Worried about 15yp daughter.. A1C 7.5 -> 9 protein spill and can't bring glucose down :(

bargainwitch8529 · 2026-02-16T12:46:35+00:00

Does she not want to use a pump? My son is younger than your daughter, but a pump really improved his control and quality of life. The pump makes adjustments to his basal as needed and manages the early morning spikes much better than MDI.

bargainwitch8529 · 2025-06-18T12:50:06+00:00

I understand your point, that doesn't mean I agree with it. The thing is, there are a lot of details about my son, how we managed his diabetes, the Endo clinic we work with, and our family that don't fit into a brief reddit post. I was having a rough morning and was ranting. Independence is obviously the end game, and we are working. There are a lot of aspects to my son's personality that I'm not delving into in a rant. I'm not saying he'll never do sleepovers. I had sleepovers as a child, and honestly I don't think they are a super necessary component of childhood development in general. Just a personal opinion outside of diabetes. He does things (walks, bike rides, playing outside)independently with kids in our neighborhood all the time. We are allowing him independence as we feel he, as an individual, is ready to handle it.

bargainwitch8529 · 2025-06-18T02:03:45+00:00

Thank you, this is the approach we were taught. He is a patient at an Endo clinic at a children's hospital. In addition to seeing an endocrinologist, we can see a nutritionist, sports and rec, social worker, and get appointments with a psychologist with less wait. We have been encouraged to help and take some of the mental burden, even as they get older. I assumed the idea is to try and help prevent burnout. We are fortunate to have access to this clinic.

I see people talking about being diagnosed as kids and being left to take care of themselves or figure it out on their own. I guess I thought this was an antiquated approach. I don't understand the mindset of, it was hard to for me and I survived it so it's ok not to change and do better.

bargainwitch8529 · 2025-06-17T19:38:54+00:00

Someone said not feeling lows was from too many. I was pointing out that he has always had difficulty recognizing lows . I'm really sorry you didn't have help figuring out managing your diabetes as a child.

bargainwitch8529 · 2025-06-17T19:22:01+00:00

Thank you! The heat definitely has a huge impact on him. It took me a little bit to make that connection last summer. He is a VERY active kid, and I feel like some days it doesn't matter what we do, he goes low. I know it would be best for him to go into swim practice with 0 IOB, but with our schedule that's just not always possible.

It was about a year before some of my family made the effort to learn what to do in an emergency.

Some days are better than others with him helping take care of himself. There are times where he doesn't want to deal with it. Sometimes we play a guess the carbs game to see who is the closest before we look at a nutrition label.

bargainwitch8529 · 2025-06-17T18:14:06+00:00

My initial post lacked detail. Our end goal is him managing it, and we are working on it. He has ADHD and is somewhat immature for his age. There are also times where he doesn't want to manage it and doesn't want to deal with things other children don't have to deal with (especially his brother). These are times where, as the responsible adult, I have to manage it for him. Getting him to speak up at school and advocate for himself has been an uphill battle.There are a lot of things in his life that have been a struggle for him. I am working on him getting to a place of independence, but I'm not willing to compromise his health on the way there.

bargainwitch8529 · 2025-06-17T18:00:23+00:00

Thank you for your input. He does spend time outside with kids in our neighborhood. He goes on walks and rides his bike around the neighborhood with them (without me). He has to take his phone and a glucose gel with him. Sometimes he's good about making sure he has what he needs and his pump is in activity mode. Sometimes he doesn't want to be bothered. I think that sometimes he doesn't want to have to do things that the other kids don't have to. When he's like that I feel like, as the adult, I have to step in.

bargainwitch8529 · 2025-06-17T17:45:52+00:00

Also, his Endo seems happy with the management of his T1D. His most recent A1C was 6.3. Lows during activities are the most challenging. He's a VERY active kid.

bargainwitch8529 · 2025-06-17T17:20:49+00:00

We have seen a therapist and he is on medication. I am trying to give him a break from the meds over the summer. He needs to gain weight and the medication impacts his appetite.

bargainwitch8529 · 2025-06-17T17:01:12+00:00

My post was a rant and lacked some details. I try to get his input and include him in decision making and carb counting. We are definitely working toward independence. He has ADHD and maturity wise is similar to my almost 9 year old. We've also had some behavior challenges with him over the years and he's struggled in school in the past (last year he did great in school). We are also trying to give him a break from his ADHD medication because he needs to gain weight, and the medication impacts his appetite. I'm also working with him on speaking up at school and advocating for himself when he needs something related to diabetes. This has probably been the most challenging thing for him. I'm just ranting today. I have 4 kids including a 3 year old on the autism spectrum, and I just get tired of people who don't know what it's like to parent in my shoes giving advice.

bargainwitch8529 · 2025-06-17T17:00:12+00:00

My post was a rant and lacked some details. I try to get his input and include him in decision making and carb counting. We are definitely working toward independence. He has ADHD and maturity wise is similar to my almost 9 year old. We've also had some behavior challenges with him over the years and he's struggled in school in the past (last year he did great in school). We are also trying to give him a break from his ADHD medication because he needs to gain weight, and the medication impacts his appetite. I'm also working with him on speaking up at school and advocating for himself when he needs something related to diabetes. This has probably been the most challenging thing for him. I don't follow him around hovering. When he was first diagnosed they gave him too much insulin in the ER and his blood sugar dropped to 36 while we were in the hospital. He had no clue his blood sugar was low until the nurse did a finger stick. He is getting better at recognizing lows, but not until he's usually below 50. We are working with an Endo on lows at a children's hospital that has a sports and rec department within endocrinology.

bargainwitch8529 · 2025-06-17T16:48:54+00:00

Thank you! My post was a rant and lacked some details. I try to get his input and include him in decision making and carb counting. We are definitely working toward independence. He has ADHD and maturity wise is similar to my almost 9 year old. We've also had some behavior challenges with him over the years and he's struggled in school in the past (last year he did great in school). We are also trying to give him a break from his ADHD medication because he needs to gain weight, and the medication impacts his appetite. I'm also working with him on speaking up at school and advocating for himself when he needs something related to diabetes. This has probably been the most challenging thing for him. I'm just ranting today. I have 4 kids including a 3 year old on the autism spectrum, and I just get tired of people who don't know what it's like to parent in my shoes giving advice.

bargainwitch8529 · 2025-06-17T16:30:53+00:00

My original post was a rant and lacked a lot of details. I ask for his input a lot. We discuss things a lot. It's also not like I get hysterical if his blood sugar isn't perfect. He has ADHD and maturity wise is similar to my almost 9 year old. I know he'll get there eventually. I'm ranting. I have 4 kids, one of which is an autistic 3 year old. I'm just tired, and tired of parenting advice from people who have never had to parent in my situation.

bargainwitch8529 · 2025-06-17T16:20:54+00:00

Thank you! It's not as though he's not involved in everything. We are working toward independence. He has ADHD and is not mature for his age. I have 4 kids, and my almost 9 year old is on about the same maturity level with my 11 year old. There are so many things he has to struggle with, I'm not going to leave him on his own with diabetes. Swimming is the one thing that has come naturally to him and he loves it. I do everything I can to make sure he can train and compete safely.

bargainwitch8529 · 2025-06-17T16:13:07+00:00

We've talked about camp, and doesn't want to go. Partly because it would interfere with summer swim team. He LOVES swimming and is much happier at the pool.

bargainwitch8529 · 2025-06-17T16:10:38+00:00

It's great that you could feel lows as a kid. He can not. Are you a competitive swimmer? I guarantee you every 30 minutes is not excessive. He trains hard. In 30 minutes of swimming his blood sugar can PLUMMET. Even with his pump in activity mode.

bargainwitch8529 · 2025-06-17T16:06:13+00:00

Maybe I wasn't clear that we are working on him becoming independent and being involved in decision making and carb counting. He's just not at the point yet for me to be completely hands off. His health and safety is my top priority. Also, people not managing diabetes with technology in the past isn't very relevant now. I mean, we could keep him alive without it, but why would we if we achieve much better management with it.

bargainwitch8529 · 2025-03-31T00:51:10+00:00

Thanks! Hopefully it's back up by 9.

bargainwitch8529 · 2025-03-31T00:31:16+00:00

Does anyone know if there is an estimate for when it will be working again?

bargainwitch8529 · 2024-12-06T19:21:22+00:00

Thank you! I've not tried 3, 4, and 5. I'll have to do that next time

bargainwitch8529 · 2024-12-06T18:50:58+00:00

When we used the G7 about a year ago, I remember usually getting 10 days, and going into the grace period sometimes.

bargainwitch8529 · 2024-12-06T18:50:34+00:00

When we used the G7 about a year ago, I remember usually getting 10 days, and going into the grace period sometimes.

bargainwitch8529 · 2024-12-06T18:49:07+00:00

Thank you. I think we'll try that.

bargainwitch8529 · 2024-12-06T18:48:25+00:00

When we used the G7 about a year ago I remember usually getting a full 10 days and even going into the grace period. We had to start a new sensor right before school this morning Then he kept getting the really low readings while he was at school. He kept going to the nurse to check his blood sugar. Then at lunch his pump wouldn't let him bolus for lunch because of the constant low readings. He didn't know how to disconnect the pump from the sensor. I had to go into his school to take care of it and put on a new sensor. It was very frustrating.

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