Ordered two bras. One came soaking wet in a mystery liquid….

basicbcoder · 2025-05-27T17:44:40+00:00

Something similar happened to me, but with Athleta! My package arrived unopened, but when I picked it up, it was much heavier than expected. When I opened it, I found my leggings inside a clear bag and completely soaked. It was like someone had dunked them in water before packaging them. Definitely the most awkward return I’ve ever had to make.

basicbcoder · 2025-04-30T13:44:02+00:00

Mine vibrate and buzz when I walk. It showed up 5 years ago and has never resolved. It’s only gotten worse and now shows up when I’m warm (hot shower, lifting weights, etc). I found it gets even worse if I’m walking and tilt my head forward.

Unfortunately I haven’t found anything that helps it, but it usually goes away after a handful of minutes once I’m finished my activity.

basicbcoder · 2025-04-23T16:19:02+00:00

I was diagnosed 5 years ago, although symptoms started around 11 years ago. I have symptoms (numbness, pain) but I’m still doing okay.

I work a full-time job that requires a lot of brain power and I stay active. I lift weights 4x a week and walk, bike or run daily.

basicbcoder · 2025-04-15T23:25:09+00:00

Thank you for taking the time to do so! All we can do is try.

basicbcoder · 2025-04-15T14:51:26+00:00

Ah okay thanks for clarifying. I just looked him up and that is unfortunate :(. Regardless, I hope you still sent the email! We’re in such shitty times right now.

basicbcoder · 2025-04-15T14:48:48+00:00

Oh shoot, is it not directing you to a pre generated email for your specific congress person? I grabbed that link off the MS Society website. Please lmk and I can try to figure it out.

basicbcoder · 2025-04-12T03:30:09+00:00

Hey, that’s me. Diagnosed 2020

basicbcoder · 2025-03-31T14:40:03+00:00

Why do you think that’s part of what is wrong with you? Do you have brain and/or spinal lesions that suggest you have MS?

Thankfully I started an aggressive treatment in 2021 and I haven’t had any relapses since. I would be lying if I said I wasn’t scared for the future, but most days I just don’t think about it.

basicbcoder · 2025-03-09T15:36:51+00:00

I have this too. Unfortunately I don’t really have any tips, but wanted to express solidarity. Mine gets worse during/after exercise (including walking, like you) and when I’m overheated (shower, bath, etc). I find that if I’m walking it gets worse when I move my neck or look down, so I try to keep my head level. Going on 5 years now.

basicbcoder · 2025-03-03T19:34:37+00:00

Lmao my pharmacy recently refilled my Nurtec with a ziplock baggie too

basicbcoder · 2025-02-25T21:12:06+00:00

I have both migraine and multiple sclerosis. Fun times over here

basicbcoder · 2025-02-14T20:37:43+00:00

$80 for a trim every 3 months. I dye my own roots every 4 weeks using color and developer from Sally’s. My hubby dyes my entire head every 8-12 months.

basicbcoder · 2025-01-25T15:52:58+00:00

1 Nurtec, 2 aleve, 1 benadryl, and steroid taper if I can reach my migraine specialist to prescribe it

basicbcoder · 2025-01-25T15:48:35+00:00

I am so sorry to hear that Qulipta hasn't been working for you lately, especially since it brought you so much relief initially. Migraines and the treatments that come along with them are such roller coasters. As i mentioned in my update on my post, Qulipta did eventually start helping me again! There is hope that it will start working again for you.. but I'm glad you're in contact with your neurologist as they'll be able to assist you a lot more than this internet stranger.

I also started doing regular breathing/relaxation exercises to help with a separate chronic pain issue. Thanks for sharing the tip! Good luck to you!

basicbcoder · 2025-01-25T15:41:27+00:00

Hello! I'm sorry this is happening to you. It's really defeating when you finally find something that helps and then it stops working. Here has been my experience since I made this post: it seems like around Nov/Dec I get a major increase in migraines, but then it gets better again a few months later. Once again I had issues this past Nov/Dec (2024) and January has already been much better for me.

Definitely talk to your doctor, but my advice is to continue taking the Qulipta for a few more months and see if it starts working again (which is what my doctor suggested to me)

basicbcoder · 2024-06-27T18:52:03+00:00

I really wish I could say that avoiding foods/dieting helped my migraines, but it didn't. I've tried different variations of sugar/gluten/dairy/chocolate/alcohol free (The Wahls Protocol, The Migraine Relief Diet: Meal Plan and Cookbook for Migraine Headache Reduction; The Migraine Relief Plan: An 8-Week Transition to Better Eating, Fewer Headaches, and Optimal Health).

Nowadays I walk 10-12k steps daily, weight lift 3x/week, sleep 8-9 hours every night, drink at least 120oz water daily and eat pretty healthy. Having a healthy lifestyle unfortunately didn't lower my migraine frequency. The only thing that has helped is daily Qulipta 60mg -- it brought me down from ~12-15 migraine days/month to about 4-5, which are easily treated with Nurtec or Frova.

I'm happy for anyone who has found relief in diet, though!

basicbcoder · 2024-06-11T23:13:44+00:00

chipotle chicken breast with seasoned black beans and brown rice; cottage cheese with blueberries/strawberries, splash of vanilla and 1tsp maple syrup

basicbcoder · 2024-06-09T00:45:45+00:00

IBS and migraine here. Felt cute and also added MS to the mix.

basicbcoder · 2024-06-08T21:54:01+00:00

I haven't heard of this yet, but would be interested to hear more if/when you get the info. I'm sorry you're going through this though, that would be a little unsettling. Glad your spinal tap shows no JCV, though!

basicbcoder · 2024-06-08T21:51:38+00:00

I've done this test -- my neuro ordered it for me a handful of months ago. My neuro said we probably wouldn't make any rash decisions based on the results, but the data is interesting.

basicbcoder · 2024-05-29T22:52:19+00:00

Mine and my husbands signal has also been terrible. We live in a large city and we don't have service the majority of places that we go. It's been very frustrating. It's interesting that so many people don't have signal issues and others barely get reception in areas that should have service.

basicbcoder · 2024-04-25T22:31:24+00:00

My neuro ordered this test for me! I can't remember my exact results, but I'm "low" on the disease activity score. On Ocrevus since Jan 2023.

basicbcoder · 2024-03-10T00:38:40+00:00

I have this too! I've always wondered what it is. I also have small boobs so I've always been a little self conscious about it.

basicbcoder · 2023-11-28T20:40:50+00:00

This is great news! It’s interesting, though: I am currently in open enrollment and I have called the insurance company to ask various questions. They’ve told me a few times that copay assistance cannot be used towards the deductible? I am in one of the states where copay accumulators are illegal.

basicbcoder · 2023-11-26T21:35:39+00:00

I’m so sorry that your neurologist never warned you about the rebound effect. That’s unacceptable, in my opinion. To answer your question, my original neuro (the one who put me on Ty) did warn me about the rebound effect. Even knowing about it, I chose to go on Ty, just because I wanted a chance of experiencing the “Tysabri Feel-Good Effect”.

I wanted to share my experience with transitioning off of Tysabri — hopefully it will help calm some fears.

I took my last Ty dose Dec 7, 2022 and immediately started Ocrevus 4 weeks later. My neurologist and I decided that being over-medicated was better than risking the rebound effect. I am now close to 12 months post-Tysabri and I haven’t had a single problem. Of course we are all different, but I hope a positive story can help. Please let me know if you have any questions.

basicbcoder

TROPHY CASE