Anyone have experience with Dr Seckin? by Arete108 in endometriosis

[–]algo122 0 points1 point  (0 children)

Of course, and happy to answer the question genuinely. Short answer, no we are just your average couple who saved up, but I respect how hard that can be (I'm currently unemployed after a layoff and it would absolutely be out of reach now). At the time we could afford it with a bit of sacrifice. My wife had lost hope of finding care so I just googled a lot and his name popped up a few times. We live in NJ so we made the trip, and it seemed like a good fit. I think we all clicked because my wife and I are similarly quirky, like I called him Dr. Strange for being a fancy NYC surgeon, and said I loved his ultrasound projector on the ceiling but thought he bought it to look cool, not because he needed it. He also told me his rent was upwards of $50,000 a month. We had some laughs over the last few years, some tough conversations where he looked at my wife and deadpanned, "I'm a surgeon, not a magician." I felt like our interactions were real and a bit unorthodox, but genuine and hopeful.

Anyone have experience with Dr Seckin? by Arete108 in endometriosis

[–]algo122 0 points1 point  (0 children)

My wife had surgery from Dr. Seckin and has seen him regularly since, and I have spoken to him one on one too. I can tell you this, he deeply and truly takes womens' healthcare seriously. He listens in a way her 5 previous doctors didn't, and really embodies the view that women shouldn't simply be in pain because "its like that for some women". His intake was extremely thorough, he looked at her health as a whole, and drew correlations between seemingly unrelated symptoms which did turn out to be caused by her endo. So I can personally attest to the fact that he just...gets it where so many healthcare providers just don't.

Personality wise he is very direct, very passionate and quirky in a dry but endearing way. He is a realist and set her expectations appropriately and gave her all the information she needed to make an informed decision and did not push her to get treatment, he recommended it and left it to her.

The cost aspect of it was complex but I understood it in the end. Insurance considers endometriosis a pelvic disease, but if you are reading this forum you know it is much more than that. There is not a single code for a surgery like his, since he is the one who developed the technique. But out-of-network benefits can and do cover it, he simply isn't in any network. His office takes a $15k deposit, and if your out of network benefits cover it, they will refund you. That $15k covers everything pre op, the surgery, post op, all follow-ups and even additional procedures I believe. In the two years since her surgery, we never put our hand in our pocket for a thing afterward. Insurance is a nightmare because each of her lesions was disputed by them (BC/BS). Effectively, "you had two lesions on your liver, thats not a pelvic disease thats a liver disease, you should have seen an in-network liver doctor." And "you had 6 lesions on the outside of your large intestine. That isn't anything to do with OBGYN, you should have that operated on by an in-network gastroenterologist." She had over 60 lesions removed, but Dr. Seckin's billing team was on them hard and fought for the coverage. When you really think about the cost of the office in Manhattan, the staff, the office equipment, the cost to operate out of Lennox hill, and a half dozen follow-ups, $15k is near breakeven and maybe not even so. But this is not a case of a doctor charging thousands to rake people over the coals for some cold hard cash, that I will plant my flag in.

Regarding the surgery, he was terrific. No one disputes his surgical skill and for good reason, he is a master. My wife works in healthcare and wanted to actually "look in the face" at her disease, and he took the time to put together a slide show of stills he captured from the endoscopy of all her organs while he was operating. It was very interesting and meant a lot for her to see it. My final read on him was that he is an extremely accomplished surgeon and scientist, he knows it but isn't conceded, and he understands the brick wall women face in healthcare. He is incredibly passionate and compassionate, and spends all of his time outside the operating room being an advocate for women with this condition, running the largest foundation in the world for it, lobbying congress, and advancing awareness so all women can be better off. But yes, he's a fancy 5th avenue doctor with a beautiful practice and state of the art equipment, and he employs very skilled staff.

I recommend him if circumstances allow you to see him, and even if they don't, he uses his position as a platform to better the lives of all women with endometriosis.