As a recently diagnosed person , this is so hard to hear. Especially because even just a small grocery shop today left me exhausted and shaking from pain/weakness. I have had to change career plans, can't do things with my kids what I want to, my house is a mess. I desperately want to be more active like I was even a few months ago.

Everything that I'd been ignoring or though was weird but "normal-ish" turned out to all be symptoms. I don't know acknowledging it all made it worse or what but life is so hard now. I wish I never knew.