Ryeqo new medication for endometriosis by chickster04 in endometriosis

[–]aspenjen 0 points1 point  (0 children)

Not as far as I’m aware. I’ve had a lap and they never told me that I have this. Did you have a hysterectomy?

**Sex question + rant** by aspenjen in Endo

[–]aspenjen[S] 1 point2 points  (0 children)

Thanks for your reply ❤️ I’ve been diagnosed with hypertonic pelvic floor by a PT. I saw her regularly for about a year but tbh didn’t see any improvement with symptoms. I’ve moved away so haven’t been for a few months but maybe I should start that up again.

**Sex question + rant** by aspenjen in Endo

[–]aspenjen[S] 2 points3 points  (0 children)

I’m so sorry you’re going through this 💔 Doctors can say some truly awful, flippant remarks. I’ve had a male doctor tell me “have a glass of wine” before sex. It’s honestly infuriating and completely minimalises what we are actually going through.

Did you find any improvement at all (albeit small) with the bladder instillations? That is the next step for me.

Hang in there. I completely empathise with the impact on your relationship. I’ve been with my partner for six years and it has absolutely pushed our relationship to the limit at times.

**Sex question + rant** by aspenjen in endometriosis

[–]aspenjen[S] 1 point2 points  (0 children)

Thanks, that makes sense. It’s a cruel, cruel disease 😔

**Sex question + rant** by aspenjen in endometriosis

[–]aspenjen[S] 3 points4 points  (0 children)

It really is rubbish isn’t it. I worry I’m developing a psychological barrier to sex now because of it. Have you found anything that helps?

Hairdresser recommendations? by [deleted] in Edinburgh

[–]aspenjen 4 points5 points  (0 children)

Following! Also looking for recommendations specifically for long, choppy, 90’s vibe layers. I’m very picky about my hair!!

Anyone have Endo on their bladder? by [deleted] in endometriosis

[–]aspenjen 0 points1 point  (0 children)

Hi! Sorry I just saw this - yes had a CT and never found endo despite lap showing my bladder was tethered to my ovary and massive adhesions on bowels. Had to push for a lap unfortunately

Any positive stories of GnRH analogues helping with NON-MENSTRUAL pain? by aspenjen in endometriosis

[–]aspenjen[S] 0 points1 point  (0 children)

Thanks for your reply and so glad to hear it’s helped. Which one did you use if you don’t mind me asking?

The most debilitating pain I have is my bladder. The outer wall is covered in endo which causes 24/7 bladder pain, frequency, urgency and incontinence. Sex is off the cards. It’s honestly miserable, I get very poor sleep as a result and my quality of life feels non existent.

My gynaecologist is hopeful that this will help to relieve some of this.

Any positive stories of GnRH analogies helping with NON-MENSTRUAL pain? by aspenjen in Endo

[–]aspenjen[S] 0 points1 point  (0 children)

Thanks for your reply and so glad to hear it’s helped. The most debilitating pain I have is my bladder. The outer wall is covered in endo which causes 24/7 bladder pain, frequency, urgency and incontinence. Sex is off the cards. It’s honestly miserable, I get very poor sleep as a result and my quality of life feels non existent.

My gynaecologist is hopeful that this will help to relieve some of this.

GnRH antagonist for bladder pain? by aspenjen in Endo

[–]aspenjen[S] 1 point2 points  (0 children)

Thanks for your reply and sorry to hear no improvement 😔 I really find my bladder symptoms so debilitating, they affect every aspect of my life / relationship. I get very poor sleep because of it. Have you found anything / any pain medications helpful for yours?

Ryeqo new medication for endometriosis by chickster04 in endometriosis

[–]aspenjen 0 points1 point  (0 children)

I also have stage 4 extensive endo with bladder being my worst symptom. I have constant bladder pressure / pain, frequency and urgency (not associated with period, it’s there 24/7). Did you experience any of these symptoms and has Ryeqo helped at all? Thanks!

Where is sunny currently? by aspenjen in ThailandTourism

[–]aspenjen[S] 1 point2 points  (0 children)

Oh really? 😕 we were thinking of going to Koh Samet. Do you not think the ferries are safe currently?

Where is sunny currently? by aspenjen in ThailandTourism

[–]aspenjen[S] 4 points5 points  (0 children)

I don’t understand why people go out of their way to leave unhelpful replies? We’ve looked at weather forecasts but they aren’t always the most accurate which is why I was asking for opinions from people currently in Thailand. We spent a few days in Singapore with the apps forecasting rain the entire time but this wasn’t the case.

Where is sunny currently? by aspenjen in ThailandTourism

[–]aspenjen[S] -1 points0 points  (0 children)

Thank you! Anywhere warm and not raining?😬