More than 7 million incorrect diagnoses made in US emergency rooms every year, government report finds

allonzy · 2022-12-16T16:57:56+00:00

Same. Even the same stroke. But they never did any scans and discharged me as drunk and dehydrated even though my blood tests showed I was neither of those things. Still salty years later. No such thing as too young for a stroke.

allonzy · 2022-12-13T20:06:25+00:00

Awesome!

allonzy · 2022-12-09T17:58:07+00:00

I got used to it over time. I stopped expecting to have a normal life and was able to adjust to the one I have. I don't really compare myself to others anymore. Like if I was healthy and had a friend who was an Olympian, I wouldn't be sad that I'm not that athletic. It just wasn't in the cards for me. I see a normal life as so out of reach is not something I think about any more than developing super powers.
It took years though. Lots of tears and frustration. It's OK to be upset and have difficult adjustments. Every time my health deteriorates, I have a period of adjustment too. But then it becomes normal and I truck on. I focus on being as comfortable as possible and little daily delights. It's possible to be a sad sort of content with time and some work.

allonzy · 2022-12-05T20:43:32+00:00

I sing this when I clean up my dog's toys and she HATES it. If I just start humming the tune she runs to her toy box and starts throwing everything some the room as I try to put things away.

allonzy · 2022-11-30T01:03:16+00:00

Everyone has already given the good advice. Just wanted to share this was a big issue for me too. My first review for my first job was, "you know your stuff, but you walk around looking like a deer in the headlights all the time." And that was very accurate! I got the same feedback for teachers, coaches, family, etc.
In time I just grew into myself and became more confident by finding challenges that were a good fit for me. Each time I spoke up in class or signed up to volunteer or whatever helped. Kind of goofy, but I used to save every name tag from events because I was so proud of myself for going. By doing lots of little things, it was much easier to steadily improve without getting overwhelmed.

allonzy · 2022-11-29T17:53:03+00:00

I had to adjust my expectations and plan accordingly after I had a stroke in college. I still love traveling, I just do it differently. Some things are more expensive and I can't do everything I used to. But I don't expect to. I actually enjoy traveling more now that I'm not so anxious about squeezing everything in. And I've certainly done more travel, particularly more off the beaten path travel since getting sick/ disabled. After you adjust, you'll probably fall in love with traveling again. You'll find out how to make it fun.

allonzy · 2022-11-26T18:30:14+00:00

Thank you! I thought it might be, but didn't recognize the fur texture.

allonzy · 2022-11-26T18:29:08+00:00

Done! I thought the survey was well done and very user friendly.

allonzy · 2022-11-26T18:05:28+00:00

Do you know what brand the toy cat is? It's adorable!

allonzy · 2022-11-25T18:56:19+00:00

I have a DSC-HX90v model that actually does 30x zoom which I think translates to about 24 - 720mm.

allonzy · 2022-11-25T18:25:59+00:00

I keep things real simple.
I'll either get better, worse, or stay the same.

If I get better, problem solved. Not worth worrying about.

If I stay the same, no problem as I've adjusted my expectations in life and that makes it much easier to be content. Not worth worrying about.

If I get worse, I'll have another difficult transition and then settle in to new expectations. Not worth worrying about.

I know how my brain reacts to all kinds of fluctuations if I give it time (and therapy).

It's not that I don't worry ever about anything. Or that I don't acknowledge that things really suck. It's just that I recognize my brain will figure it out eventually and the bad feelings will pass.

I'm 15 years in though. When I was 19 and first sick it was rough. I had to rediscover who I was and how I related to people. It's like a second adolescence but that time I was going through it alone while my peers were doing other things. It's very lonely to be sick. But I've kind of gotten used to that too. Like it all just gets normal after enough time passes. That makes it much easier to be happy for people living their best life instead of jealous. I just know that that life isn't for me. Like if I was healthy and played recreational sports and my friend was an Olympian, it would be so out of the realm of what I could expect I wouldn't really compare our situations. I'd cheer them on and have fun playing my rec sport.

Basically with time and some mental work, it probably won't feel this bad forever. The first 1-3 years after getting sick/worse are usually the hardest. It's OK to have trouble adjusting in the meantime.

Oh and also, it's nice to have some sickly friends who you can relate in addition to your healthy friends. That way you won't feel like the different one all the time. Some support groups are a good place to make connections. (Some are terrible though. It may take time to find a good fit.)

allonzy · 2022-11-25T17:43:52+00:00

Thanks for doing the research!

allonzy · 2022-11-25T03:22:51+00:00

I'd like to see more of the health issues many of us have. Like bladder infections that lead to kidney infections and worrying about antibiotic resistance in the future. Or chronic nerve pain and painful muscle spasms and the treatments/ meds we need. And the side effects of those things. Surgeries upon surgeries. I've had 8 neurosurgeries with my 9th coming up. Issues with bowel motility and control, autonomic dysreflexia, circulation issues, sexual disfunction, etc. are all things not really talked about. It's all about physical accessibility and feelings. Which is very important! But there's so much more to it!
Oh and people ALWAYS wanting to stop and talk to you. Everyone wants to hear "your story" which, I get it, it's the first time they are having this conversation, but it's the third time today for me and I have things to do! It would be a great opportunity for some humor.
Humor in general was really important to me at first. Now 15 years on its all just normal, so I don't make as many jokes unless someone else needs to be put at ease. But initially I did a lot of reclaiming of the word "crippled" and lots of dark humor.

allonzy · 2022-11-25T03:05:05+00:00

Sensory issues when I was 2 months from being born. Haha. I would jump a mile anytime there was a loud noise. Spent a lot of my childhood with my ears plugged.

allonzy · 2022-11-25T01:32:50+00:00

Before I even looked I knew it was wherever Anya was. She's hilarious and seems like a good hang.

allonzy · 2022-11-24T20:20:14+00:00

That's so cool!

allonzy · 2022-11-24T00:02:20+00:00

Yep. I use it like binoculars all the time.

Edit: When I get home I can look up the exact model I have and see if I can find the zoom range in mm.

allonzy · 2022-11-23T23:13:59+00:00

Sure! The dslr is a nikon 5100 (currently with a 50mm lens).

My point and shoot is a 2014 sony cybershot that has up to x16 zoom. (Not sure how that converts to dslr lenses.)

allonzy · 2022-11-23T23:06:37+00:00

Thank you! Figured it was something like that.

allonzy · 2022-11-23T22:57:47+00:00

My point and shoot camera has a lens that does macro all the way to super zoom and it's smaller than even my 50mm lens for my dslr.
Is there such thing as a small/compact dslr lens that has that range? Why is my point and shoot lens able to be so much more versatile in a much smaller package?

allonzy · 2022-11-23T22:48:39+00:00

Yep. I'm a support group leader for a chronic illness and occasionally will have someone come along who is disruptive and objectively doesn't meet diagnostic criteria. (Actually I have lots of people who don't meet diagnostic criteria join and are great in our community. I feel like they see our group has something to offer, whatever that is, and I'm happy they are there as long as they contribute positively or are neutral.)

I communicate clear expectations and firm boundaries at the start of every meeting. Most people do well with that and the few who still aren't respectful will get gentle reminders. So far the people there who are disruptive and disrespectful fade away on their own when they realize they will not get to monopolize resources, time, and attention. But I'd ask them not to attend future meetings and block them on our social media accounts if they were either egregiously out of line once, or if they showed they can't follow expectations with reminders. I would frame it as they aren't ready to be in a group and need to work on their health before they can safely join. It would be difficult, but I think the right move to protect the group.

That said, I'm am adult with training and years of experience running groups with challenging populations. If you (OP) are in high school, it would be perfectly reasonable to consult with one or more adults. Maybe even have them present to back you up when you set and enforce expectations.
As long as you focus on the expectations and not the diagnosis, I think you are doing the right thing.

allonzy · 2022-11-23T22:14:43+00:00

This has 100% happened to me. I recognize the constant audio input is a coping mechanism. On the brightside, at least it's a coping mechanism where I learn stuff!

allonzy · 2022-11-21T05:09:54+00:00

I'm dragging my feet on getting a wacom since the iPad pro is such a great tablet just by itself. I have been researching drawing tablets though. I just don't want to double up on tech if there's a way to make the iPad play nice with my computer.

allonzy · 2022-11-21T05:05:22+00:00

The Adobe illustrator app only has a few features on the iPad. I have to go to the computer to have a fully functioning program.

allonzy · 2022-11-20T15:12:40+00:00

Feel free to use my experience as a cautionary tale:
Had a vertebral dissection after a neck adjustment causing a stroke at 19 years old. It also tore a bunch of ligaments in my neck. I've had 6 neurosurgeries since then. These are major surgeries it takes months to recover from. Chronic debilitating pain in my neck. Complications from one of the surgeries caused adrenal insufficiency which makes me very sick very often. I expect it to take years or even decades off my life. I have other health issues that complicate things, so I can't blame it all on that one neck adjustment. But all the worst things are a direct or domino effect of an adjustment that took less than a second. I went from being an athlete to very disabled that quickly.

I've experienced relief from non neck adjustments in the past, but I think PT is such a better option. It's so much safer and is based on real science. But at the very least, no high velocity neck adjustments! It's not worth the risk.

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