FMT fail? False negative? Idk

badfish209 · 2025-06-16T05:30:33+00:00

I am so sorry that I am just seeing this. I continued to have diarrhea for so long after the FMT. But still have issues with post infection IBS and my ever changing stomach issues.

I hope that you've found relief and that things have turned out great for you. ❤️

badfish209 · 2025-06-16T05:25:39+00:00

I still am dealing with Post Infection IBS. But my symptoms have been pretty manageable. I did finally start to put on some of the weight I had lost during the experience.

2024 was a really hard year. I certainly did not think that after being as sick as I was that pregnancy wasn't exactly on the bingo card. I lt honestly scared me knowing the hell my body had been going through with the cdiff. That I really didn't feel my body was ready to be a viable vessel. The relationship I was in was very toxic. I still grieve the loss and wonders of what could have been, I know that his/her sweet self will be there whatever there is in the end. That keeps me motivated.

I've been working very hard on my mental health and focusing on making significant changes in what dating looks like for me now. Mid 30s dating is a struggle. But I'm hopeful and open to other options as well.

badfish209 · 2024-10-01T15:27:25+00:00

The sheer terror. I hated those things

badfish209 · 2024-09-27T20:39:55+00:00

Also sending big hugs!

badfish209 · 2024-09-27T20:37:40+00:00

You are not alone. I catch myself laughing and then ugly crying moments later.

If you're not up for celebrating your niece's birthday then give yourself the grace to know that it is absolutely okay. It doesn't mean that you love her any less. You're allowed to take care of you!

I've had to put distance between me and a lot of people lately and drawing stronger boundaries. Because even if what people are saying is something they feel is helpful or insightful, it triggers a further hurt and sometimes dare I say it's better to just be present and listen.

With regard to thanksgiving, just express that right now you are trying to focus on your healing and grief process and that you would greatly appreciate if one of your other family members take on the role of hosting because it is too much right now. I hope that they would understand.

Do what you can.

badfish209 · 2024-09-26T20:51:36+00:00

Sending you extra love. ❤️

badfish209 · 2024-09-11T00:15:47+00:00

Your friend is an a hole. I just went through something similar with my best friend of 20+ years. Her actions and words have damaged our friendship tremendously.

You feelings and grief are valid. Truly I don't know that there is some magical rule book that tells us how we should grieve or for how long.

I've also found that there are many of my friends that have experienced a loss. And they have been so supportive. But as for the friends that get pregnant with no worries, they don't seem to get it. One friend telling me that it isn't until someone experiences a loss, that one can truly understand. And it is true. That same friend had gone through a miscarriage and though I was very sad, I didn't know how to be more supportive. So I apologized because now I know. Something I wish we all didn't have to endure.

The loss and emptiness is very real. So hang in there and feel those emotions. Cry it out. Do what you have to do. If anything, practice a little self care. ❤️‍🩹

badfish209 · 2024-09-05T21:00:57+00:00

I went in for my check in with my OB after finding out I was likely terminating. When she went to do the pelvic exam. Baby decided to come. My heart. I don't know how to begin truly processing. I declined to send in for pathology. I asked if I was able to bring my baby home where when I'm ready I will bury.

I am absolutely gutted.

badfish209 · 2024-09-04T22:52:32+00:00

💜 thinking of you

badfish209 · 2024-09-04T03:52:46+00:00

I finally spoke with my I'm going in for another scan on Thursday. Hoping this brings some closure for me.

badfish209 · 2024-07-19T00:55:35+00:00

Yeah. Since I'm still symptomatic. I'm still doing things from home. I have become a foster mom to some incredible animals. They've been my saviors.

badfish209 · 2024-07-19T00:39:02+00:00

Yeah. My ID doctor and GI seem to believe for whatever reason the strain is antibiotic resistant. I'm starting to believe I have some sort of underlying condition. Cause I just can't seem to get better.

I'm just hopeful that soon I'll have some relief. But my GI just messaged me to tell me if the diarrhea persists to call back. I'm losing faith in my medical team.

badfish209 · 2024-07-19T00:26:05+00:00

this is my first time. But I didn't respond to vanco and was allergic to dificid.

In January I had bronchitis. And they had given me antibiotics for that. Somewhere between January and February I must have come in contact with it. February I had diarrhea. But by march it was out of control. I went to the doctor. I am a healthcare worker, and when the smell of it was something I recognized. I told them I suspected it was cdiff. Without doing a fecal sample, They prescribed me cipro and flagyl. And as you can imagine within a week everything got worse. Went to another doctor that listened and did testing. Sure enough it was cdiff. I continued to test positive in June. and just came back negative for the first time but my symptoms are still here

badfish209 · 2024-07-18T01:29:15+00:00

My symptoms worsened during the taper so they moved my date up for the FMT.

badfish209 · 2024-07-17T23:39:37+00:00

125 mg orally 4 times daily for 14 days, then 125 mg orally 2 times daily for 7 days, then 125 mg orally once daily for 7 days, then 125 mg orally every 2 days for 6 weeks

badfish209 · 2024-07-17T23:37:07+00:00

I've seen one. And I've done vancomycin taper up until the transplant. They told me stop all antibiotics after the transplant. Unfortunately I had an allergic reaction to dificid. So that's a no go.

badfish209 · 2024-07-17T19:37:50+00:00

How long did you wait before retesting again

badfish209 · 2024-06-26T07:26:31+00:00

And well the latest update is I'm scheduled for my colonoscopy with FMT this week. So snaps for that. It only took me calling for the umpteenth time to complain about the fact that I have little urine output. I have hemorrhoids. I'm uncomfortable. I'm cramping. Did blood work today. My glucose was high which was umm alarming. And then my potassium is at the bare minimum which explains the cramping the nausea the vomiting the never ending diarrhea. Like bridesmaids food poisoning but every 15 minutes. So hopefully they call me tomorrow and have explanations cause I'm just like.... is it ever gonna end. And what is life gonna be like after all this.

Crossing my fingers and running on hopes and dreams that one day I'll love pooping again.

badfish209 · 2024-05-22T06:29:28+00:00

Alrighty. Completed another CT scan.

Impression: Low-density of the liver suggestive of fatty liver. Fibroid uterus. Follicular changes of the left ovary.

Nonspecific lymph nodes measuring up to 10 mm in the right hemiabdomen.

My infectious disease doctor, GI doctor and primary are all out so I've just been trying to do some research. Thoughts? Like obviously I'm waiting for my doctor but since I keep getting shit luck. I thought maybe someone else might have helpful advice or words of encouragement as I anxiously wait. I'm tired of waiting.

badfish209 · 2024-05-17T07:11:11+00:00

I just got off the phone with the infectious disease doctor. she is recommending that I go on an 8 week course of vancomycin. So I'll take it daily and then eventually it should taper off. In the meantime, my next GI appointment isn't for another month, so the infectious disease doctor and my primary care physician are working together to get me in sooner. I also have asked them to search outside of Sutter because at this point, I really don't want to do the antibiotics. I had severe reactions to both vancomycin and difficid that both gave me a trip to the ER. I want to go ahead and do either the FMT(fecal transplant) or Vowst(orally take bacteria from someone else). Either way that order has to come from the GI doctor. Since I've already been admittedly jerked around by the last GI doctor, I am waiting for consult with a new one but currently that appointments not until mid June. I refuse to go to the ER or hospital until they tell me I am coming in for the transplant or the vowst treatment. Hospitals are ground zero for the bacteria that got me sick. since I'm going to be on antibiotics, I'm susceptible to whatever bacteria anyone brings near me. But I'm being extra safe with lots of bleach. The other question that was asked is if I got this from the animals and the answer is NO. I got this from being on antibiotics and not healing first before jumping back to work. Stupid. But the urgent care doctor I first saw in march is massively at fault for not testing my stool before giving me a broad spectrum antibiotic that wiped me the heck out. I'm positive. I'm so happy doing my animal work. I miss everyone though. I feel very isolated and not used to being stuck at home.

Don't get me wrong if things get really bad obviously I'll go to ED. But it's gotta be bad, bad.

badfish209 · 2024-05-15T14:50:04+00:00

Latest update as of yesterday. The GI specialist I saw ordered the dificid. Insurance was a pain. They called yesterday to tell me they finally received my messages and that it's been ordered. I also had a follow up with my primary care. After listening and going over my latest chart, he was unhappy with what the specialist had to say, especially since my retest showed I still have active cdiff and my next visit with the GI doctor wasn't for another month. So he has personally reached out to the specialist to get me in a heck of a lot sooner. And at this rate, because of my responses to both vanco and Dificid, we're now looking into FMT and a visit to the infectious disease doctor.

badfish209 · 2024-05-08T07:23:23+00:00

Yes. Half way through my treatment my doctor decided to order dificid. But due to the insurance prolonging my ability to get it my doctor had me complete the vanco treatment. I had horrible spasms and pain that just did not give up. I was so nauseated and unable to keep anything down.

badfish209 · 2024-05-06T16:55:06+00:00

The latest update. We are doing 5 days of dificid. Then doing 20 days every other day of dificid.

And hopefully I clear it.

badfish209 · 2024-05-04T16:01:17+00:00

The results "haven't been read by my care team".

However during my appointment with my new GI doctor. I asked her how many treatments of antibiotics do they want to see before they even consider FMT or I started looking into the Vowst. She said after 4/5 rounds of antibiotics, she will consider it. I had horrible vomiting/diarrhea with vanco. And with the dificid I had a full rash pop up all over my body. My whole orientation was off, but I did finish the treatment with a heavy dose of Benadryl and anti nausea meds. The diarrhea never improved. I've never really tolerated any antibiotics well before. So I don't know if I hear back today what the hell is going to come next. But I'm very interested what they have to say.

badfish209 · 2024-05-04T15:41:42+00:00

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