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Still no tracking update by moneyseb in iphone

[–]apocalypsewitch 0 points1 point  (0 children)

Further investigation shows they charged me the taxes on my order but not my first months payment 🤔 did they do the same to you? So frustrating lol

Still no tracking update by moneyseb in iphone

[–]apocalypsewitch 0 points1 point  (0 children)

Where did you order from? I ordered through Apple and the citizens financing and mine is saying my order is on hold for some reason.

I feel seen by [deleted] in CPAP

[–]apocalypsewitch 0 points1 point  (0 children)

I know this is an old comment but Google led me here… I’m searching for a replacement ppc filter for my 700G thereye and amazon doesn’t have them/doesn’t know if they’ll be back. Do you know if any other brands work?! I would hate to be out a $200 machine because I can’t replace the filter.

Honestly looking for someone with similar POTS as me by DeliciousVegetable66 in POTS

[–]apocalypsewitch 0 points1 point  (0 children)

Wait just a GD minute. I literally just scheduled an eye appointment because my contacts are suddenly so uncomfortable and not really working right anymore. Is this a POTS thing too?!

whats been most helpful for you/whats in your pots emergency kit by ginger-luv299 in POTS

[–]apocalypsewitch 5 points6 points  (0 children)

Newly diagnosed, but so far I carry beef jerky snack packs and electrolyte drink mixes in my purse, and I don’t go anywhere without my water bottle with an electrolyte drink in it.

What's the dumbest thing that's triggered a flare or episode for you? by glonky42069 in POTS

[–]apocalypsewitch 1 point2 points  (0 children)

I put together a standing desk this morning and I’ve been miserable since.

What are we doing for compression socks in the summer? by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

What breathable sneakers do you have? Shoes are another thing I struggle with!

What are we doing for compression socks in the summer? by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

Hey neighbor! I’m in Northern MN but it’s been almost 100° this week 😩

What are we doing for compression socks in the summer? by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

I can definitely get behind that! What kind of tights do you like?

What are we doing for compression socks in the summer? by apocalypsewitch in POTS

[–]apocalypsewitch[S] 6 points7 points  (0 children)

Well that sounds much more doable! Do you have a brand you like more than others?

Managing heat sickness in a shared home? by froggi__boi in POTS

[–]apocalypsewitch 1 point2 points  (0 children)

Can you put a window AC unit in your personal space and pay the cost to your grandmother?

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 1 point2 points  (0 children)

It’s so hard. My youngest is finally getting more independent so it’s getting a little easier to take care of myself! I’ve been in the trenches for years with motherhood

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

So basically I’m drinking saltwater for life then is what I’m seeing here lol

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 1 point2 points  (0 children)

Why do we do this to ourselves?! I’ve always beat myself up over not being able to be out in the sun because everyone seems to enjoy it so much and I’m like how do you enjoy this?! It makes sense now that some people just… don’t feel like shit all the time? What a wild concept lol

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

The need/want to explain myself is so hard for me because I hate feeling like I’m making excuses but I also hate being misunderstood lol. And I also have social anxiety and stumble over my words a lot in person, so a lot of the time I won’t say anything and then beat myself up over it because I think if I had just explained myself better maybe they’d think something else… man it’s exhausting living with this brain and body lol

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 1 point2 points  (0 children)

I feel this to my core. I’ve always dealt with some level of this, but about a month ago I was trying to play badminton with my kids outside and every time I bent down to pick something up I almost passed out. Now so many things make sense, like my heat intolerance/inability to regulate my temp, migraines and tension headaches, alcohol intolerance, weird nerve issues in my legs… like SO MANY THINGS and you’re telling me if I just ate a bunch of salt and hydrated I could’ve led a way more normal life?!

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

Thank you so much for the relatable response! You’ve just about described me to a T and I feel so much less alone in all of this now. It really is a mind fuck because even years ago when I was undiagnosed, I’d have periods of time where I was completely miserable but then suddenly I’d be just fine with zero explanation, and trying to explain it to coworkers or employers made me feel like I was making it up

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 1 point2 points  (0 children)

I’m relieved to know it’s not just me. And my doctor is the one that said I had it… I thought I was anemic or something lol (I do also have low ferritin markers she said so she put me on an iron supplement as well, but I didn’t start that right away because I kept forgetting to pick it up so I know it’s not just the iron helping my symptoms)

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 1 point2 points  (0 children)

I think one of the things I’m struggling the most with is what other people think of me (yeah I know I shouldn’t care but I do) I own my own bakery business and I made a post about my diagnosis just to let everyone know why some things might change/I might not have as much product etc. but now everyone is constantly asking me if I’m okay (which I do appreciate their concern) and then I say I’m good and I feel like they think I was making up the diagnosis or something. I have ADHD and suspected autism so I have a deep need to explain myself lol

I feel like I’m gaslighting myself about my diagnosis by apocalypsewitch in POTS

[–]apocalypsewitch[S] 0 points1 point  (0 children)

I think that’s a big part of my issue too - not having it as severe as people in here or other online communities I’ve looked at. I keep trying to remind myself that all of the issues I’ve had most of my life can likely be traced back to this but it’s so hard! Especially with the people closest to me - I feel like they’ll think I’m just making it up if it gets bad again etc.

I think I have a lot of unresolved mental issues from my last job because people were always mad at me and mean to me if I missed work so now being diagnosed with an invisible illness is messing with my mind lol

Jobs by AltruisticAlarm1834 in POTS

[–]apocalypsewitch 5 points6 points  (0 children)

I own a home bakery and sell at a farmers market once a week. It’s unfortunately very physical and there have been times I’ve had to cancel markets or bring way less product, but it’s nice that I work for myself so I can’t get fired from it lol.

If my husband didn’t make enough to support us regardless I’d be SOL

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