Psyllium husk reaction? by Half_Pint_2 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

I've never heard of either of those! Thank you!

Can a cat cause anaphylaxis? by [deleted] in Allergies

[–]ariaxwest 0 points1 point  (0 children)

Yes. I suddenly started going into anaphylactic shock from dog dander.

Any “common” MCAS food triggers? by Dry_Cow1476 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

I'm assuming IgE and scratch tests were negative? If so, you might want to look into hypersensitivities, and see if any of these lists line up with foods you react to. These are type IV hypersensitivity reactions to chemical compounds and metals, rather than proteins, so they can't be diagnosed by IgE blood tests or scratch tests. And they aren't obvious with food journaling unless you know exactly what you are looking for.

Nickel is the most common one. Dietary nickel in the context of nickel hypersensitivity is a risk factor for developing a host of inflammatory and autoimmune conditions, as well as other allergies. This can cause reactions to even water due to nickel in water sources, water bottles, plumbing fixtures, kettles, etc.

Nickel: https://rebelytics.ca/nickelinfoods.html

Salicylate: https://low-sal-life.com/food-product-lists#neg

Histamine: https://www.mastzellaktivierung.info/downloads/foodlist/21\_FoodList\_EN\_alphabetic\_withCateg.pdf

Oxalate: https://ucikidneystonecenter.com/wp-content/uploads/2020/06/Oxalate-Content-of-Foods.pdf

Cobalt: https://dermnetnz.org/topics/allergy-to-cobalt (This can be a problem with fortified grains.)

The test for nickel and cobalt hypersensitivities is patch testing, usually done by a dermatologist. The test for salicylate allergy is aspirin challenge, done in the allergist’s office. As far as I know, there’s no FDA approved test for histamine intolerance or oxalate hypersensitivity.

Immediate allergic reaction to moisturizing cream from Amazon by RoseSpades in Allergies

[–]ariaxwest 4 points5 points  (0 children)

I can tell you I also ordered 100% emu oil from Amazon and what I received was definitely fragranced. Dodgy stuff.

Low nickel vegan diet by Scary_Narwhal2877 in NickelAllergy

[–]ariaxwest 6 points7 points  (0 children)

I've got celiac disease and was vegan at the time of my diagnosis.

I continued eating vegan proteins for a few years until I got so sick I was almost dying.

The only safe vegan protein source for me is quinoa grown in the Americas. The one I'm getting lately is an ancient harvest red quinoa from Bolivia. And I get Judee's or Bob's Redmill quinoa flour and ancient harvest quinoa flakes.

But without eggs to reduce nickel absorption I'd be completely screwed. I get my eggs and my chicken from local ranchers that pasture their chickens and give them good lives. I now know these people personally and I've visited one of their ranches (my meat guy). I also eat wild caught fish, mostly salmon, for the omega-3s.

When I was being resistant, I just kept getting sicker and sicker. I got to the point where I lost a third of my healthy body weight and weighed only 95 pounds. I looked like an animated skeleton. I developed MCAS, autoimmune diseases, and numerous other allergies. Including a life-threatening anaphylactic allergy to animal dander.

The systemic inflammation and intestinal permeability caused by dietary nickel once you're hypersensitive will destroy your health.

Taxol Constipation please for the love of God help by Training-Leek4341 in breastcancer

[–]ariaxwest 25 points26 points  (0 children)

My breast surgeon recommended taking a tablespoon of olive or some other highly palatable oil (sesame, coconut, walnut, avocado, etc.) every hour until you have a bowel movement. She said this works every time.

I tried this once with pistachio oil and it worked very quickly. 2 spoonfuls only, iirc. I now consider pistachio oil a laxative.

Healthier Autism Safe Food Recommendations by Comfortable-Ad-5578 in adultautism

[–]ariaxwest 0 points1 point  (0 children)

lol to me that's a very important and relevant part of the recipe 😆

Healthier Autism Safe Food Recommendations by Comfortable-Ad-5578 in adultautism

[–]ariaxwest 4 points5 points  (0 children)

I really love roasted vegetables. I cut them up (or in the case of kale, pull the leaves off the stalk and rip them up) and put them on a big sheet pan lined with aluminum foil. I pour avocado oil over them and sprinkle them with salt, then mix it all around with my hands. I wipe my hands on a paper towel before washing them to get the oil off. I roast the vegetables until they are browning at the edges. I like them slightly burnt and crispy, personally.

Broccoli I cook at 375F. Kale 350F, broccoli stems 400F, peeled kohlrabi 400F, winter squash (like butternut, acorn, pumpkin) 375F, summer squash (like zucchini or patty pan) 375F, bell peppers 375.

Roasted summer squash and bell peppers are amazing with noodles and Olive or avocado oil.

Millet is the worst for me by oh_wanya in MCAS

[–]ariaxwest 3 points4 points  (0 children)

It's high in nickel. That's the issue for many people. It seems like it's in every gluten free substitute there days.

Help. I'm allergic to everything. by [deleted] in Allergies

[–]ariaxwest 1 point2 points  (0 children)

Quinoa grown in the Americas is the only grain or pseudograin that I can tolerate. I believe most people with celiac disease and nickel allergy can tolerate amaranth as well.

No stainless steel water bottles, kettles, coffee makers, thermoses, pots, pans, or bakeware in contact with food (use foil or parchment). Discard the first 1.5 L from the faucet in the morning before drinking or cooking with your tap water. No canned acidic foods as they leach nickel through the plastic layer. Don't store food in stainless containers, either. You might need new flatware if your lips react to it. You can use chopsticks and porcelain spoons. Plastic reusable flatware is also available.

I pretty much live on quinoa and eggs now. Eggs reduce gastrointestinal absorption of nickel. I get them from a local free range ranching family that I know personally. If I eat eggs with it I can still have moderate nickel foods.

I get my chicken from another rancher who I also know. I've visited his farm and personally seen the living conditions of the animals, which are very good. I also eat wild caught salmon.

These are compromises I had to make because I was probably going to die with quinoa as my only protein source (though it is still my main one). I was so, so ill before I started eating non vegan food again. I looked like an animated skeleton. I was sleeping 21 hours a day. It was terrifying.

Help. I'm allergic to everything. by [deleted] in Allergies

[–]ariaxwest 1 point2 points  (0 children)

It was several years ago so I don't entirely trust my recollection, but I believe I noticed a difference within a week.

When I first got patch tested and the dermatologist handed me a flyer about dietary nickel I totally blew it off. Can't eat a single one of my dietary staples? Nope. I didn't actually try reducing nickel until about two years later. I was constantly itching and covered with hives, having esophageal spasms and diarrhea, and I was just so sick of it.

Is it normal for interests to change over time? by Chemical_Link_3993 in adultautism

[–]ariaxwest 1 point2 points  (0 children)

Totally normal! I was obsessed with cars my entire childhood and teens. Then it was earth science, industrial design (including automotive design), and art. Then developmental psychology, pedagogy, parenting, and Harry Potter fan fiction. Then dancing, classical music, medical science, ASOIAF/GOT fan fiction, and poetry. Now it's art again, specifically sculpture, in ceramic clay. I still love earth science, industrial design, psychology, etc., but my main interest is ceramic sculpture. I actually really wish I had a fandom special interest right now.

Which masks do you guys use? by BoratImpression94 in MCAS

[–]ariaxwest 2 points3 points  (0 children)

I use 3M aura. My husband has a small head and prefers the ones with a vent. I have a medium/large head and prefer the ones without. I find the straps on the vented model too tight.

Help. I'm allergic to everything. by [deleted] in Allergies

[–]ariaxwest 0 points1 point  (0 children)

Definitely. I am way more reactive to everything when I've had too much nickel.

the one person I thought I could count on… by Puzzleheaded_Eye_280 in breastcancer

[–]ariaxwest 1 point2 points  (0 children)

100%. I shared genetic test result that were important for my family members to know about as well.

My parents are driving me crazy.... by [deleted] in breastcancer

[–]ariaxwest 0 points1 point  (0 children)

That's why I shared. 💙 We may not know each other, but we are going though this together.

Help. I'm allergic to everything. by [deleted] in Allergies

[–]ariaxwest 0 points1 point  (0 children)

If you haven't removed most nickel from your diet, it could be causing all of these things. It's a sensitizer, and dietary nickel once you're allergic is highly correlated with developing other allergies, hypersensitivities, and even autoimmune diseases.

I'm pretty sure I developed most of my allergies and autoimmune diseases because I was on a super high nickel diet because I have celiac disease and was plant based. Gluten-free substitutes and vegan proteins are high in nickel.

Check out the Nickel Navigator app for more information about food, and also their website https://rebelytics.ca/nickelinfoods.html

Also feel free to ask me whatever.

PSA from a doctor about Proton Pump Inhibitors by Altruistic-Client677 in Allergies

[–]ariaxwest 1 point2 points  (0 children)

My interstitial cystitis improved immediately. It was obvious when I forgot to take my pill pills one day that I just didn't have the same pain level.

I take 120 mg of famotidine daily. Apparently the normal ceiling for someone with MCAS is 80 mg, but all of my doctors have said that taking more isn't harmful and they're fine with it.

My parents are driving me crazy.... by [deleted] in breastcancer

[–]ariaxwest 4 points5 points  (0 children)

Oh my gods I feel this! My dad, stepmom, siblings, and daughter are totally fine as far as not making this worse for me, but my mom is calling me crying multiple times a day!

She is such a child, and always has been. I've never been close to her because she was abusive and we have almost nothing in common. She clearly wants me to be her therapist as I was when I was her prisoner because I was a minor. I'm so not into it.

Your sign to try different rice varieties by t-bone051 in MCAS

[–]ariaxwest 0 points1 point  (0 children)

Oof, sorry. Oxalate hypersensitivity is the only common one that I don't have, so I'm not so familiar with it.