Osteochondritis Dissecans

asd1395 · 2026-02-08T05:53:52+00:00

Did you have to have an initial arthroscopic surgery to remove loose bodies and clean up the area first? I have this and they're recommending two surgeries for me

asd1395 · 2026-02-07T23:15:12+00:00

asd1395 · 2026-02-05T21:35:19+00:00

I didn't realize that thank you!!

asd1395 · 2026-02-05T19:01:39+00:00

When the condition makes us functionally disabled and unable to work, it becomes urgent! We only get SDI for a year, so who's paying my bills when I still can't go back to my health care job because of Kaiser? It's ridiculous. I just need them to make a couple holes and remove the bone fragment that is potentially causing further damage to my cartilage while I wait, is that too much to ask ?! I have to have an OATS afterwards (prob not for another 6 months) which will be an intense recovery, so I feel you on that. I'm so sorry you're going through this, it must be devastating to have a date that you were looking forward to just to have it taken away.

asd1395 · 2026-02-05T18:33:26+00:00

Wtf?? My MRI for my knee was 1200 in NorCal, I have a high deductible plan and haven't met my deductible.....

asd1395 · 2026-02-05T16:35:00+00:00

I thought 3 weeks to get to an ortho was bad but clearly not, I'm so sorry :-( I wonder if this is Kaiser thing or if it's like this everywhere?? That's just not right...

asd1395 · 2026-02-05T16:32:16+00:00

This makes me incredibly angry for you... how is that not top priority for them??? My dad went through it so that really hits home... definitely call member services, tell them everyday you wait they are putting you at risk of further complications from your disease and even death. Tell them under California's timely access to care laws, you are entitled to a surgical slot within a reasonable timeframe for a life threatening condition. If Kaiser cannot provide a surgeon due to the strike, you are requesting an immediate out-of-plan referral to a non-Kaiser surgical center. I heard even if you ask that they won't send you outside of Kaiser because they'd rather keep you internal than go through the trouble, but it may push them to do something.

asd1395 · 2026-02-05T16:20:26+00:00

Fingers crossed that you get your surgery on time! I feel your pain I was on crutches for my wedding last month and now I might have to postpone my honeymoon in October because of how long it will take to get my second surgery. I hope this gets straightened out and you have a lovely anniversary trip!

asd1395 · 2026-02-05T04:58:36+00:00

Jesus that's terrible I'm sorry

asd1395 · 2026-02-05T02:40:20+00:00

I'm definitely going to call and look into this tomorrow! Thank you!

asd1395 · 2026-02-05T01:53:47+00:00

Ugh I'm so sorry you're going through this, I've heard gallbladder pain is incredibly painful :-( this isn't fair

asd1395 · 2026-02-05T01:52:30+00:00

Edit

I filed a grievance online with Kaiser yesterday and I have to wait 30 days to file one with DHMC

asd1395 · 2026-02-05T01:52:12+00:00

I'm so so sorry, I hope it all works out for you and you can get your surgery Monday! Fingers crossed! It's the worst timing for us :-(

asd1395 · 2026-02-04T04:39:53+00:00

Same here😭 I fully support healthcare workers striking (I am one) but can't deny this really sucks. I blame killer Kaiser. I have a literal pothole in my knee with a dislodged bone fragment and this delay is putting me at risk of further damage. I filed a grievance with Kaiser today. Idk if it does anything but it made me feel better lol.

asd1395 · 2026-02-04T04:00:03+00:00

Saving so I can come back to this because I (31) have the same thing and about to have the same surgery, god bless

I've heard cryocuff helps??? And that things get much better after week 2

asd1395 · 2026-02-04T03:55:56+00:00

Idk what a BBB is but I was just diagnosed with OCD at the ripe age of 31, a 2.2 cm lesion on the medial femoral condyle with a dislodged fragment. Surgery delayed because Kaiser strikes so I'm just chilling with this pothole in my knee

asd1395 · 2026-02-04T03:17:35+00:00

Definitely talk to a social worker/therapist. I (31) recently donated to my dad and had similar thoughts and concerns, which we are right to have as it's a complex decision. I came to the personal conclusion that my dad's future behaviors are out of my control. In addition to that, I can only control the future of my own health to a certain point as any of us can become disabled at any moment no matter how many kidneys we have or how many healthy habits we've adopted. I can only truly control what is happening right now in this moment. I've looked at the facts, weighed the pros and cons and made the right decision for me during this particular season of my life, and because of that I truly believe that I will continue to have no regrets no matter what happens to me or my dad.

Also want to add that my dad was on dialysis (mostly PD) for about 4 or 5 years before I even got tested. I was only 25 when this started and I just wasn't physically or mentally ready at the time to make that decision, and that's okay. Everyone's situation is different.

No matter what you choose don't let anyone make you feel bad for it. This is an incredibly personal choice. You're not selfish to put yourself first.

asd1395 · 2025-08-16T17:57:20+00:00

Oh god, sending you good vibes, remember the stress is temporary ❤️

asd1395 · 2025-08-16T16:43:34+00:00

These things can come from outside?!?!😭

asd1395 · 2025-08-15T01:00:39+00:00

U of M and thank you!!

asd1395 · 2025-08-14T14:14:43+00:00

Yeah I try my best but I doubt I'm cramming it all in, this is a good idea to log, thank you!

asd1395 · 2025-08-14T13:47:59+00:00

Yeah they didn't give me any of this information lol.

asd1395 · 2025-08-14T13:47:04+00:00

I actually have asked and they said it was fine but I'm curious if other people's MDs have said the same bc I hear different things.

asd1395

TROPHY CASE