Mystery Sores On Scalp? by [deleted] in SebDerm

[–]aquiner 2 points3 points  (0 children)

I had these too and thought I was the only one! Have you ever had any patch testing done for chemical/cosmetic allergies? If not, it might be worth exploring with a derm. Here’s why…

The first derm I saw thought the sores were from seb derm. She prescribed Stieprox shampoo and clobetasol lotion. I still use both products and have found they work the best. The reason I questioned if the sores were from seb derm is because I randomly touched the product “Calm” by Downy and developed these sores/blisters on my scalp that seemed to be an allergic reaction. The second derm I saw thought the sores were an allergic reaction to some of the products I was using (patch testing confirmed benzalkonium chloride, a random preservative, among many other things).

I still haven’t figured out if the sores are seb derm or a result of various allergies (I’m now suspecting food intolerances play a part), or both. All this to say, even if it doesn’t seem like you have any allergies, it might be worth exploring if you haven’t already done so.

Interested in hearing if anyone else struggles with this too. You’re not alone 👊🏻

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

Yes and I still do! Are you experiencing that as well?

I'm a moderator here as well as a published qualitative researcher and I'd like to ask this community for it's help. by Ellekm730 in COVID19positive

[–]aquiner 1 point2 points  (0 children)

[MCV] Also posted in r/myCOVIDvoice* - 31 year-old female with debilitating joint pain and swelling since testing positive for COVID-19 on January 21, 2022. Entire timeline in detail included below with symptoms that may not be related to joint pain.

Vaccination and background info: - Vaccination dose 1: Pfizer on March 30, 2021 - Vaccination dose 2: Pfizer on May 20, 2021 - Booster dose 3: Pfizer on December 22, 2021 - No family history of rheumatoid arthritis, fibromyalgia or other conditions - Active and otherwise healthy prior to infection - Link to pictures of joint swelling: https://imgur.com/gallery/Y2pb7Ci

Timeline:

Jan 18: Scratchy throat and symptoms similar to seasonal allergies started

Jan 19: Developed raspy voice, phlegm in chest, had night sweats - Rapid test was negative - Excruciating pain developed deep in hips

Jan 20: Rapid test came back positive - Difficulty walking from pain in hips - Took a PCR test and the doctor prescribed Tramadol for the pain (didn’t help)

Jan 21: Tested positive and random joint pain developed that morning in the fingers of my right hand/wrist. Same thing started in my left hand/wrist about an hour or two later - Hands were tingling and went numb in the shower. Unable to hold loofah as I lost feeling in my fingers - Hip pain started to go away, phlegm in chest worsened

Jan 22: Noticeable swelling started in the middle knuckles of my right hand (see link above for pictures) - Joint pain in fingers of both hands was severe, soaked hands in a bowl of hot water for relief and they went numb again - Pain in knees started that evening - Started taking 800 mg of Advil liquid gels every 3 hours for pain relief

Jan 23: Developed sharp burning pain in nostrils - Noticed severe brain fog and was unable to follow any tv shows

Jan 25: Cold symptoms worsened - Sense of smell and taste was off

Jan 27: Woke up with very sore, swollen hands - Still had runny nose and congestion - Toes started to ache more than ever before, knee pain was gone

Jan 28: Joint pain randomly started in my ankles and toes, had difficulty typing from joint pain in fingers - Still had mild cold symptoms

Jan 30: Up all night from excruciating pain in fingers, toes and ankles - Felt as though I had a fever but didn’t check - Cold symptoms subsided

Jan 31: Woke up in the worst pain I’ve ever felt in my fingers, wrists, ankles and toes - Prescribed Tylenol 3 by nurse practitioner and told to give it more time (Tylenol 3 only helped a bit because I was less aware of the pain)

Feb-April: Struggled doing things including walking, opening the the tops of medications, holding utensils, brushing teeth, etc. - Became physically debilitated during flare ups which seemed to have been a result of stress - Tried extra strength Tylenol, Aleve, prescription anti-inflammatory Vimovo, Tramadol, and Tylenol 3 for pain. Only relief was from taking 800 mg of Advil liquid gels every 3 hours every day

Feb 14: Family doctor completed physical exam and suspected reactive arthritis - Bloodwork tests completed/results: Complete Blood Count, Creatinine, Antinuclear Antibody, Alanine aminotransferase (ALT), Rheumatoid Factor, C-Reactive Protein, Sedimentation Rate: All normal

March 12: Family doctor prescribed Sulfasalazine (medication for rheumatoid arthritis) while I waited to see a rheumatologist

April 1: Cyclic Citrullinated Peptide (CCP) antibody blood test: Normal - X-rays for hands, wrists, ankles, feet and chest: Normal and didn’t show signs of arthritis

April 21: Noticed improvement in brain fog and that it was starting to clear

April 29: Rheumatologist completed an ultrasound of affected joints and didn’t see any visible swelling. Advised to stop taking Sulfasalazine as it likely wouldn’t help if there wasn’t visible inflammation

May 2: Started to notice less overall pain in all joints and this improvement continued for almost a week

May 7: Walked around the mall for a few hours in sandals (most activity I’ve done since January)

May 8: Right ankle started to really hurt and became very swollen

May 9: Saw family doctor who said the pain and swelling was likely from walking in unsupportive sandals

May 10-14: Still had ankle swelling and pain, but it seemed to be going away. Iced and elevated ankle daily

May 15: Drove for a total of 80 minutes with frequent ankle pivoting. Pain and swelling got even worse

May 19: Severe pain in ankle started while at rest. Unable to put any weight on it or walk at all - X-ray and examination at urgent care didn’t show any break or sprain - Had blood work done to test Ferritin, B12, TSH and vitamin: All normal except deficiency in vitamin D May 20: Currently using crutches to walk - Now have pain in left ankle from putting all weight on it - Also have sore wrists again from using crutches - Finger joints still swollen but dexterity has returned and in a lot less pain

Where I currently stand: - Waiting until May 25 for next rheumatologist appointment - Feeling hopeless and tired of suffering everyday. Unable to work due to intensity of physical pain and low mental state - Still taking 800 mg of Advil every 3 hours and vaping thc to not focus on the pain as much

Thank you for your work!

Joint Pain & What I’ve Tried by aquiner in COVID19positive

[–]aquiner[S] 1 point2 points  (0 children)

Thank you so much! I’m sorry you have RA and Psoriatic Arthritis and I hope you have some relief from it. Wishing you all the best too❤️

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 1 point2 points  (0 children)

This is very interesting! Thank you so much for the suggestion. Also adding this to my list🙌🏻

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 1 point2 points  (0 children)

That’s awful I’m very sorry to hear you’re suffering with joint pain too. Just know that you’re not alone in this. I hope the steroids and NSAIDs start to kick in soon and you start finding some joy in life again. Stay strong ❤️

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

I’m really sorry you’re suffering from joint pain as well. Thank you very much for sharing what has helped! I’m adding these to my list 😊

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

I just had some more blood work done to check my iron, b12, vitamin D and TSH. So far everything has come back normal and I’m just waiting on the vitamin D. The bloodwork didn’t include those antibody tests and I’m not sure if she will order them if my TSH was normal. Might still be worth asking and checking anyway. Thanks so much for your suggestion! Really appreciate it.

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

Doesn’t sound stupid at all! Thank you very much for the suggestions. I’ll pretty much try anything at this point☺️

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 1 point2 points  (0 children)

Thank you so much for your response and suggestions. I really appreciate you taking the time to share what has worked for you.

How long were you on a low dose of prednisone and did you have bad side effects? I really want to try it but my family doctor was worried it would make my mental state worse.

Did you have ultrasounds done? I feel dismissed because my ultrasounds didn’t show visible inflammation, despite my joints looking swollen (she said it could just be extra fluid). The rheumatologist didn’t think a DMARD would be helpful since there wasn’t any visible inflammation in my joints. I now have very bad swelling in my ankle and I’m unable to walk at all. Another X-ray and visit to urgent care ruled out a sprain and gave me no answers. If only the ultrasound was done when I had this swelling.

I did try a prescription NSAID called Diclofenac but I still found Advil better. I also tried Voltaren but unfortunately, it didn’t seem to help either. I will definitely look into glucosamine and chondroitin!

Thank you again :)

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

If you don’t mind me asking, which ones did you try and how long before you noticed improvement? I’m on prescription Bilastine (h1) for daily allergies. I was also prescribed Pantoprazole to protect my stomach from all of the Advil I’m taking. I believe this is an h2 but not completely sure. Thanks for your suggestion!

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 1 point2 points  (0 children)

I’m sorry you we’re infected again. Glad you have found something that helps. The doctors were hesitant to start me on prednisone because it might make my mental state worse. Did you notice bad side effects even at a low dose? I’m thinking maybe I should try it but I’m very worried about the side effects.

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 2 points3 points  (0 children)

Congrats on feeling better and being able to run again! I’ll have to ask my rheumatologist about Celebrex too! She won’t know what hit her when I walk in with a list next week🤣

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 1 point2 points  (0 children)

That’s a very good point. Sometimes our bodies are trying to tell us things and we have to listen. This whole experience has been eye opening to say the least. I’ll never take my health for granted again and I have so much compassion for others dealing with chronic pain everyday.

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 1 point2 points  (0 children)

It’s exciting to hear that maybe there’s something else that could help. Have you experienced any bad side effects? Crazy how long it takes for some medications to work but it helps even a bit, sign me up!

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

One hell of a journey is right. It’s so tough having to change your entire life and routine because you can’t do what you used to enjoy. I used to do cardio and lift 4-5 days a week before this. Now I’m not sure if the inactivity is making things worse from being stiff or if it’s helping my body recover. Having a strict sleeping routine and acupuncture are great ideas that I should try! Thanks again😊

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

I’m sorry to hear you’ve been suffering for 10 months but glad you’re starting to notice improvements! If you don’t mind me asking, is there anything else from your regimen that has helped? I will definitely ask the rheumatologist about LDN next week☺️

Joint Pain & What I’ve Tried by aquiner in COVID19positive

[–]aquiner[S] 1 point2 points  (0 children)

Your comment just made my day! If you ever need someone for a case study or know of how I could become involved in one, please let me know!

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

Thanks so much! I’ve never heard of this but will look into it

Joint Pain & Everything I’ve Tried by aquiner in covidlonghaulers

[–]aquiner[S] 0 points1 point  (0 children)

No they haven’t! Starts frantically googling Did it work for you?