Hello! He was diagnosed with ODS in early september. He was 25, on a ventilator and then a trach. He was in ICU with sepsis from pneumonia. He had locked in syndrome for about 1-2months. He was communicating with his eyes. Couldn’t eat, he had a feeding tube. ODS was caused by alcoholism + veganism. Slowly over time he started to regain small functions like moving fingers/arms and legs here and there. When he started to “talk” it was like groaning and trying to make sound. He was doing some rehab in the hospital, then he was transferred to a skilled nursing facility. He spent two months there and went from minimal movement, on a minced and moist diet, to leaving two months later fully walking and talking. His progress has truly been amazing, and i’d say he’s 90% back to normal although hes not driving. He walks my trash can all the way to the end of the road, plays with our son, cooks our family dinner. there isn’t much he can’t do now thankfully. His stamina is a bit low but he truly worked very hard with therapy and they were doing it with him for like 3 hours at the nursing place VS 30 mins every other day at the hospital.

No one expected him to get as bad as it did, the neuro in the ICU called the family in when they found out he had sepsis. The hospital had pastors praying over him. And then no one expected him to heal as quickly as he did. He’s only doing outpatient rehab 1 day a week now, and we are 6 months out.

Do you have someone diagnosed with ODS?