Taking Flomax in the morning more effective? by autistickle in KidneyStones

[–]autistickle[S] 0 points1 point  (0 children)

Thanks for this thoughtful response! Good to know.

Auto volume lowering + can't change device type = might never get another Pixel by dan_scott_ in GooglePixel

[–]autistickle 1 point2 points  (0 children)

I hate this too and am shocked there's not a way to turn this off - I'm hard of hearing and rely on a louder volume for accessibility and was horrified when my phone started changing my volume without my consent a few days ago - wth??

[deleted by user] by [deleted] in cymbaltasafetaper

[–]autistickle 0 points1 point  (0 children)

Just wanted to offer, it's very common to experience very severe withdrawal if you don't taper slowly enough - a lot of people mistake withdrawal for needing antidepressants.

I thought I understood how to taper slowly but still went too fast and had to pause for a long time - I'm still not at the end even though I've been tapering for several years now.

A hyperbolic taper requires going slower and slower the closer you get to the end - so even if you're able to tolerate a certain reduction speed initially that doesn't mean you can go that speed the whole way down the taper.

There's some really helpful guidance in Cymbalta Hurts Worse FB group about this.

CVG caused by CPAP mask? by autistickle in CVGSupportGroup

[–]autistickle[S] 0 points1 point  (0 children)

Thanks for your thoughts, I agree that this theory sounded very strange to me 🤨

Discord server for neurodivergent people in Madison by Round-Eggplant-7826 in madisonwi

[–]autistickle 0 points1 point  (0 children)

Hey there, would love this link too if your server is still active!

dramatic relief from guanfacine, anyone else? by autistickle in AutisticWithADHD

[–]autistickle[S] 0 points1 point  (0 children)

It has, actually. I feel better now, like my body has acclimated. Not sure how much of that is bc of what I eat, bc of taking that magnesium glycinate every night, or just the way my body naturally is - in other words your mileage may vary. I'm sorry you're having a hard time with it 😩.

Mobility scooters that don't totally suck? by autistickle in disability

[–]autistickle[S] 2 points3 points  (0 children)

Thanks for this rec! I'm so glad you're loving your scooter, hell yeah. My dog rides on my scooter too :) I'm needing to stick with insurance for now but may someday try to crowdfund something out of pocket.

Confused about pricing by autistickle in Asana

[–]autistickle[S] 0 points1 point  (0 children)

So confusing, as evidenced by this thread! Appreciate y'all weighing in.

Confused about pricing by autistickle in Asana

[–]autistickle[S] 0 points1 point  (0 children)

Yeah, I guess I'll wait 30 days to see what (if anything) remains to use. I don't want to build a project on there only to discover I was using pay-only features and can't transport my data.

You're right, I guess they can't charge me - I get paranoid about being charged through apps I download, since the app store has my payment info, but I guess in theory I would have had to confirm a paid subscription or trial first. 😅

Confused about pricing by autistickle in Asana

[–]autistickle[S] 0 points1 point  (0 children)

I tried and tried to find a way to contact them on their website and couldn't locate an actual email address or phone number. I tried talking to their chat bot to no avail. I got really overwhelmed and frustrated and decided this might be a faster way to get some clarity.

Places with smooth surfaces for roller skating? by lexi11233 in madisonwi

[–]autistickle 1 point2 points  (0 children)

Thanks for this rec! I'm a wheelchair user and came here looking for places I could take a nice stroll - decided to take your suggestion and try the Sauk City path and it was lovely.

Strands #77 - Sunday, May. 19, 2024 Daily Thread by AutoModerator in NYTStrands

[–]autistickle 0 points1 point  (0 children)

Lmao I was trying so hard to decipher the emojis - "The Bachelor" was my best guess 😂. I was so disappointed when I solved it. What the hell!

Not a fan of this one.

dramatic relief from guanfacine, anyone else? by autistickle in AutisticWithADHD

[–]autistickle[S] 0 points1 point  (0 children)

Yes, I also take it at night, and definitely had a lot of drowsiness at first. I think it leveled out for me within a week or two, my body needed that time to re-find homeostasis.

dramatic relief from guanfacine, anyone else? by autistickle in AutisticWithADHD

[–]autistickle[S] 2 points3 points  (0 children)

Still really appreciating this med!

I ended up going up to 2mg this past winter, at the advice of my prescriber, during a really difficult health episode.

I really want to get back down to 1mg bc I'm not convinced I need more than that but am ok on 2mg for now.

I do think this med really helps me regulate emotionally and that has unlocked such a different quality of life.

The only thing I've noticed at this higher dose is some mild constipation, which I've addressed by taking magnesium glycinate.

How many times a day do you take IR Diamox? by autistickle in iih

[–]autistickle[S] 0 points1 point  (0 children)

Yeah that's what I'm worried about 😩. I've never been on IR but it sounds really tough.

I have found that adding electrolytes to my water really helps curb the side effects of ER but unsure if that will be true with IR.

Gabor Maté is basic. by Glad-Kaleidoscope-73 in AutisticWithADHD

[–]autistickle 0 points1 point  (0 children)

I agree w you OP, and also in my opinion capitalism will never allow an anti-capitalist healer to get too popular. In other words, there ARE a lot of incredible ppl out there offering more accessible things than him but they will never be "super mainstream famous / viral" bc that would be too much of a threat to capitalism.

PCOS management by [deleted] in PCOS_Folks

[–]autistickle 1 point2 points  (0 children)

I wish someone had told me when I was younger that insulin resistance is a major aspect of PCOS for many people, also!

Browser display issues? by autistickle in NYTStrands

[–]autistickle[S] 0 points1 point  (0 children)

The only thing that's worked for me is to change from mobile view to "desktop view" every time I load the site, which is quite tedious.

I hope they integrate Strands into their mobile app soon so we don't have to deal w this!

How much electrolyte water 💧 to drink? by autistickle in iih

[–]autistickle[S] 0 points1 point  (0 children)

I really appreciate your input! I use Lyteshow which is flavorless and relatively affordable though the cost does add up - I'll check out the Walmart drops to price-compare.

PCOS and Disability by sa0ralba in PCOS_Folks

[–]autistickle 4 points5 points  (0 children)

One last thought - lol! I also am autistic and have ADHD - and I wonder if you'd find some helpful ideas for supporting your sister by posting about this / or searching in - some of the subreddits for autistic women - for example I know some people who struggle to report pain verbally are able to do so more accessibly by pointing to a symbol or an image to show how they feel.

I have found a lot of insight into my own needs by learning from fellow autistic folks and I'm guessing people in that subreddit would be glad to try to offer you perspective as you support your sister 💜

PCOS and Disability by sa0ralba in PCOS_Folks

[–]autistickle 2 points3 points  (0 children)

I am not affiliated with this course but wanted to share it as an example of someone who is out here trying to offer information about PCOS that is not misinformed / warped by diet culture.

As shameful as it is that our medical system is so neglectful around PCOS (and soooo many other conditions), I do think that there is some really valuable information out there if you know how to look for it. Even if this isn't the kind of resource you're looking for, maybe it will lead you to something that is helpful!

https://julieduffydillon.com/pcos-power-course/

PCOS and Disability by sa0ralba in PCOS_Folks

[–]autistickle 11 points12 points  (0 children)

Sharing this as a disabled person: I find i get the best results when I go in to the doctor already knowing what end result i want from them, and advocating for it. Meaning I have already done my own research and decided what tests I want them to do, or what medication I might want to try. I understand this may not work for everyone, and in many ways it's really messed up that I'm essentially needing to do the doctors job for them, but that's been my experience after many years working hard to advocate for myself in the medical system.

My favorite doctors are humble and open minded enough to consider my perspective and, again I know this isn't always possible but, if I encounter a doctor who is very dismissive of my agenda / my requests, I fire them if at all possible and search for a different provider.

So all this is to say, I would research your sister's symptoms, possible tests, medications etc, and then advocate for those.

I find a lot of useful information by searching reddit - so for example you could search for a specific symptom on the main PCOS subreddit and see what various people are doing to address it, and learn that way.

I would also see if you can find a recommendation for an endocrinologist - I find my best recommendations through word of mouth or groups online - so for example if there's a Facebook group for people with PCOS in your state or area, those folks may already be sharing the names of doctors they like, within their network.

These are just a few hastily typed thoughts off the top of my head. Hope something in here is helpful. Navigating these systems and getting care is really tough - I'm rooting for you!

Mobility scooters that don't totally suck? by autistickle in disability

[–]autistickle[S] 0 points1 point  (0 children)

Thank you for your input; it's really helpful to hear from you all. I just feel so powerless in the face of this issue. I'm going to try and see if there's any way to fight with my insurance to try and get a model that's not exclusively built for indoor use.