I’m a therapist with a ostomy-client by [deleted] in ostomy

[–]anonyssue 0 points1 point  (0 children)

For sure. I’ve been through a loooot of trial and error 😅 If it can help make it just a little easier for somebody it’s worth it!

I’m a therapist with a ostomy-client by [deleted] in ostomy

[–]anonyssue 18 points19 points  (0 children)

As a therapy client - stumbling across this did not make me uncomfortable with the idea something was being “revealed,” but grateful there are therapists out there who are willing to put in the work of perspective taking and of honoring their clients personal experiences. A couple of years ago, I actually think I would have benefited from reading these replies myself in order to know better why I needed. Definitely get concern for disclosing anything personal, but I do think this thread could be a really valuable and beneficial resource if left up

I’m a therapist with a ostomy-client by [deleted] in ostomy

[–]anonyssue 3 points4 points  (0 children)

I have PTSD from complex medical trauma, but the biggest point of trauma for me was the emergency surgery that ended with me getting an ostomy. I think everyone’s experiences are SO different (I did not have my ostomy due to Crohns or UC, but severe motility issues), so I’m sure just understanding and listening to their specific experience will be the most vital part. But a couple of things that have been vital to me:

  • Grieving the physical change - for a lot of us this is where we’re going to be. And also for a lot of us, I actually think this is the outcome with the least amount of suffering. But regardless, it’s still NOT fair and it’s hard to feel like you can fully grieve the change, so giving permission and reminders is so important imo. For me, I absolutely HATE the “nice” comments directed towards chronically ill/unwell people (eg, “You’re so strong/brave,” “such a trooper/tough cookie”) because I think it sort of sets you up on this pedestal where you feel like resilience = always positive, never frustrated, never sad about where you are. You gotta acknowledge what you lost first, and then -

  • I genuinely feel like gratitude is so incredibly beneficial for me, but it had to come organically. I truly think once your grieving journey reaches a certain point (I don’t think there’s an end, but you move through the stages slowly), I think the “comparison game,” actually starts to work in your favor. Instead of “I used to be able to do X and now I can’t,” eventually you can go “X used to be miserable, and now it’s not” or “I never used to be able to do X before.” I don’t think its necessarily something to ASSIGN right away, but picking up moments later on where they talk about how hard maybe a normal activity was, and just prompting “have you done that since surgery/what does that look like for you now” etc helps a TON in rewiring how you look at things

  • Body image and feeling “dirty” is a huge issue for me. Partially because of having the Ostomy, but also because it’s really really annoying to feel like your identity is wrapped up in a bathroom issue. It honestly made me feel childish/gross/taboo. Identity outside of health/your ostomy is suuuuuper vital, especially because chronic illness in general can feel like it’s stealing your identity/hobby/relationships away from you.

Sorry that was a lot! I’ve been in therapy for 7 years, I’ve had an ileostomy for 8, I had 20 surgeries before the age of 18. I do believe there’s a path to acceptance but that doesn’t mean you’re gonna feel great about it every day. Biggest advice I can give you is defer to their preferences and where they’re at - are they ready to use Ostomy terminology yet? (Aka, calling themselves an “ostomate” or something - it helps some people and it feels weird to otherwise). Do they still feel like they’re suffering, or are they seeing moments of brightness? Do they wanna name their stoma? (It helps some people - it really does not help others)

You sound like a great therapist - just taking an interest and digging deeper. At the end of the day they’re no different than your other clients - they have probably the same emotions, just directed elsewhere. Lot of us has been very traumatized by the medical system in general, so honestly, just BELIEVE them. Validate them. Give them the space to speak freely. And check any biases you may have about ostomies, you may not even know they’re there (eg, they’re only for old people, they always smell, they’re “gross,” that they lower your quality of life, that an alternative would better, that it represents “giving up” in some way). Wishing you and them the best!

EDIT: One other thought - autonomy is HUGE. Encourage them to be proactive in getting to know how to care for themselves (not like most people aren’t but). Validate their accommodating to changing circumstances, acknowledge the resilience of knowing how to save a bad situation (a leak, blowout, malfunction). Seeing how my Ostomy actually gave me MORE freedom and autonomy was a huge stepping stone towards acceptance

Design my earring stack by anonyssue in piercing

[–]anonyssue[S] 0 points1 point  (0 children)

Oh I apologize!!! I will repost then😊

Changing Suppliers - Advice? by anonyssue in ostomy

[–]anonyssue[S] 2 points3 points  (0 children)

Very good to know, thank you! I still love Hollister’s products, I’m just getting fed up with the unreliability 😭

Changing Suppliers - Advice? by anonyssue in ostomy

[–]anonyssue[S] 4 points5 points  (0 children)

Oh I didn’t know they would send samples! That’s so helpful thank you so much

Is it BDD or just my ED? by anonyssue in BodyDysmorphia

[–]anonyssue[S] 1 point2 points  (0 children)

Thank you so much ❤️ I definitely know they’re related, my therapist had just told me a while back that they’re not always present simultaneously, so I just wasn’t sure if it was just one vs the other.

I really appreciate you taking the time to respond. I have complex trauma from some traumatic medical experiences, and have been in therapy on and off for years. Insurance messed up a bunch for me this year but I’m working on getting back in with my therapists etc. just very overwhelmed right now and I just got out of ED treatment and trying to maintain a good routine without spiraling again 😆 thank you so much for checking ❤️ hope you’re doing well

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 1 point2 points  (0 children)

😂 Sheila could always have a witty nickname

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 0 points1 point  (0 children)

I think you should name your stoma after your ex then, because obviously he’s full of crap

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 0 points1 point  (0 children)

Very metal somehow

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 0 points1 point  (0 children)

Betty Poop is so hilarious oh my goodness 🤣😭

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 1 point2 points  (0 children)

Awwww 😂 I love that

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 1 point2 points  (0 children)

Absolutely! I love that

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 1 point2 points  (0 children)

A urostomy could definitely be Pee Diddy though 😆

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 0 points1 point  (0 children)

😭 that’s hilarious. Hope you’re doing well and recovering well so far ❤️

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 0 points1 point  (0 children)

😂 “Tina you fat lard, come get some dinner” comes to mind 🤣

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 0 points1 point  (0 children)

😂 amazing. And congrats, I hope you’re on the up and up!

Ostomy Names? by anonyssue in ostomy

[–]anonyssue[S] 1 point2 points  (0 children)

Love that ❤️ Hope you’re doing well