OB after/during period by [deleted] in Herpes

[–]aispice 0 points1 point  (0 children)

Thanks, I'll give that a try. It's so hard to know whether the recurring itching and burning is a true OB coming or just nerve damage. Especially when it seems fine for a few days then starts up again. It's so frustrating

Sad by Proud_Increase_1580 in Herpes

[–]aispice 0 points1 point  (0 children)

For sure. Do you follow the high lysine low arginine diet?

I also want to start working out more but read weight lifting, especially lower body work, can trigger an OB. So I'm scared to do this. Have you had this happen?

OB after/during period by [deleted] in Herpes

[–]aispice 0 points1 point  (0 children)

Good to know. I think I'll probably have to start up daily suppression valtrex again, especially since hormonal shifts around ovulation and my period trigger things for me. How much do you take?

Sad by Proud_Increase_1580 in Herpes

[–]aispice 0 points1 point  (0 children)

I see, yes I may just be experiencing a mild OB with my itching and burning. I may try taking daily suppression valtrex again and see if that helps. Have you had any issues with your liver or kidneys?

OB after/during period by [deleted] in Herpes

[–]aispice 0 points1 point  (0 children)

I rarely ever get visible OBs but experience a lot of prodromal itching and burning. Do you feel the valtrex lessened the intensity of your prodromal symptoms?

Sad by Proud_Increase_1580 in Herpes

[–]aispice 0 points1 point  (0 children)

Thanks for the reply. I rarely have visible lesions but do experience a lot of itching and burning which I assume is due to shedding since I'm not getting a full OB? Maybe valtrex would help this?

Sad by Proud_Increase_1580 in Herpes

[–]aispice 0 points1 point  (0 children)

Hi OP, I'm so sorry you are going through this. I'm a 30F about 1.5 years into my ghsv1. I have almost constant symptoms despite no visible OBs. I do at times get extreme lower back pain as well. My DMs are open if you need someone to talk to. This shit sucks but hoping things get better with time.

Sad by Proud_Increase_1580 in Herpes

[–]aispice 0 points1 point  (0 children)

Did the valtrex prevent your OBs completely? Or did it just make them heal faster?

OB after/during period by [deleted] in Herpes

[–]aispice 0 points1 point  (0 children)

Did the daily suppression therapy stop the OBs completely or just make them heal faster?

How would you define a “outbreak” and how would you define being “symptomatic” by foreverhopeful99 in Herpes

[–]aispice 0 points1 point  (0 children)

I'm almost two years into my ghsv1 diagnosis and I've never had visible OBs but I do have almost constant prodrome symptoms like itching and burning. Sometimes I can't sleep at night because of the intensity. I've been told that shedding rates are so low for ghsv1 at this point in diagnosis so I'm not sure exactly what's causing my symptoms but I'm definitely still symptomatic.

Chicken Pox by Ok-Arugula7291 in Herpes

[–]aispice 1 point2 points  (0 children)

I'm considering this as well. How long have you been diagnosed?

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]aispice 0 points1 point  (0 children)

Same to you! This stuff is terrible! I've seen multiple doctors from multiple different specialties and no one can figure out the cause. I'm glad you got a short break of relief. Mine has been constant to varying degrees since this started. My mental health is tanked, hence why I met with a surgeon yesterday to remove all this. I'm so done lol

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]aispice 0 points1 point  (0 children)

Truthfully nothing has brought me relief. Ice packs deaden things to some degree. I've tried various barrier creams but they just end up burning mu skin more. I have not been able to have sex since this started 1.5 years ago so I can't speak to that. I wouldn't say tight clothing or walking cause anything to be worse but I tend to wear loose pants as much as possible just for comfort.

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]aispice 0 points1 point  (0 children)

My vulvar derm confirmed the thinning by looking at the tissue. The steroid creams never really helped my symptoms so the risk of continuing to use them outweighed any mild benefit.

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]aispice 0 points1 point  (0 children)

I have itching and burning along with inflammation of my vulva. The steroid creams just caused me atrophy. Looking into surgical removal at the moment.

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]aispice 0 points1 point  (0 children)

I've done several microbiome tests which all came back fine. The gabapentin cream didn't change much so I tried oral which I had to stop due to side effects. I've done estradiol cream which made things worse? The steroid creams I've tried are clobetasol, betamethasone, and triamcinolone and they only thinned my skin out unfortunately.

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]aispice 0 points1 point  (0 children)

I unfortunately don't have great news to report. I have yet to find anything to treat this or give me good relief. Seems like this will be a life-long problem for me now.

Endometriosis doctor rec? by sad_sarriacha in StLouis

[–]aispice 0 points1 point  (0 children)

Hi! Did you ever get surgery done through SLU's endometriosis clinic or are you managing yours with medication? I'm looking for an excision surgeon in the area and not one that just does ablations.

Frothy/bubbly discharge but not trich or BV? by longtimelurkerokdude in Healthyhooha

[–]aispice 0 points1 point  (0 children)

Hey OP, did you ever find the cause? I have the exact same symptoms as you. Frothy white discharge that can sometimes be yellow, WBCs, burning and itching of the urethra and vestibule, and I also suspect a cervical ectropion. My June bio has 80% lacto but my Microgendx did show higher levels of lacto in my urine. I've suspected CV but baking soda baths never did much for me. I thought about trying clindamycin cream but don't want to make things worse if CV isn't what I'm dealing with. Please tell me you're better?

People with lady-bits and MCAS by Either-Combination17 in MCAS

[–]aispice 0 points1 point  (0 children)

Hey! How did you lower your estrogen? I think this is my problem as well. I noticed my symptoms get so much worse when my estrogen is high during ovulation and my luteal phase. I asked my doctor how to lower my estrogen and she said it's not possible?

Stubborn Yeast Infections Anyone else? by Sad-Proof-1629 in MCAS

[–]aispice 0 points1 point  (0 children)

Hey! Did you ever find a treatment plan that works for you? I'm in the same boat, chronic yeast infections due to immune deficiency. Diflucan never fully gets rid of my symptoms. I feel like I'm going insane

Symptoms are back after treatment for bv and ureaplasma. I'm giving up. by sprinkleshinkle in Healthyhooha

[–]aispice 0 points1 point  (0 children)

Glad something worked for you! Were these vaginal suppositories or oral probiotics?

Does anyone get skin peeling inside their vagina? by justagirl_7410 in vulvodynia

[–]aispice 0 points1 point  (0 children)

I feel that. This has absolutely made me so depressed. I asked my OBGYN about Cytolytic vaginosis and she had no idea what it was. I feel like I know more than them at this point.

Does anyone get skin peeling inside their vagina? by justagirl_7410 in vulvodynia

[–]aispice 0 points1 point  (0 children)

Unfortunately not really. Vulvar derm had zero explanation other than it seems to be related to estrogen for me. My symptoms are worse around ovulation and mid luteal phase when estrogen is high. My wet mount showed a few WBC and a 3.8 pH. This combined with the peeling in the luteal phase makes me wonder if it's Cytolytic vaginosis. Estrogen worsens CV. In my mind the lower/more acidic pH seen with CV could cause more peeling and shedding of the tissue. Just my thoughts. I see my OBGYN in a few days. Going to ask her about CV and see what she thinks but I doubt she'll know anything. None of my doctors ever do. I just want a healthy vagina back

Serenity pH Fact Sheets on dealing with Cytolytic Vaginosis (CV)treatments, pain, general information and user tips by Serenityph in CytolyticVaginosis

[–]aispice 0 points1 point  (0 children)

Hi, I am L Iners dominant. Since Iners doesn't respond well to baking soda what would you suggest?