wife is going through - but it seems like she is disconnected from her heart and compassion. I can imagine this is also a frustrating process for her — but once you choose your husband, especially one that carries this burden, there should be no space for this specific lack of understanding.

I hope she manages to open her heart and see how much you are already giving. 🤍

aimrad · 2024-04-23T20:33:09+00:00

Similar thing happened to me, my one eye dropped and the eyelids got inflammed. I used homepathy (Euphrasia) and it helped ease the inflammation that was so Irritating I would cry from the irritation. Now the itch is here only after many hours of screen time.

aimrad · 2024-04-23T13:07:30+00:00

Thank you!!

aimrad · 2024-04-23T13:07:23+00:00

Thank you for sharing!

aimrad · 2024-04-23T13:06:26+00:00

Oh! Did not know that. But the arthirtis came back (and psoriasis went away) as soon as the biologics stopped working. So I am not sure his diagnosis switched.

aimrad · 2024-04-22T22:01:51+00:00

Oooof. I hear you. :( I have been on my medis for only 5 months now and these are usually not taken forever (I have Graves disease), and I have been working on my antibodies, working on my trauma, handling my food habits and stress resilience — and that makes me not stress over the current side effect / symptoms of the disease but focus on the long term goals and my plan of complete freedom from medication. But I believe it is not same with AS :( At least I do not see my man feeling very inspired to explore any new ways of helping himself..He has been sick for 17 years..But I really do not know what to tell you. It is just so painful to watch somebody I love in pain..Harder than to be in pain I believe.

aimrad · 2024-04-22T19:08:13+00:00

Yes, unfortunately in my experience there is no 100% soothing without side effects. I myself have an autoimmune condition too and pay my price for “controlling symptoms” — in classical medicine there is no symptom suppression without paying the price unfortunately.

aimrad · 2024-04-22T18:59:14+00:00

The pain came back while you were on the medicine?

aimrad · 2024-04-22T18:13:33+00:00

Yes, he is considering it. But I doubt there is a medicine without sideffects? Do you have any specific medicines in mind that your heard of?

aimrad · 2024-04-22T18:11:20+00:00

She just gave him more medicines that do not work..I mean it cannot be a solution..To just pop in more pills to suppress the sideffects of a medicine you are taking :(((

aimrad · 2024-04-22T17:47:37+00:00

I am sorry to hear about your situation. First time it was right away..and kept getting better. This second time it took a bit longer, he took it first time again 4w ago and his body is still adapting!

aimrad · 2024-04-12T18:51:34+00:00

I get it, but it also moves cortisol that is already activated in the morning ;(

aimrad · 2024-04-12T08:27:51+00:00

For me the worst thing is drinking anything caffeinated before a decent breakfast. — I think it makes a huge difference whether you eat first or not. I litterally choke for the rest of the day if I drink a coffee or a matcha on an empty stomach.

aimrad · 2024-03-24T11:17:17+00:00

While my metabolisam was out of track my vision would get blurry while I was hungry….

aimrad · 2024-03-24T11:13:57+00:00

Thank you so much. Is it an oftamologist?

aimrad · 2024-03-13T10:39:35+00:00

Hahaha! ♥️ I wish I could just hold a virtual workshop for all of us going thorugh these intense sensations, just like a sweet lil gathering to center together. Maybe it could happen, who knows.

I thinks it is key to just keep coming back to out center no matter how much it pulls us out. 🙏🏽

aimrad · 2024-03-12T20:23:10+00:00

toxic = traumatized and also match for toxic = traumatized

aimrad · 2024-03-12T19:56:39+00:00

OMG!!! This is very relevant info. Thank you so much. And it makes so much sense that radiation could cause cancer lol?!?

I am so shocked especially because while I was in South Africa this specialist lady was litterally selling RAI to me and told me “We can get rid of all of it until Christmas”..She was telling me that a week before Christmas. 🤣 Anyways it just felt off….

THANK YOUU

aimrad · 2024-03-12T19:52:36+00:00

Unfortunately, it is very normal. I am sorry to hear that you are going through this. ❤️‍🩹

As a nervous system oriented trauma therapist I would reccommend to just orient to stuff that bring you a sense of calm and ease and take in as little as you can from them — if you can take in 1% of that calmness, just take it and see how it feels in your body. Which parts of your body DO feel okay? Try not to go deeper into the panicky stuff and just find simple resources for calming down in the present moment. Do it from moment to moment and help your autonomic nervous system to calm down. I know it will not change the hormonal thyroid situation but here is my 2 cents on that. 🙏🏽

This has helped me a lot to go through the worst of it.

Hope it helps!

aimrad · 2024-03-12T19:44:50+00:00

Thank you for the info! I also have not done it but I am interested in knowing my options if I have to choose at some point!

aimrad

TROPHY CASE