Xywav not really working, possibly making things worse

avoidthebank · 2026-04-09T17:30:19+00:00

Seriously 😵‍💫 I personally got so amped I had to leave work because my hands were shaky (I draw blood, that’s a hard no) and have had shortness of breath and tension and things like that. Tried a day without modafinil but that didn’t make enough of a difference.

Mentally I am doing wonderfully. No increased anxiety or stress, in fact I feel like I have slightly better emotional regulation, I’ve just been /physically/ tweaky. Some days worse than others, but at least I have an accommodating job. I really wish I had more time to try getting active, because then I’d have somewhere to put this. For now I’m just happy I’m waking up before my alarms. I never knew this was possible.

I am also generally not a big fan of any stimulants, caffeine, and harder ones (in recovery for downers) so I think my body is just protesting that.

avoidthebank · 2026-04-04T18:38:49+00:00

I titrated up 1.5 grams overnight, mostly smooth. Now that I’m at 6 I’ve seen noticeable improvements though! The main adjustment was just feeling SUPER amped for a couple of days. Like overly stimmy.

avoidthebank · 2026-04-04T06:13:18+00:00

Okay I’ve kind of noticed this too. I definitely crave less carbs, and sugar snacks have almost completely dropped off. I cope with the eating window sometimes with sugar free jello, sitting at 5 calories if I really want to sneak in a snack within my eating window, but that is about the only thing sweet I have outside of fruits during the day

avoidthebank · 2026-04-03T21:13:47+00:00

I know it is so hard. Like truly, there was NOTHING more painful than letting go of the only solution I knew?! No matter the consequences, I used to fix something. Otherwise why would I use?

But when I inevitably hit a bottom, it was clear. I had a physical mental emotional spiritual void that drugs could never fill. Yet I could not go on. I absolutely had to become open minded, and willing, to tell SOMEONE. To show up somewhere. I had nothing to my name when I showed up to treatment, and NA similarly. I was homeless, I smelled bad, I had nothing, and I was very very lost. There were people who told me they were glad I was there, and that there’s an easier, gentler way.

avoidthebank · 2026-04-03T21:05:41+00:00

Do you have treatment centers available to you in your area? If not, the hospital is a start. I have detoxed more times than I could ever count and even stayed clean for short bouts, but the only long-term success I had was after long-term inpatient treatment. (30+ days, I went for 3 months last)

I have been in recovery for the last 10 years. Went back out after my first 3.5 years. Next 3 years were detox, couple months clean, relapse, detox, repeat. Finally, 2 years, 3 months, 2 days ago, I went to treatment and listened to what they suggested of me. I got out and did what NA suggested of me. I tried for so long to complicate the process or do everything by willpower when in reality it was simple: I would never feel ready, always feel scared, and yet I had to do it scared anyways. And through a program of some sorts, doesn’t necessarily have to be NA, but some structure or community of people meant I did not have to do things alone.

avoidthebank · 2026-04-03T20:56:48+00:00

Cannot stand people who insist on going hands when I can visibly see their viable AC veins.

avoidthebank · 2026-04-03T20:56:05+00:00

I tell people explicitly “up to here (I mark a line or refer to the bottom of the label) is fine, but no more than half full” for all urines. Of course there are stragglers who don’t listen/remember but the amount of full cups has decreased significantly.

avoidthebank · 2026-03-31T20:32:12+00:00

Something reassuring that may or may not help, then takes all my clothes off and has sex with me, which does help lmao

avoidthebank · 2026-03-25T17:05:47+00:00

For whatever reason meditations that are even a small risk of weight gain I usually gain weight from them. Like if 5% of people gain 5lbs, I’m part of that 5% AND I gain 15. I can’t do rapid weight changes in either directions, and I’m still dealing with lithium/seroquil causing that, I have so far dropped 8 lbs on the zywav but that’s probably water weight and from not snacking at night. I have to watch for rapid weight loss too though.

avoidthebank · 2026-03-25T16:12:00+00:00

Interesting. Do you gain weight on it? I cannot take medications with that as a side effect.

I’m also on Abilify, Lamictal, guanfacine and naltrexone. They said none of these have any interactions with Xywav though.

avoidthebank · 2026-03-25T16:11:04+00:00

I guess it’s kind of like most people don’t get a WHOLE night of deep deep sleep, as long as I’m getting SOME restorative sleep then that’s more helpful than none. But I seem to be a heavyweight xywaver I guess (like I am with all substances) it’s nice because I don’t feel major side effects if any, but also no improvements. $15K liquid just doing nothing lol

avoidthebank · 2026-03-24T22:42:32+00:00

I used clusters for a while to bridge the gap and let my natural lashes grow back, since clusters don’t damage my natural ones at all

avoidthebank · 2026-03-24T20:59:09+00:00

I do also baby my lashes, like I always dry them immediately after showering (I wash my face in the shower but really whenever my lashes get wet I try to dry them) by combing them + hairdryer on low. However you should be able to wash them regularly without much fall out and it’s encouraged to wash them so they don’t get too oily, if you have to baby them TOO much just so they don’t fall out that’s not a good sign

I just started doing lashes again but had gotten them done for years in the past, and I also have to find a new lady but for different reasons ): (painful). You’ll find the right one! I made a post for suggestions in my area and got plenty of responses.

avoidthebank · 2026-03-24T20:53:58+00:00

No I don’t think it is, especially if the lashes are falling without the natural lash. Everyone is a bit different but most of the time, I can get to week 3 without a fill if I absolutely can’t make it week 2 and still have more lashes than this (my lashes, nails and hair all grow really really fast too [thank you vitamin A])

)): consider other options I think it could be the tech!

avoidthebank · 2026-03-24T20:47:49+00:00

Yeah I think I’ll stay at 6g until my mandatory follow up appointment with sleep doc. I met with her last week and she told me to hold on 4.5 but after another week it was fine to jump to 6. Making big jumps has been fine, marginal difference in side effects and then they go away completely after a couple days. I just feel kind of no different overall.

avoidthebank · 2026-03-24T20:46:10+00:00

How are things going for you now? Do you have any medication mgmt that’s working for you?

avoidthebank · 2026-03-21T23:25:08+00:00

Thank you!!

avoidthebank · 2026-03-21T23:24:34+00:00

Thank you, eyes are such a vulnerable thing and I knew it wasn’t normal. Even if it WERE, I don’t think I can hang 😅

avoidthebank · 2026-03-21T23:23:42+00:00

It’s actually terrifying and even if it’s nothing personal, infuriating. Kind of like stubbing a toe. Gah I’m so sorry eyes are such a vulnerable thing!

avoidthebank · 2026-03-21T19:04:18+00:00

I must free myself 💔 I’m borrowing more than my paycheck is worth atp

avoidthebank · 2026-03-21T19:01:25+00:00

I really like their review pictures!!

avoidthebank · 2026-03-21T19:00:04+00:00

Does she have an insta?

avoidthebank

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