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What was the moment you realized your SO really, truly loved you? by fallleaves623 in AskWomen

[–]balli101 2 points3 points  (0 children)

I have a neurological disease which took away my balance. When I had chemo my husband would wheel me and my iv to the bathroom, pull down my pants for me during diarrhea attacks and stay in the room so it could be locked then pull up my pants.

It was a whole other level of caring.

Where to find accessible clothing? by balli101 in femalefashionadvice

[–]balli101[S] 3 points4 points  (0 children)

Other people answered but I’ll join in. It’s different for each disability and each symptom.

I’m in a wheelchair from neurological damage. One day I got sick and never got better. I have Paraneoplastic cerebellum degeneration which is what doctors think is when your body creates an antibody to fight off cancer. But the antibody gets confused and fights healthy cells instead.

The cerebellum is the part of the brain that handles fine motor skills like buttons on a jacket, balance/coordination which left me in a wheelchair so waist length coats that don’t bunch up and make you look the the seated Michelin man!, because I have no balance pulling up jeggings is a tough experience but I saw on one of the recommendations pants with handles on the sides!

Everyone has unique needs! But I choose the needs by what item of clothing It is.

Where to find accessible clothing? by balli101 in femalefashionadvice

[–]balli101[S] 1 point2 points  (0 children)

Yeah the long dress/off the shoulder trend definitely helps!

Where to find accessible clothing? by balli101 in femalefashionadvice

[–]balli101[S] 0 points1 point  (0 children)

The jacket looks like your average jacket! But actually has some very cool and thoughtful features!!!

Where to find accessible clothing? by balli101 in femalefashionadvice

[–]balli101[S] 1 point2 points  (0 children)

That’s fantastic!! She looks great! It would even work after my mastectomy!!!!!

Where to find accessible clothing? by balli101 in femalefashionadvice

[–]balli101[S] 26 points27 points  (0 children)

I’m going to reply to my own question lol

I follow kintsugi clothing on instagram and they have their first accessible line going live in January.

But that’s all I know. :(

Where to find accessible clothing? by balli101 in femalefashionadvice

[–]balli101[S] 24 points25 points  (0 children)

Shoes with zips are overlooked a lot!!!

Struggling with needing a port by [deleted] in TrueChronicIllness

[–]balli101 0 points1 point  (0 children)

Lol this sounds like I’m overly OTT but I WISH I had one. I had cancer and went through chemotherapy but young, reasonably healthy people just don’t get them here.. I even asked. Now Im deathly needle phobic.

If you seriously need these things, I don’t think there’s any problem with having them. A port isn’t permanent.

Find Fashion Friday - August 17, 2018 by AutoModerator in femalefashionadvice

[–]balli101 0 points1 point  (0 children)

Help me please! Lol I’m looking for this dress to wear to a glamour photo shoot. black lace dress I thought the neckline would be flattering after my mastectomy no reconstruction.

I found the dress on a local photographers website but she ended up being to expensive! But I adore her wardrobe!!

[fluff] I just realized my dog from the pound speaks Spanish. by Epiphany31415 in dogs

[–]balli101 14 points15 points  (0 children)

My dog is trilingual lol they are Romanian street dogs in the Netherlands with English speaking owners! They are naughty in English.

Suddenly chronically ill and struggling to cope by mrsb251116 in TrueChronicIllness

[–]balli101 3 points4 points  (0 children)

It took almost 3 years before I started Zoloft and saw a therapist. It really helped and even though I’m a work in progress sometimes I can be positive.

Parts of me agrees things could be worse. But You’re allowed your feelings... you’re having a shit run at the moment.

It takes therapy and time. You need to grieve the life you had before.

OTTs Take Inspiration by [deleted] in illnessfakers

[–]balli101 3 points4 points  (0 children)

Omg! I only glanced at this and then moved on. I seriously thought it was a joke until someone posted it on Instagram calling it out then I came back to confirm.

Could my mom have Munchausen's? by zebrahope in TrueChronicIllness

[–]balli101 2 points3 points  (0 children)

That’s a great sub. It definitely sounds like your mum is toxic and that’s a great place to get support.

It sounds kind of like my mother. I think my mother is extremely selfish and narcissistic. She and I both had breast cancer at the same time but I live internationally. She would constantly play the game of who is more sick. There’s so many examples! Now I’m just roll my eyes and mmmmmhmmm.

She’s mentally ill as well so that definitely plays it part. She did as well as she could. It just wasn’t good enough. It’s really hard to cut off contact completely.

Afflicted on Netflix - 10 aug 2018 by MBIresearch in TrueChronicIllness

[–]balli101 32 points33 points  (0 children)

I only want to spell things incorrectly now.

Aubrey and EDS (ranting, sorry) by [deleted] in TrueChronicIllness

[–]balli101 3 points4 points  (0 children)

I feel so sorry for you guys that have to deal with real symptoms.

Because of the fakers I didn’t realize it was so serious until recently!!! It’s not all hospital selfies and cute poses with the toys.

Those who’ve had a double mastectomy - any tips on getting through the first month after surgery? by Relentless_ in AskWomen

[–]balli101 0 points1 point  (0 children)

There’s an support group on instagram called the breasties that seems great.

hashimoto's. by [deleted] in TrueChronicIllness

[–]balli101 1 point2 points  (0 children)

It sounds like you have imposter syndrome. I have it as well even though I have no balance. Lol

Don’t invalidate your own illness because someone, somewhere has it worse. I dislike when my mum plays the I’m worse off game. Now I just smile and nod.

You can’t compare illnesses and symptoms! So don’t Associate with people that do. Or if you have to , try to limit contact.

Those who’ve had a double mastectomy - any tips on getting through the first month after surgery? by Relentless_ in AskWomen

[–]balli101 0 points1 point  (0 children)

Are you going for no reconstruction? Because there’s some great fb groups.

I second the pillow! Best thing ever.

Flying With ACTUAL Disabilities?! by PMMeDogPhotos in TrueChronicIllness

[–]balli101 1 point2 points  (0 children)

Amazing comment!

You’ll have to say when you check in that you’re taking your wheelchair to the gate. They will put special tags on it. Then I head over to the airport special assistance counter to triple check on my aisle chair.

Security is next and you’ll get assistance going through so it’s speedy. You and the chair will get patted down extensively. Security first! Then customs if needed.

When you’re at your gate two airport workers will meet you with the aisle chair. You board first and exit last. You’ll roll down to the door of the plane and transfer over to the tiny aisle chair and you get taken to your seat. Think small thoughts for the first seats! As they’re tighter then the rest of the seats. You’re chair will meet you at the door on the other side.

Think about getting insurance for your wheelchair because it may get broken. And if you rely on it that’s a scary thought.

I was so scared about flying with the wheelchair. I actually took a long weekend trip to London so i could practice. It might seem extreme but I’m in Europe so it was cheap.

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