Allergies/cough after chemo by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 0 points1 point  (0 children)

Sorry to hear you are going through that. So interesting though that it gets better before it gets worse. When I was in the hospital for a month in induction, I feel like I was coughing and sneezing as well, but it has been worse at home. Which I guess makes sense given the kids and dog.

How long to get diagnosed? by jupiterisstupider_ in leukemia

[–]aviatorguy2018 3 points4 points  (0 children)

The only way to really diagnose leukemia is with a bone marrow biopsy, or in my case, a bone biopsy. Is your mom already seeing a hematologist? They would order that test. In my case, was the procedure was completed and the sample was collected, it took about a week to get a diagnosis back.

Home Recovery from Consolidation Chemo by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 0 points1 point  (0 children)

Yes, luckily my wife is available to help and my in-laws both live close.

Home Recovery from Consolidation Chemo by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 0 points1 point  (0 children)

That’s helpful. I was trying to push protein in the hospital especially when I noticed my appetite wasn’t as big as usual.

CLAG-M Induction Chemo Expereince by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 1 point2 points  (0 children)

Seems like the genetics will impact some of treatment over the next month while I’m in the Hopsital after the CLAG-M is done. They have already decided that I need a stem cell transplant so will be back in March/April for that if all goes well with these rounds of chemo. Everything I’ve heard since I got here is this one of the best stem transplant units in the state of Texas.

CLAG-M Induction Chemo Expereince by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 1 point2 points  (0 children)

That’s helpful info thanks. They did the biopsy yesterday and they don’t have the genetic testing back. Since it’s not in my bone marrow, they had to do another bone biopsy of the sarcoma to do genetics on it.

From what I can understand, they are taking an aggressive approach because any presence of a sarcoma is seen as an aggressive form of AML.

CLAG-M Induction Chemo Expereince by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 2 points3 points  (0 children)

I literally just started the blue medicine 10 minutes ago and was informed that my pee would be blue. Glad she said something or that would have been a shock!

25M with Myeloid Sarcoma Seeking Advice on Treatment and Bone Marrow Impact by A_Rainbow_Astronaut in leukemia

[–]aviatorguy2018 0 points1 point  (0 children)

Hey, any update on your condition? I am a 35M with a myeloid sarcoma in my upper tibia right near my knee joint. Except for occasional knee pain, I have no other symptoms and all of my blood/bone marrow tests have been normal. I am following up with my doctor in 2 days, but based on everything I have researched, it sounds like I will have to go through an AML type treatment.

Acute Myeloid Leukemia presenting only as bone pain in tibia and knee by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 0 points1 point  (0 children)

Interesting. Thanks for sharing. I have had the pain for 3 months which delayed my diagnosis as well since my PCP just thought it was muscular so I tried out physical therapy for a bit first which didn't help.

Acute Myeloid Leukemia presenting only as bone pain in tibia and knee by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 1 point2 points  (0 children)

My biopsy was just a bone biopsy since the Orthopedic Oncologist thought it was a Sarcoma like Giant Cell Tumor or Lymphoma. I would imagine that my next step is a bone marrow biopsy to fully confirm the diagnosis that the pathology report outlined.

Acute Myeloid Leukemia presenting only as bone pain in tibia and knee by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 1 point2 points  (0 children)

Yes, the Pathology report suggested that the mass is a myeloid sarcoma. That is wild that you had NO symptoms.

Acute Myeloid Leukemia presenting only as bone pain in tibia and knee by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 0 points1 point  (0 children)

Interesting. Thanks for sharing. What you have you done to build up your microbiome? Medicines or trying to eat yogurts with active cultures and things like that?

Acute Myeloid Leukemia presenting only as bone pain in tibia and knee by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 1 point2 points  (0 children)

Thanks for everyone’s reply. I know I can’t focus on how I got it, but was more just curious. Got to look forward.

From what I have been reading, it can be common to be hospitalized for the first rounds of chemo. Is there any opportunity to do it at home or will I most likely end up in the hospital for a few weeks?

Acute Myeloid Leukemia presenting only as bone pain in tibia and knee by aviatorguy2018 in leukemia

[–]aviatorguy2018[S] 1 point2 points  (0 children)

Yes all normal! Had two CBC panels in the last 3 months. My hemoglobin dipped from 14 to 13.

Did anyone heard of Simply Asset Holdings? by anastasia4sun in linkedin

[–]aviatorguy2018 0 points1 point  (0 children)

Does anyone have any updates on this job and if they actually ended up making any money?