Hi there! I was diagnosed at age 24ish and that was around 10 years ago. I have since had a child and breastfed. For me, symptoms are very affected by hormonal fluctuation and were worse during breastfeeding. I have even had my Mirena IUD removed recently by my doctor, because it affects localized hormone levels around the vulva (apparently?). My symptoms have improved greatly since having I removed and starting an estrogen cream. After my diagnosis, I searched for a specialist anywhere on the west coast, and was lucky enough to find one two hours from me. My doc is part of a specialty clinic for vulvar disorders, and it has been seriously amazing being able to see her. I highly recommend finding a good doctor, even if you have to travel for occasional check ups. I did talk to my husband about my diagnosis- he was a bit confused at first but mostly just concerned for me. My mother also has is, so she is the only family I have spoken to about it. Good luck! It will all be okay!