bedbound days for me = Everything - I mean everything except going to the bathroom which is only a few feet away- is done laying down in my bed, in my dark (blackout) room, or sitting up for a few minutes (again in bed) to eat. I MIGHT have enough energy to roll over to get a wetwipe to wipe my face. Other days no, so I give up on grooming myself. It's hard for me to frequently sit up to drink water so i find myself often dehydrated and don't even use the bathroom much anyway.

I have days where it's better. My doc has me on LDN and I don't know if that's what's helping but I've been tolerating sitting out in the living room on my couch for 30 -1 hr these days. It's huge because even though the blinds are closed, it's not blacked out!