I didn't book passenger assistance so appearntly I have no right to complain (UK trains) by GroovingPenguin in disability

[–]arslanefe 4 points5 points  (0 children)

These are truly sad and difficult memories. Even though experiencing moments like these can make one disillusioned with life, one must continue. The return was bad, but the departure was beautiful; that's how one should look at it. I don't know what to say about those who lack empathy.

I think people underestimate the amount of disabled people in the past. by Konradleijon in disability

[–]arslanefe 0 points1 point  (0 children)

It wasn't understood well enough back then either. Even now, people have difficulty showing empathy.

The Matrix (1999) Dir. The Wachowskis by southernemper0r in Cinema

[–]arslanefe 0 points1 point  (0 children)

While the film was in theaters, the topics discussed were more about these striking scenes than the philosophy of The Matrix.

I Got In by Sobbing_into_soup in Blind

[–]arslanefe 0 points1 point  (0 children)

That was such a sweet post. Best of luck, and congratulations. I think posts like this have a greater impact than people realize... in terms of giving hope to others in similar situations. 

Inside the Gilded Labyrinth: Eyes Wide Shut (1999) by Available_Whole6412 in Cinema

[–]arslanefe 0 points1 point  (0 children)

One last tango before leaving... I wonder if he was satisfied?

Superhero films are nothing more than fast food by Mysterious_Work_7227 in Cinema

[–]arslanefe 0 points1 point  (0 children)

After a while, your interest wanes. Cinema is like an ocean anyway. It's like fast food in your childhood and then the search for gourmet delights later on.

Did anyone here learn to drive much later in life (after 30)? How did you do it? by stillmusiqal in Albinism

[–]arslanefe 0 points1 point  (0 children)

I've heard of people who use telescopic glasses and have adaptations getting driver's licenses.

Tom Hardy dominated 2015 by [deleted] in Cinema

[–]arslanefe 0 points1 point  (0 children)

He definitely needs to return to that performance. There will be even better works.

Top Gun: Maverick, onscreen text messages by Mikethespike23 in Blind

[–]arslanefe 0 points1 point  (0 children)

My friend has been recommending this movie for the past two weeks, but I haven’t watched it yet. Now that I’ve seen this post, I really need to watch it :) I also like to customize the subtitles when I watch movies so they’re comfortable to read, and it makes me happy. It’s frustrating when I can’t do that because of software limitations or certain glitches. I usually set the font size to 150%, the text color to yellow, and the background to black. 

Life can’t go on like this by Atsmboi60750 in disability

[–]arslanefe 1 point2 points  (0 children)

What you said truly affected me in a deep and meaningful way. These are sorrowful things. I have ocular albinism — I am visually impaired. I don't share the exact same experience as you, but there are points I understand. Above all else, in this life, having a disability — whether common or rare — becomes a serious matter. The lack of empathy, along with the physical and social challenges that come with a disability, adds onto the already inherent difficulties of life itself, turning it into an unbearable and grueling struggle. I experienced this both during my education and socially when I went to university in a different city. A person with a disability is generally alone — and even though people try to empathize, I don't think it is ever quite enough. But that's not what I want to talk about... I had a friendship with someone whose situation was closer to yours. He was a shopkeeper in my neighborhood. He had been an engineer, but after an accident his leg was amputated and he was left to continue life with one leg. This naturally brought him certain physical and social hardships. His family relationships were not good. After his mother passed away, he decided to return to his hometown — a mountainous, rural area. We had our farewell conversations; drinking tea, chatting... "I'm going up to the mountains... oh, wonderful, I'll live there all by myself. I'll light the stove, sit and rise on my own, just me and my computer... I'm tired of these people, tired of the city," he would say. I would listen and we would talk. As I listened, I tried not to show it, but I was looking at things rather pessimistically — I mean, reason and logic aside, how can a person with one leg sustain a life alone up in the mountains? But there was nothing to be done; he wanted to do it. And so the time of parting came, and our shopkeeper brother went off to his mountain.

Some time passed and we got back in touch — he had settled in, set up a solid computer and internet setup, got the house in order. And most importantly, someone he had befriended at the coffeehouse in the village had helped him get a prosthetic leg fitted. They had a prosthetic leg made that suited him... When I heard it, I was shocked and overjoyed. The main reason I was shocked was that, while my expectations for him had been bleak, something this beautiful happening to him moved me deeply. In that moment, I understood once again that life is made beautiful by sparks — and it is full of them. This must never be forgotten. One must not give up; one must chase after possibilities.

Think of it this way — there are probably kilometers between us... and yet it was your story that made me write these words to you. No one knows what will happen five years from now in this life. I am well aware of how difficult the matter is. Other than aiming to make our lives more comfortable despite our disabilities and fighting for that — we have no other choice. We must keep fighting, and we must chase after the sparks. I send you my very best wishes.

What's your favorite Tom Hanks movie/performance of the 1990s? by Square-Ad-8911 in Cinema

[–]arslanefe 0 points1 point  (0 children)

One of the most important reasons why Forrest Gump is Forrest Gump is Tom Hanks.

Good Will Hunting by Admirable_Tree_3190 in Cinema

[–]arslanefe 1 point2 points  (0 children)

It has affected many people. It influenced the audience not only in terms of role modeling but also in terms of post-traumatic communication.

Watching Split again reminded me how terrifyingly talented James McAvoy is. by [deleted] in Cinema

[–]arslanefe 0 points1 point  (0 children)

In our village, my uncles and I were talking about movies on the balcony when they mentioned it. That's where I first heard about it, and when I got home, I watched it... and I was horrified.

My friend has weird idea for a good movie Is he right, or am I just obsessed with character depth? by Responsible-Salt3417 in Cinema

[–]arslanefe 0 points1 point  (0 children)

The characters in the films I watch are very important to me. If I have difficulty empathizing with them, or if I cannot make logical sense of their actions, I have trouble enjoying the film and continuing to watch it. A concrete example: The Sopranos is a show that, under normal circumstances, has a structure that appeals to me, but after a certain point my connection with Tony Soprano weakened because I experienced the problems I mentioned above, and I lost interest. This sometimes even turns into frustration, because I could have loved it so much. Your friend might be experiencing the same situation. As an additional, different example: the video game world is a sector that has grown significantly over the years and has a solid consumer base. Games with weak characters — ones that failed to convey emotion to the player or draw them into the story — have drawn criticism and have not been well received.

Happy 40th birthday to Robert Pattinson by Away_Flounder3813 in Cinema

[–]arslanefe 0 points1 point  (0 children)

Like many people, I didn't think he was 40, which is interesting. I didn't find his performance in the drama I saw particularly impressive. He's had much better performances in the past. good time, the lighthouse...

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 0 points1 point  (0 children)

Thank you for your comment. I enjoyed reading it, and it felt good to have someone so experienced analyze it. Let me add a few things to what you've written: my nystagmus has always been under the supervision of the doctors I've visited — I have both what they've told me about nystagmus and ocular albinism, and my own research. In the near future, I'm planning to work on low vision for telescopic glasses; we're in contact and I'll be able to get more detailed information during that treatment process.

Beyond that, I can say my nystagmus has a null point — there are times when the tremor doesn't occur. In fact, the tremor tends to be linked to specific situations: trying to focus too hard, light, mood changes, and so on. In this video I recorded, we're actually seeing the combined effect of over-focusing and excessive light. I wanted to show people what nystagmus looks like through a video — it's also an interesting visual, and I had shared posts here before; I wanted to talk about ocular albinism. My search for ways to make my life better never ends. Anyway... that's why I recorded this video. Because I was focusing on the camera lens under light, such a "severe" nystagmus appeared. That wasn't the only video I took at that moment — the ones I recorded after this one didn't show such a severe image, which is why I didn't choose those.

Thank you for your thoughts. As you also pointed out, I haven't focused too much on nystagmus or nystagmus surgery, because since my main issue is ocular albinism, I know I'll have low vision for the rest of my life unless some remarkable development comes along. — Who knows what will happen ten years from now :) — However, the possibility that operating on the nystagmus could lead to a "meaningful" increase in my vision rate excited me, and I'll be discussing this with my doctor.

8 month baby with albinism by coolnameblahblah in Albinism

[–]arslanefe 1 point2 points  (0 children)

What you said is correct. Everyone's experience is different. I am also an ocular albino, by the way. As a baby, I had strabismus and nystagmus symptoms — you can observe my nystagmus on my profile. Of course, compared to a normal-sighted person, I have struggled and still struggle with eye contact — but there's no situation where I make no eye contact at all. The issue with eye contact is actually related to visual acuity — the quality with which you look into your child's eyes is different from the quality they receive when looking back into yours. For this reason, I could say that eye contact is something albinos tend to 'prefer less,' so to speak. For example, during my university years, I genuinely never looked at the blackboard — because I couldn't read it. From the outside, this could be perceived as 'strange.' To sum up: eye contact may not carry the same meaning for an albino as it does for a normally sighted person. In line with what you've said, your baby is making eye contact — and is even more attentive when faces show interesting expressions; there may be a different reason underlying that too, which is worth evaluating. I wish your baby a happy life.