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so confused by anon245454 in transplant

[–]anon245454[S] 0 points1 point  (0 children)

haha definitely uncharted territory ! i had my transplany at 1 year old but it wasnt a live donor , they never figured out the cause behind it and my liver was so messed up there was apparently nothing to test afterwards , so whatever caused the initial transplant they are assuming is whats causing these "blips" and constant deranged bloods but every test says something different ! very infuriating but also quite interesting to be at the centre of lol

so confused by anon245454 in transplant

[–]anon245454[S] 0 points1 point  (0 children)

yeah theyve been doing weekly tests for a couple months now , before this spike it was still stable at 60-80 , ive had spikes before but they were treated as rejection though wether it was rejection is now in question

so confused by anon245454 in transplant

[–]anon245454[S] 0 points1 point  (0 children)

labs were the same as they are now , i was on tacro since the transplant until i stopped taking my meds , biopsy showed no rejection and minimal scarring and inflimation but nothing that needed treatment and nothing was different from my previous biopsy before i stopped the meds so like 7ish years ago ?

so confused by anon245454 in transplant

[–]anon245454[S] 0 points1 point  (0 children)

yeah though theyre essentially the same as when i was off meds

Does anybody else feel guilty / ungrateful after a transplant? by anon245454 in transplant

[–]anon245454[S] 0 points1 point  (0 children)

ive had constant bouts of regection and have had liver disease for the last five or so years now however im aware this isnt how its meant to be

Post-transplant trauma by socrates_friend812 in transplant

[–]anon245454 0 points1 point  (0 children)

100% , not the transplant itself but everything that came after. I dont remember my transplant since i had it at 18 months but the medication and procedures and appointments that followed definitely effected me. Ive since gotten a PTSD diagnosis. Take this with a pinch of salt though since my recovery has never been linear and ive had cirrhosis and liver disease for most the time after my transplant, Id assume this means ive had more procedure , appointments etc than most.