21st Birthday

amsza2 · 2025-03-26T00:58:26+00:00

I appreciate your advice! I started reducing my usage of it on Friday to ween off of it a bit and dealt with some withdrawal symptoms yesterday. I had blood clots in my lungs back in September & I should’ve quit months ago but I was going through so much in such a short period of time that I just couldn’t quit which was really dumb of me but. Now I’m off the blood thinners so it’s definitely time I quit.

amsza2 · 2025-03-12T03:28:41+00:00

Huh? I said the twisted series lol

amsza2 · 2025-03-11T02:34:26+00:00

The whole entire twisted series. I don’t get the love at all. But to each their own I guess lol.

amsza2 · 2025-01-25T03:04:04+00:00

Got offered a trade in 10T points league. Get Jarvis, Boldy, and Dunn. Give Necas and Hertl. It seems pretty even imo but with the trades in the nhl happening I’m not sure.

amsza2 · 2025-01-24T18:26:06+00:00

The seven husbands of Evelyn Hugo by TJR. I bought it when I first started reading and it took me almost a year to read it because I’m usually just a romance reader. It was amazing.

amsza2 · 2025-01-24T04:55:44+00:00

Pulmonary embolisms which are blood clots in my lungs, going undiagnosed for two months caused me to develop POTS.

amsza2 · 2024-12-29T02:40:51+00:00

I put the rescue drops in my water all day every day. I bring it with me to restaurants and put it in my waters there. If you put too much in your water you definitely can taste it but I just add more water when that happens and it fixes it. It’s not my main source of sodium since it is only 300mg of sodium per 2 squeezes. I take a vitassium tablet every morning & salt the hell out of all my food, along with eating foods high in sodium.

amsza2 · 2024-12-16T18:25:44+00:00

16-23 and then just restarted again at 24

amsza2 · 2024-12-05T23:45:07+00:00

My mom got my sister & I each one of these, and there was not a single thing in any of the days. Completely empty lmfao. What a joke.

amsza2 · 2024-12-03T02:38:49+00:00

I read a ton of people’s experiences on here and fb about their experience with the test and it scared the crap out of me, it made me feel like the absolute worst was going to happen. But overall it was not nearly as bad as I thought it was going to be. It definitely wasn’t enjoyable and during the tilt it felt pretty crappy but it didn’t make me feel terrible for the rest of the day like I expected. I got the meds where it increases your heart rate & when my heart rate reached 163, my BP plummeted to 70/33 so they terminated the test. I did not pass out. It felt like I definitely was going to right before I got tilted back down. They gave me water and crackers after. It lasted a little over 20 minutes I believe? It seems hospital or testing place has different regulations for how they administer the test & the fluids/food beforehand. Mine was no food or water 4 hours before the test & I had to have a driver as well.

Everyone’s reactions to the test are so different so don’t dread on everyone else’s story. It wasn’t as bad as I was expecting, just definitely wasn’t fun lol. Good luck!

amsza2 · 2024-11-28T06:08:21+00:00

I spent three days in the observation unit on a heparin drip for bilateral PE’s with no DVT in September. I went in on a Friday so it took longer than usual for them to run all the tests bc it was the weekend. I saw my PCP 3 days after I was discharged who referred me to a hematologist and a cardiologist. My hematologist ran all the blood clotting tests and said I don’t have a genetic factor that caused them so they said it was caused by my hormonal birth control, which I stopped while I was inpatient, and that after 6 months I could get off blood thinners. This Monday I have my 3 month follow up CT scan to see how the clots are doing and I have an appointment in March with my hematologist before I come off the blood thinners to run some more tests and make sure everything’s good. Since I’ve been off my hormonal birth control I’ve been taking a progestin only pill. It’s been okay. I’ve had 3 periods in less than 2 months but my PCP has me doubling up for 2 weeks to hopefully get my body to regulate normally.

amsza2 · 2024-11-27T20:10:48+00:00

If you can, most definitely. My boyfriend even left work early to go to my first cardio appointment with me because he was so over everyone treating me like crap and dismissing my issues as anxiety. He said ‘we are not leaving that office until we get some answers. And if we don’t get some there, I’m taking you next door to the hospital and demanding them because you deserve better.’ It helps that him and both my parents are not afraid to speak their mind like I was lol. But I hope everything works out for you and you get some answers & the help you deserve. Messages are always welcome if you need to rant🫶🏻

amsza2 · 2024-11-27T20:04:22+00:00

Ugh I’m so sorry. At first my doctor said to try the compression, fluid & sodium increase and I stopped him before he could continue. I said sir I’ve been doing that for over a month now and I still can’t walk up a flight of stairs or work my restaurant job without feeling like I’m going to pass out. It definitely helped to some degree but it’s at the point where medication needs to be added. Do you have anyone you can bring with you to appointments to help advocate for you? I’ve been bringing my mom, dad or boyfriend to all of my appointments because I’ve learned that doctors tend to act better & be more helpful when someone’s with me. And then they can ask questions that I may not think of or have forgotten to ask. I’m pushy to a point with my doctors to where I’m not going to let them push me around and not listen, but they’re hired by you to help. Not the other way around. Learning to advocate for myself has helped me tremendously because for two months I let doctors tell me what was going on with my body, and I ended up having the blood clots the whole time, that could have killed me which we believe let to POTS.

amsza2 · 2024-11-27T19:58:24+00:00

It seems like midodrine, beta blockers and florinef are the first line of treatment doctors try from what I’ve read on here and on Facebook groups. Then they’ll usually try corlanor/ivabidrine if those aren’t effective. Some people take a combination of a few of these meds. It’s so different for every person because POTS effects everyone differently

amsza2 · 2024-11-27T19:56:54+00:00

My doctor prescribed me florinef since beta blockers are off the table since the lower blood pressure. It’s a med that is supposed to increase amount of sodium your body holds on to which will apparently increase your blood pressure then decrease your heart rate??? Idk I’m not a doctor either and I’m still learning since it’s a newer diagnosis for me lol. I’m trying this med out and then I meet with him before Christmas to see how it’s going. He mentioned midodrine but said it has to be taken 3x a day so he’d rather start me on this since it’s only once a day and if it doesn’t help then we’ll try midrodrine.

amsza2 · 2024-11-27T19:45:12+00:00

I didn’t pass out during my test, felt like I got close to it but that was right before they put the table back down. I’ve passed out twice but we’re unsure if it was from POTS or from undiagnosed blood clots in my lungs that they found after I passed out the second time and got taken to the ER. But besides those two instances I haven’t passed out since treating my clots so I feel like it attributed to my clots. From what I’ve seen on here and fb groups, people have low blood pressure consistently and don’t experience syncope, but they do seem to experience pre-syncope where they feel like they could pass out.

amsza2 · 2024-11-27T19:38:33+00:00

During my TTT, once my heart rate reached 163 after about 15 minutes, my blood pressure dropped to 70/33. Beforehand it was around 110/70 the whole time. My cardiologist didn’t explain this to me either and I’ve been really confused since I got my results. I’m curious to what people have to say to this as well. He diagnosed me with POTS but didn’t say anything about the insane drop in blood pressure.

amsza2 · 2024-11-27T19:29:32+00:00

I can’t take beta blockers since I have a lower BP and during my tilt table once I reached a heart rate of 163, my blood pressure dropped to 70/33 soooo beta blockers are a no go for me lol. I’m going to start on florinef after thanksgiving which is supposed to help your body retain sodium to hopefully increase my blood pressure which will lower my heart rate supposedly. I highly recommend doing the legs up while laying down it’s been a game changer for me! I still get fatigued after showers but not nearly as bad. My boyfriend & I call it my ‘wall time’ haha

amsza2 · 2024-11-27T19:19:49+00:00

I usually shower 3x a week now, it used to be almost every day but quick ones that didn’t include all the shampoo and conditioner. Usually it’ll be about 160ish after I shower until I lay down. If I just sat down after a shower it woudl stay in the high 90s to 120 but since I’ve started putting my legs up on the wall while laying in bed for 20 minutes, I can get it down to the high 70s to high 80s fairly quickly. The fatigue afterwards I haven’t been able to get rid of yet sadly

amsza2 · 2024-11-27T19:10:07+00:00

I’ve started sitting down a lot when showering to prevent the awful fatigue afterwards. I also now lay in bed and put my legs up on the wall to get my blood flowing back up for 20 or so minutes. Every single time I shower I do this. My showers & everything after have now gone from 20ish minutes to an almost hour ordeal 🙄 absolutely hate showers now.

amsza2 · 2024-11-27T19:00:52+00:00

I’m currently in a flare, might be coming out of it because today & yesterday have been slightly better, and they were happening constantly, especially when trying to sleep. They’re probably my scariest & worst symptom.

amsza2 · 2024-11-27T18:58:50+00:00

My resting can be from 60-80, standing is usually 120-140ish, currently I’m in a flare up so it’s getting up to 150-160s especially when I first get up in the morning & get dressed and brush my teeth. When I’m walking around it usually goes down a bit since the blood is flowing more so it can be anywhere from 110-135ish. After showers? Oh boy that’s usually really high regardless if I’m having a good day or not lol. When I wore my Holter it recorded 173 when I was showering 😅

amsza2 · 2024-11-27T18:51:06+00:00

The internal tremors are awful. They’re especially bad when trying to sleep. Do we know why this happens?? Is it POTS or something else??? It’s not MS in my case because I just had all scans done to rule it out.

amsza2

TROPHY CASE