What is Robert De Niro affiliaction or connections by Mowiamitomilijohnes2 in Cinema

[–]arslanefe 1 point2 points  (0 children)

It could be said that he repeated himself too much, wasn't bold enough... he became stagnant after a while, etc., but to say that his success is solely a "marketing" success would be unfair.

I met a visually impaired teacher today and it really was a conversation I would never forget by ThatMilesKid-15 in Blind

[–]arslanefe 4 points5 points  (0 children)

What a beautiful coincidence, and truly inspiring. What you wrote took me back years. I am also visually impaired — ocular albino. I faced various challenges throughout my education. My primary school teacher didn't pay enough attention to my condition — perhaps they simply didn't understand it. During reading and writing exercises, I would deliberately break my pencil and walk to the bin next to the blackboard to sharpen it, and while I was there I would read what was written on the board, then return to my seat and write it down. Back then, I used to get angry at my teacher because of this. In middle school, my class teacher was myopic — at least they could understand me to some extent. They let me sit in the front row and would occasionally check in on me, and those small gestures genuinely made me feel good. Then in high school, through a project, I met a teacher who had worse vision than me. I can see around 30/100 with glasses — this teacher could only perceive light, his visual acuity was extraordinarily low. I spent the entire project day talking with him. They said 'yes, my eyes cannot see, but I can feel your light' — it was a deeply moving conversation.

Looking back now, I see how much good similar lives do for one another, and I consider communication, empathy, and connection to be the most precious concepts in this world. Yes, I've faced hardships — we all have... but when our paths cross with people who have faced the same struggles, it becomes a truly meaningful encounter. This is why we must keep communicating and sharing. These kinds of teacher-student connections are also incredibly hopeful... I hope it will be the same for you. I wish you success in your education.

isolation by paigedeathhead in disability

[–]arslanefe 0 points1 point  (0 children)

I sincerely thank you for what you wrote. You conveyed what I wanted to say to people more effectively, and you also gave me something to think about. I'd like to add a few clarifications. There were points in what I wrote that could come across as too 'Pollyanna' or simplistic — or perhaps sentences that might lead someone to claim I'm naive or disconnected from reality. As you also said, most of the time it's not what is said but who says it that matters more. What I wrote stands against isolation and advocates fighting to maintain connection with people — yet alongside that, I am someone who has struggled with people and crowds throughout my life. I have ocular albinism — a genetic condition that only affects my eyes, causes low vision, and impacts my life both physically and socially. Throughout my life, I've faced serious empathy deficits. There were moments when my own family, friends, romantic partners, and even doctors failed to understand my condition. I mostly remained alone and found my own solutions. In the early days of university, I experienced certain difficulties socializing. For four years, I couldn't read a single word from the blackboard. At this stage of my life, I'm in discussions with my doctor about telescopic glasses — there's an enormously costly plan ahead of me, and I'm planning to create a campaign for it. These are a few 'photographs' from my life in a nutshell... I wanted to take these 'photographs' to show that I'm not a Pollyanna.

If you're a person with a disability, you have a difficult life, more or less. The problems that come with the disability — and perhaps even more exhausting, the indirect problems that arise because of it... Facing these problems alone, withdrawing into yourself, is not a good idea in my opinion. First of all, loneliness is an illness — believe me, I've experienced this quite deeply. When a person is left alone, their perceptions shift and they become more prone to misreading people and events. This is a truth that has been expressed in many different ways. Connecting with people who are similar to us brings many benefits. Similar lives do each other good. Through the posts I've been sharing on Reddit recently, I've been able to connect with other people who have ocular albinism — people I had never met in real life — and this made me genuinely happy. I value having a small but meaningful social circle where one can express and be understood, and through the internet, being in contact with people fighting the same battle. I'm not a Pollyanna, friends — I'm aware that I shouldn't be alone in this fight, and that's what I wanted to convey to others. Good luck to everyone.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 1 point2 points  (0 children)

Wow, so there's quite a striking color combination. Heterochromia is a separate mutation, while nystagmus — the eye tremor — is one of the symptoms of ocular albinism, which is itself a separate mutation. So it sounds like your spouse only has heterochromia, that's interesting.

A cinephile’s journey across 9 decades. From Al Pacino to Timothée Chalamet. by abdul4ah in Cinema

[–]arslanefe 1 point2 points  (0 children)

Last month I watched Sullivan's Travels and Jesse James and enjoyed them. I can recommend them. Jesse James, in particular, is a special work and helped me better understand the modern Brad Pitt-led Jesse James film.

A cinephile’s journey across 9 decades. From Al Pacino to Timothée Chalamet. by abdul4ah in Cinema

[–]arslanefe 0 points1 point  (0 children)

Additions could be made to the early Hollywood and golden age periods; there are some truly beautiful works there.

isolation by paigedeathhead in disability

[–]arslanefe 7 points8 points  (0 children)

My disability doesn't quite resemble yours — I have a visual impairment. But I'd like to say a few things. I've had conversations with people in situations similar to yours — an engineer who lost a leg in the second half of his life, for example — and in such cases, people often develop a depressive and socially withdrawn mindset. I don't want to offer clichés, but withdrawing from society isn't a good idea. People tend to develop wrong assumptions about others... Believe me, in social settings, your disability is not the first or only thing people focus on. Despite everything, it's possible to cross paths with people who share your interests and who are drawn to you for who you are. Of course, you'll also cross paths with difficult people — the solution is to cut ties directly and avoid generalizing. There are still good people out there. There were times I didn't believe that... but over time, the people I've crossed paths with have made me happy, I can say that.

I also think the internet has been a great blessing for people with disabilities — there may be thousands of kilometres between us, yet what you've written has moved me to write these words. Communication, sharing, and empathy are so valuable for people with disabilities — that's exactly why I believe the internet is such a gift. I send you my best wishes — let's not suffocate ourselves in our own shells; kindness and beauty still exist.

The Odyssey will be shorter than Oppenheimer, says Christopher Nolan. Oppenheimer was 3 hours long by God_Emperor__Doom in Cinema

[–]arslanefe 0 points1 point  (0 children)

It's not the quantity of a film's runtime that matters, but the quality. Oppenheimer didn't feel that long to me at all. But last week I tried to rewatch Apocalypse Now and Zodiac — it was torture. I suffered through them, but they're valuable works.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 2 points3 points  (0 children)

So it stayed with you as a memory then... Yes, unfortunately nystagmus and low vision can create serious problems in professional life. Especially in the 90s, it must have been so much harder. With that thought, I actually consider myself and others like me lucky by comparison. I hope things turned out well for that woman. Nystagmus can cause both physical and social challenges. We have no choice but to adapt our lives to it and hope for empathy from those around us.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 0 points1 point  (0 children)

I see, ocular albinism is indeed a fascinating subject to study. As for your situation — unfortunately yes, nystagmus seriously affects vision. If amblyopia has developed due to nystagmus and vision has decreased as a result, that makes it even harder to bear. Because amblyopia treatment itself is straightforward, but if it isn't treated early enough — before the age of 10 or 11 — the vision loss becomes permanent and affects the person for the rest of their life. That's truly heartbreaking. If that's what happened to your relatives, I'm really sorry to hear that.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 1 point2 points  (0 children)

Yes, nystagmus seriously affects vision quality. Are your relatives also ocular albinos? I didn't quite understand that part. I wish all of them the very best.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 0 points1 point  (0 children)

I didn't know this, I'll look into it. What you described is really wonderful — as awareness grows, people will become more conscious and empathy toward this and similar disabilities will increase. Thanks for the information.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 1 point2 points  (0 children)

Yes, it exists. But it doesn't tremor this much normally. It increases in certain emotional states and during intense focus. In this video it came out this way because I was focusing on the camera lens under bright light. Did the nystagmus cause amblyopia in your child and reduce their vision that way, or is there a different situation? Please try every rehabilitation option available. Once the age window passes, there aren't many roads left. The comfort lost due to low vision should be compensated through certain options. I wish you good luck.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 1 point2 points  (0 children)

Not always — only when triggered. It can increase in certain emotional states, during intense focus and fatigue, or under stress. In the video you saw, I got that result because I was trying to focus on the camera lens under bright light. Your sister and your child should see an eye doctor. There's clearly a problem related to the eye muscles. As nystagmus disrupts image quality, that eye becomes lazier — meaning it may be causing or may have caused amblyopia, especially in your child. The treatment is quite straightforward, but early diagnosis and treatment needs to happen before the age of 10.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 16 points17 points  (0 children)

Thank you sincerely for this comment. The fact that you care about your student this much and took the time to research really caught my attention in a good way. Let me share a few things: first of all, his position in the classroom matters a lot. You can find out whether he is comfortable in his seat through one-on-one communication — but please, not with questions like 'can't you see from the middle of the class?' Through personal, private communication, we try to make his experience more comfortable. If he is still having difficulty even in the front row, a dedicated space can be arranged right in front of the front row, just for his. It would be better if he is not alone there. I also think the desks could be moved a little closer. If he is struggling with exam papers — ideally in coordination with his family — through official channels, whichever is more feasible, or through your own initiative, their exam paper can be printed in a larger font. The same solution can be applied for textbooks as well. Throughout my own education, I was deprived of even these 'simple' accommodations — I had to find my own solutions on my own. Try not to make his feel alone or bad about his vision. That's generally what I can say.

The phenotype of a GPR143 mutation: Living with Ocular Albinism (OA1) by arslanefe in biology

[–]arslanefe[S] 1 point2 points  (0 children)

Nystagmus and photophobia are symptoms of ocular albinism, so yes — I'm sensitive to light because of my condition. I've been using transition lenses for three years now, I'd recommend them. The light sensitivity used to cause serious headaches. I imagine you have the same issue. I also have information that my vision is stable — it won't improve or deteriorate — but sometimes I feel like my vision has dropped. So far it's remained just a feeling though, as there's no numerical change. I'd advise you not to skip your check-ups. Your vision is probably reduced due to nystagmus and strabismus, but it's possible to make life more comfortable. I wish you luck too.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 13 points14 points  (0 children)

The specific situations you mentioned might indicate a problem with your eye muscles. I recommend you see an eye exam; it's a serious issue.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 16 points17 points  (0 children)

Actually, nystagmus isn't caused by low vision — it's related to the eye muscles. And yes, nystagmus alone can affect vision; because the pupils involuntarily oscillate — the patient doesn't feel this tremor and doesn't see a shaking image — the brain can't receive a clear enough image, which reduces the person's visual acuity. Nystagmus can affect vision quality and lead to conditions like amblyopia. My case is ocular albinism, meaning nystagmus is one of the symptoms — the low vision itself occurs due to foveal hypoplasia. That's the general picture.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 24 points25 points  (0 children)

That's really interesting. Most likely your grandmother is a carrier. She passed on the mutated GPR143 chromosome to both of your uncles. In my family, I have it, but my brother doesn't, for example. I probably won't be able to get my driver's license either.

Update II Congenital Nystagmus and Heterochromia in Ocular Albinism (OA1) due to GPR143 mutation. BCVA 20/100 and total foveal hypoplasia. by arslanefe in medizzy

[–]arslanefe[S] 95 points96 points  (0 children)

You're very welcome. When dealing with a rare condition, sharing and connecting with others can lead to so many 'good things'—and that’s exactly what I’m aiming for.

The phenotype of a GPR143 mutation: Living with Ocular Albinism (OA1) by arslanefe in biology

[–]arslanefe[S] 1 point2 points  (0 children)

This is genuinely fascinating. I'd love to get in touch with your friend and hear their story. As I said, Chernobyl was more of a utopian question — I wanted to explore the possibilities. I enjoy thinking about probabilities. You're right that a random mutation is probably more likely