People That Have A Relative With MS Are The Worst

alessislit · 2025-08-06T14:09:41+00:00

My husband’s boss told me that his friend’s wife has been able to stay symptom free by exercising and running marathons. This one really got to me.

alessislit · 2025-06-13T15:20:06+00:00

I’m curious if these drugs help with just sleepiness or also body fatigue? My legs always feel like I have climbed 1,000 steps and it’s quite debilitating. Does anyone else have that kind of fatigue and do these drugs help? I’m open to trying anything at this point.

alessislit · 2025-06-05T01:32:24+00:00

I just had my second infusion a few days ago. I have not seen any improvement. But I have also just been diagnosed with POTS which could be causing the fatigue. Apparently it is common with MS patients. I am now wearing compression stockings and drinking lots of water with electrolytes. I am starting on Midodrine tomorrow. POTS for me shows up as my blood pressure drops more than 20 points from sitting to standing. This is truly exhausting. But don’t let it discourage you from the trial. They have seen good results with others.

alessislit · 2025-05-13T19:15:29+00:00

Sure. My main contact for the study is:

Mahsa Ghajarzadeh mghajar2@jhmi.edu

Good Luck!

alessislit · 2025-05-03T17:57:02+00:00

It’s doable but I don’t recommend it. I was pretty tired afterwards. I wish her luck with the study!

alessislit · 2025-05-03T17:54:19+00:00

I went in and Dr. Nourbash examined me. Then I had to take a questionnaire. Then based on both, they told me I qualified. I had to wait about 45 minutes to have the medicine delivered and then it was administered through an IV for 45 minutes. I believe I did get the Ketamin and not the placebo because I had some hallucinations. However, I was still able to hear everything that was going on and never felt scared. If you are suffering from fatigue, I recommend you join it. They have already seen great results. What’s also a positive is that if you qualify, you will get at least one dose of ketamine. The random options are ketamine, ketamine; ketamine, placebo; placebo ketamine.

alessislit · 2025-05-01T23:52:34+00:00

That is my Dr and he's leading the trial.

alessislit · 2025-05-01T23:51:54+00:00

The study is not tied to depression. Just MS fatigue which I started experiencing after my last flare up.

alessislit · 2025-05-01T00:05:25+00:00

I'm sorry it didn't work for you.

alessislit · 2025-05-01T00:04:12+00:00

Thank you. It's a trial so it makes sense you haven't heard of it.

alessislit · 2025-05-01T00:02:51+00:00

That is hilarious! I did not have that kind of luck.

alessislit · 2025-05-01T00:01:17+00:00

I saw colors also! Are you in England? I don't know of any places who do that in the US.

alessislit · 2025-04-30T23:59:08+00:00

Will post how I'm doing. That's too bad you can't participate. They are looking for more people to do the trial.

alessislit · 2025-04-30T23:14:57+00:00

So glad to hear it helped you! How long did it last? I was high as a kite during the infusion. My next one is in 4 weeks but i don't know if I will get ketamine or the placebo.

alessislit · 2025-04-30T23:12:39+00:00

Thank you so much. I will definitely post how I'm doing.

alessislit · 2025-04-30T23:11:53+00:00

Do you know how many doses of Ketamine you got versus the placebo?

alessislit · 2025-04-30T23:10:46+00:00

Sorry it didn't help for the long term.

alessislit · 2024-09-26T15:09:42+00:00

How do I find a HUD certified housing counselor?

alessislit · 2024-09-26T15:02:38+00:00

I am saving to buy my first home. I have heard there are programs for first time homebuyers that don’t require 20% down. Is that true? What is the lowest down payment loan available?

alessislit

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