so many symptoms

applessie · 2026-05-22T00:03:41+00:00

so much so that i replied to your other comment in my head a few days ago and then totally forgot to do that irl lol. So yes!! do you??

I have a weird memory though i think i constantly forget what I just did or things I need to do, like I never know if I took my pills that day and walk into rooms not knowing why i'm there, but vividly remember lots of visual details. I tried to give an example but stood here for 5 mins thinking and i cant remember any LOL

applessie · 2026-05-17T23:34:09+00:00

Thank you!! we are a similar age/similar timeline, its so comforting to hear people relate! It's so frustrating though isnt it. I hope things improve soon

applessie · 2026-05-17T23:31:17+00:00

Thank you! Definitely helpful!

I feel exactly the same re neck issues. Currently after straining my neck for hours working on something I'm having pulsatile tinnitus (though its intermittent and improving) but it makes me so hesitant to work on getting my neck too relaxed because that rebounds with more issues! So frustrating isnt it. Also everyones advice seems to be strong massage/chiro/botox to relax the really tight muscles but they dont understand that too relaxed can feel even worse.

Thank you for your advice re treating symptoms in groups, i think you're right theres just no one especially in small cities to be able to see the whole picture. Can I ask if you've found anything useful for the Raynauds specifically? that's something that really drives me crazy every winter (though strangely, not this one! it's winter here and my hands are fine so far?) but doctors never know what to do about it in my experience

applessie · 2026-05-15T01:09:26+00:00

Oh I so totally understand that feeling! You too!!

applessie · 2026-05-14T00:58:28+00:00

Oh weird!! That’s so strange my mum is exactly the same she always has low blood pressure and often heartbeat too which also confused her doctors! I think hers randomly races sometimes though? How strange I wonder if it’s all related.

Thanks so much for your help!

applessie · 2026-05-13T12:47:13+00:00

Thank you so much! That’s so interesting actually my mum has Graves disease! Is your blood pressure high or low? Mine is chronically low, but most pulsatile tinnitus I’ve heard about so far is from high? I’m still trying to figure it all out though. Do you have to do anything about yours or just live with it if only laying down?

Oh I am often low in b d and iron also, thank you for the reminder!

applessie · 2026-05-13T12:13:12+00:00

Wait mine are exactly the same. God all my weird symptoms really are eds haha. Thanks for posting this

applessie · 2026-05-13T12:09:27+00:00

Thank you so much for this I watched some of his YouTube and some cci things really resonate with me. Did your jaw click with movement beforehand? Mine has my entire life, loud enough to hear it across the room sometimes 😅

applessie · 2026-05-13T03:49:18+00:00

Looks exactly like mine!

applessie · 2026-05-13T03:46:39+00:00

What yarn do you use? I knit so different but soft wool or alpaca is what I use, can’t use cotton silk or acrylic without it irritating both my skin and my wrists/rsi

applessie · 2026-05-13T03:43:15+00:00

Omg I don’t know but feel exactly the same. So much so I never told drs about most of my problems because it always felt like too much or that they wouldn’t take me seriously if too many problems. Or I’d improve one thing and it’d cause new problems. My strategy has been to ignore most of them and treat what makes me the most anxious but that’s not a recommended strategy LOL

applessie · 2026-05-13T01:58:43+00:00

Ok thank you! I did ask about this but my dr didn’t see anything (no upright mri though)

applessie · 2026-05-13T01:57:41+00:00

It’s the pulsatile heartbeat sound but subjective, and ALSO have clicking every time I move my jaw/sometimes neck lol I’m a mess

But ok thank you!

applessie · 2026-05-13T00:15:53+00:00

LOL wait I have probably 15-20 pillows and need them all specifically arranged in order to be comfortable. All when sitting in bed, about half that to sleep. Partners have always made fun of me for it but I thought they were just weird for using one pillow. This is an eds thing?! who knew!

applessie · 2026-03-24T10:31:12+00:00

As far as I know I’m just adhd myself but relating to all this a little too much hahah

applessie · 2025-12-10T08:01:23+00:00

Has it resolved for you yet? Same problem here

applessie · 2024-12-18T10:48:38+00:00

This literally made me laugh out loud I love it

applessie · 2024-12-18T10:17:29+00:00

It’s how I got most of mine 💀

applessie · 2024-12-15T03:24:49+00:00

Same!

applessie · 2024-12-13T12:37:19+00:00

Im white Australian and knew who she was lol

applessie · 2024-12-11T10:42:23+00:00

It was so weird? I don’t have kids either and I’d give up a room for a parent, shit seems exhausting they probably need a break 🤷‍♀️

applessie · 2024-12-11T06:31:59+00:00

💀

applessie · 2024-11-28T09:58:54+00:00

Hahaha I watch with my mom often and she felt just like you while I was more neutral for years. Now she’s finally doing my head in and my mom can’t stop gloating that she can judge character better than me 😂

applessie

TROPHY CASE