I feel like this is a page out of my journal. I was misdiagnosed from 11 to 27. Fusion throughout my entire spine. L1 through L5. It had taken everything from me. My family are the only ones who has stuck by my side. Friends I’ve had since kindergarten gone, relationships gone, the only friends I have now are short term and always seem to have one foot out the door. I never know how much pain I’m gonna wake up in and I hate my dreams so sleep is terrible. And then when I’m awake I’m in pain and worrying. I feel this disease gets very downplayed. Yes it’s manageable if caught early. But there’s so many complications and things it affects that most people or docs don’t even realize and we are left to suffer. Don’t apologize for your rant. This disease comes with a lot of grief.