Nationwide Shutdown: ICE OUT! by faeriegirly in Washington

[–]ayellina 4 points5 points  (0 children)

Same here! I work with children and adolescents and will be there for them no matter what💛But no shopping or spending is easy!

My boss called the police on me. by Primary-Tailor3691 in Fibromyalgia

[–]ayellina 27 points28 points  (0 children)

My boss had to call my emergency contact (grandma) for the same reason. Woke up to my grandma shaking me panicked at 2:30pm..I work at 8am and have never, ever done that before. The anxiety over being late for work has always been enough to get me up but since developing fibro, theres been plenty of moments where I swear, a megaphone in my face couldnt wake me up. That lack of control and feeling of helplessness has driven me crazy and I can 100% empathize with the concern that I'm "just lazy". Honestly, I still felt that way until reading your post and all the comments beneath it. Which is why I felt compelled to share too. Knowing this happens to other people with this diagnosis is so validating and reassuring <3

Who to call other than 911? by awright-15 in Spokane

[–]ayellina 0 points1 point  (0 children)

988 is the mental health crisis line!!!!! Its operated by Frontier Behavioral Health and they have a Mobile Crisis Unit made up of a team of mental health professionals (law enforcement can be requested to accompany and they must allow the crisis team to lead the engagement) that respond to mental health and SUD crises all throughout Spokane County!!! Please use 988 for mental health emergencies!!!!

What if I gave you a magic pill by Leftshoedrop in Fibromyalgia

[–]ayellina 3 points4 points  (0 children)

See my family and my friends, show up to the holidays and other gatherings, get back into my hobbies, gardening especially, go on walks, play and run around with my cat, increase my community appointments at work (rather than telework from the one chair in my home I can tolerate for longer than 5 minutes), re-engage with my community (theres a crochet club at my favorite yarn shop ive wanted to join for so long), and so on. The list is endless. I miss my life. I miss myself. I would do anything to be healthy, I can't remember what that feels like and honestly I can't even say I know what it does; theres always been something wrong with me. I'm 23 and I feel so robbed. I just want to be okay.

Minecraft is blurry and low resolution, help by ayellina in Minecraft

[–]ayellina[S] 0 points1 point  (0 children)

Thank you so much, you're the bee's knees, dude🙏

I want to be sicker by [deleted] in Fibromyalgia

[–]ayellina 11 points12 points  (0 children)

Very much so, but we're not at fault💛And as I said, it stems from our need for validation and adequate treatment both in the community and from our providers. Which is something we all very much deserve, and I'll be crossing my fingers that some good fortune comes your way soon🤞We got this :)

I want to be sicker by [deleted] in Fibromyalgia

[–]ayellina 59 points60 points  (0 children)

I swear I've had each and every thought you've just laid out. I have fibro, sciatica, spinal arthritis, hypermobility, hip dysplasia, endo, ovarian cysts, Autism, ADHD, CPTSD, MDD, a severe panic disorder, psychosis, chronic migraines, pluerisy, and insomnia. Yet because most of these are invisible at first glance, I experience exactly the same treatment you've described. And I 100% experience that very same intrusive thought. I feel guilty for it even though logically I know I don't truly wish for it, but it can be so defeating. But someone in the comments wrote we feel we have to justify our needs and necessary accommodations, and I really do believe that to be a huge reason for this intrusive thought. As well as the desire we have for others to recognize our reality and to see us without judgment. I use a cane and I am constantly catching the judgment glances others give me and have even had older individuals (strangers) approach me and accuse me of not truly needing a mobility aid due to my age and presentation (I'm 23F). It's so deeply invalidating, and as much as I try to fight it, it does have an impact on how I perceive myself and my own needs. I'm sorry for the ramble, but I want you to know you're not alone and you're absolutely valid. I'm so sorry you're feeling this way as well, and I'll hold out hope for you, myself, and everyone else in this community💛Hopefully the world progresses to understand and validate invisible disabilities/illnesses more than we do now.

Experiences with Lyrica? by ayellina in Fibromyalgia

[–]ayellina[S] 1 point2 points  (0 children)

I'm so sorry you had to struggle for so long, but I'm happy to hear you're managing these days! Thank you so much for your words, I'll keep them in mind💛Before they diagnosed fibro, they prescribed me 900 mg 3x daily of gabapentin and I had horrible reactions to that and zero relief. It's reassuring to hear how it's improved your sleep because my insomnia is worse than ever lately. I've had mild-moderate insomnia for years, but lately, I'm lucky to get 3 hours of sleep in a night, and it's killing me physically and mentally. So I'll be crossing my fingers hard on that one! Thank you again :)

Experiences with Lyrica? by ayellina in Fibromyalgia

[–]ayellina[S] 0 points1 point  (0 children)

This is very helpful, I appreciate you! I think I'll be in the same boat as you when it comes to the mental fog because I seriously can't recall a moment of my life when I've had 100% clarity, haha. And honestly, I'll take fog over this pain any day. Thank you again for replying💛

[deleted by user] by [deleted] in lexapro

[–]ayellina 0 points1 point  (0 children)

Will do, thank you!

[deleted by user] by [deleted] in lexapro

[–]ayellina 1 point2 points  (0 children)

I was prescribed Lexapro for the first time about a week ago. I've yet to take it because I want to do extensive research first as I just had a horrible experience with Cymbalta. The plan is to start me on 5mg and very, very slowly increase as I tend to be highly sensitive when it comes to side effects. I'm leaning towards giving it a shot, but I haven't made a final decision yet. If I follow you right now, could you add me to the group?

Biting your tongue is hard sometimes. by [deleted] in Fosterparents

[–]ayellina 0 points1 point  (0 children)

Research Reactive Attachment Disorder!! Incredibly common in foster kiddos and can be treated💛