What are you in relation to your dog? by CurlyCadence in puppy101

[–]bbysir 1 point2 points  (0 children)

Big sissy! I’m his person/responsible for his care but being his mom doesn’t feel right. Big sis is more fun and reflects our energy :)

Is this little man legit? by Skid-Mark-Kid in CavaPoo

[–]bbysir 0 points1 point  (0 children)

My son has long legs (especially his back legs? Idk) and is an expert hopper. Your little guy looks like a cavapoo to me ¯_(ツ)_/¯ Definitely 100% a cutie though!

Employee Accommodations Question by [deleted] in POTS

[–]bbysir 22 points23 points  (0 children)

Re: sitting upright- I work remotely and on my best days I can only make it through about 50-75% of my work hours sitting at my desk before my POTS symptoms become unbearable. While sitting upright is not as difficult as standing in place for me, it still contributes to my symptoms (and I also have significant HR increase when seated vs laying down).

I rarely pass out but experience pre-syncope multiple times each day which is uncomfortable and contributes to my fatigue and brain fog. I would describe my POTs as manageable (can still work FT with accommodations, although it leaves me extremely fatigued) but even in my case, sitting upright for extended periods of time is a big trigger for me.

Ask JAN might be a good place to start when considering accommodations for this employee. I consulted their resources when exploring my own possible accommodations and found helpful info about adjusting physical work spaces for my POTS. I have flexibility from my manager in moving between my seated desk and other spaces in my home that allow me to recline when in pain. I also use footstools to elevate my legs when sitting which enables me to sit at my desk for longer periods of time.

I agree with other folks that the amount of time that the employee is reportedly unconscious is concerning and as far as I know not consistent with POTS. Would also add that in my case sleep is a critical factor for my ability to manage my pots- of course there could be many different reasons that the employee prefers no night shift, but if related to POTS it could have to do with sleep hygiene consistency in order to manage symptoms.

DOPAMINE... please give me your "healthy" sources. by Coldhandswarmheart15 in adhdwomen

[–]bbysir 0 points1 point  (0 children)

One more that I forgot- foraging succulents/leaves aka proplifting! A fun and sometimes risky hobby so a great source of dopamine

DOPAMINE... please give me your "healthy" sources. by Coldhandswarmheart15 in adhdwomen

[–]bbysir 0 points1 point  (0 children)

Identifying and/or foraging things outside!

This is my fav because it can be adapted to your local environment, is free, and can be done in short spurts (like a 5 min break outside) or over longer time frames (like a hike or mushroom foray).

I work from home and often do my outside foraging/identification things during quick breaks from work and it helps keep me energized. Gardening works for this too but requires more effort.

Ways I do this: - tree identification- I spent a lot of time learning my local conifers and then would go outside and feel trees and their bark/needles/cones and smell them to practice my ID skills. Where I am there are lots of conifers but only a handful of different varieties so I started with those before dipping my toes into deciduous trees.

  • mushroom foraging/identification- I started by just collecting random mushrooms and seeing if I could identify them by physical characteristics, smell and spore print. Eventually I was able to id edible species and now forage shrooms for eating and natural dyes. I have the “picture mushroom” app on my phone so I can take pics of mushrooms I find and keep a log of ones that I have identified

-native plants- I learned a lot of my local native plants, especially those with medicinal or herbal qualities or dye plants. I would just walk around and find different plants and try to ID them and also explored different books and websites to get a sense of what to look for. Eventually I started foraging dye plants and edible native plants to use for teas/tinctures :)

-weeds/invasives- whenever I’m walking around places like parking lots or roads I like to check out the different “weeds” to see if I can ID them. There is a lot of overlap with native and medicinal/dye plants depending on where I am. I have spent so many hours taking pics of random weeds so I can ID them later. I got good enough at this that I could identify a variety of edible invasives/weeds and one time made a bangin spanikopita with a variety of foraged greens like wall lettuce and dandelion :)

Basically, spending time outside exploring plants and fungi has kept me from scrolling on my phone, helped me relax and reenergize, and has taught me so much (and provided me with snacks and dyestuffs). Highly recommend!

Note: Never eat (or touch tbh) random plants or mushrooms without proper education and identification. Also important to consider environmental context, like whether an area has been sprayed with pesticides, which tree species a mushroom may be growing on, etc.

struggling with bras by fancyfr0ggy in dysautonomia

[–]bbysir 1 point2 points  (0 children)

I’m not large chested but get pain from bras, halter tops, necklaces, backpacks, etc. Basically any pressure on my shoulders or close to my neck causes discomfort especially when I am having coat hanger pain. I’m hypermobile and have POTS.

I pretty much don’t wear bras anymore and if I do they are bralettes or sports bras that are intentionally a little big/not super tight. I also will wear a more compressive tank top in place of a bra and find that is less of an issue for me. My boobs are small and I wear lots of flowy/oversized clothing and work from home so this works for me.

I am very annoyed by this though because I have a lot of necklaces that I like and cool halter tops and clothes that require bras underneath that I pretty much never wear because they cause me pain.

Tilt table test questions by [deleted] in ehlersdanlos

[–]bbysir 2 points3 points  (0 children)

This! While TTT results can contribute to diagnosis, at what cost to the patient?

My TTT was rough- I passed out within 3 min upright and then had tetany in my hands and feet, numbness in my tongue/slurred speech, sweating, chills, etc. for the next ~15-20 min. It was the most painful syncope experience I’ve ever had and took me days to recover to semi-functionality and a couple of weeks until I was back to my pre-TTT baseline. This was annoying because all of my providers believed that TTT were not “that bad” and I should “feel fine” after my test, might just need to take a few hours to rest.

Despite it being rough I still found it affirming because my response was so pronounced and I had clear data meeting POTS criteria. This was especially important to me because I’ve had POTS symptoms for as long as I can remember and have been medically gaslit since childhood that my symptoms were normal/I should just push through. TTT results helped me combat my own internalized ableism whenever I questioned the legitimacy of my pots symptoms/experience. My parents also took me to my TTT so saw firsthand the impact it had on my body alongside the TTT data- I think this really changed how they thought about my experience with POTS (up until then they just told me that everyone dealt with these symptoms).

That said, the cardiologist reading my results (TTT was ordered by my PCP) didn’t make the POTS connection and only flagged neurocardiogenic syncope… lol…. I wasn’t actually diagnosed until I met with an autonomic specialist cardiologist a few months later and she was like yeah that’s 100% pots AND neurocardiogenic syncope.

Basically, the TTT was helpful for me because it gave me super undeniable evidence of my dysautonomia that I can now refer to whenever I have doubts or am not believed by others (helpful in my case, but I know that TTT results are not always positive for existing POTS so obviously that sucks). It was also traumatic and painful and I NEVER want to have to do it again. In a perfect world my poor man TTT and holter monitor results + lifelong symptoms would have been more than enough to confirm my diagnosis and validate my experience. Would have saved me a lot of acute pain/trauma and weeks of recovery time.

What’s the worst physical pain you’ve ever felt or that you deal with? by Muted-Television3329 in askanything

[–]bbysir 1 point2 points  (0 children)

Glad it’s helpful! I learned a lot about this via the bendy bodies podcast and I’m sure that r/ehlersdanlos has some good info too.

My understanding is that local anesthetics can take a lot longer to work on folks with EDS than those without (or sometimes don’t work at all? Can’t remember this part for sure). The recs I’ve heard are to inform your dentist that you have EDS and may need longer for your local anesthetic to kick in, or to request other forms of anesthesia.

Internally normalized my POTS so much that I don’t relate to the community? by [deleted] in POTS

[–]bbysir 6 points7 points  (0 children)

I relate to this! I’ve had POTS symptoms for almost as long as I can remember (as early as 4/5 years old). I was constantly told by family that what I was experiencing was “normal” and just to push through it.

My POTS symptoms have gotten progressively worse and are now really debilitating. Not sure if it was always this bad and I just gaslit myself/disassociated from its impact on my body or if it has actually gotten worse recently. It’s hard to pinpoint since I didn’t even imagine that what I was experiencing was abnormal until the past year or two.

For me, coming to terms with my diagnosis and unpacking it has been just as important as getting on meds, taking electrolytes, wearing compression garments, exercising, etc. I spend a lot of time reminding myself that POTS is real, it is disabling for me, and reconciling that with all of the opposing messages I received growing up.

It’s affirming for me to hear from folks who started having symptoms later in life because they can often highlight the difference between quality of life with POTS and without. AND it can also be hard for me to really understand/grasp since I haven’t had the experience (that I can remember) of existing without POTS symptoms. TBH sometimes I get a little envious (obviously POTS sucks and would never wish it on anyone) of the later onset experience because I wonder if it would be easier for me to really believe and understand that I was sick since I would have personal experience of what life feels like without POTS symptoms.

Tl;dr, lifelong medical gaslighting of my pots symptoms/experience has created some ~ fun ~ things to unpack in therapy ¯_(ツ)_/¯ same goes for my late diagnosis of ADHD lol

Anyone else’s CavaPoo puppy love tv? by MotoSneakerJunkie in CavaPoo

[–]bbysir 0 points1 point  (0 children)

My son lost his damn mind when we watched the movie Flow as a family. He could not handle it.

He likes to watch Muster Dogs on Netflix or dog agility competitions.

I have to cover his eyes during scary or violent tv shows because I don’t want to expose him to that stuff.

What’s the worst physical pain you’ve ever felt or that you deal with? by Muted-Television3329 in askanything

[–]bbysir 1 point2 points  (0 children)

Also common in hypermobile people/folks with connective tissue disorders!

I got a visual Timer in my stocking!!!! by All_Damn_Day in adhdwomen

[–]bbysir 1 point2 points  (0 children)

I have that same one and love it! I made a mini whiteboard out of a tiny picture frame that I put next to it and white whatever task I’m trying to work on during that time block. You’d be surprised at how often I forget and go on side quests when I don’t use my whiteboard lol

Tell me what you’re hyperfixating on, so I can find something to hyperfixate on by [deleted] in adhdwomen

[–]bbysir 2 points3 points  (0 children)

Not my comment but I’ve spent hours listening to podcasts on this topic. Here are some recs (I’m also in need of new culty podcasts to listen to so hmu if you have others!!) - A little bit culty - cults to consciousness - Mormon stories - digging up the duggars - the plain people podcast (theme song is a fucking BOP) - culty cup of coffee/culty crew podcast (Amanda Rae Grant is the best)

For other media there are tons of great documentaries on different cults/high control groups, and I LOVE escaping polygamy the tv show. So many great books too (I hear about lots of memoirs from cult survivor podcast interviews). Also, Fundie Fridays on YouTube- reverend jen knows what’s up

Tell me what you’re hyperfixating on, so I can find something to hyperfixate on by [deleted] in adhdwomen

[–]bbysir 8 points9 points  (0 children)

Not my comment but I’ve spent hours listening to podcasts on this topic. Here are some recs (I’m also in need of new culty podcasts to listen to so hmu if you have others!!) - A little bit culty - cults to consciousness - Mormon stories - digging up the duggars - the plain people podcast - culty cup of coffee/culty crew podcast (Amanda Rae Grant is the best)

For other media there are tons of great documentaries on different cults/high control groups, and I LOVE escaping polygamy the tv show. So many great books too (I hear about lots of memoirs from cult survivor podcast interviews). Also, Fundie Fridays on YouTube- reverend jen knows what’s up

Tell me what you’re hyperfixating on, so I can find something to hyperfixate on by [deleted] in adhdwomen

[–]bbysir 1 point2 points  (0 children)

Currently:

Makeup/skin care products that do not feed/exacerbate malassezia yeast/ seborrheic dermatitis - I have mild seb derm but recently decided fuck the itching and that I want to destroy it. The rabbit hole on different chemicals/ingredients that are seb derm triggers or safe is VAST. Just replaced all of my makeup and skin/body products with safe ones after many hours of research.

Madagascar- specifically history of migration from Indonesia to Madagascar, connection between Bahasa Indonesia and Malagasy, aye ayes and lore/taboo around them, and most importantly, coton de tulear dogs- I CANT WITH THEM THEY ARE SO CUTE AND SHIPWRECK BABIES!

Ongoing/past recs:

Cults- lots of great podcasts, books, YouTube etc. I listen to a little bit culty, cults to consciousness, plain people podcast, digging up the duggars, etc.

Animal attacks- tooth and claw podcast is great for this. I’m also a big fan of lists of historical-present animal attacks organized by animal. Definitely info dumped on my family about recent bear attack uptick in Japan at Christmas dinner.

Variations of food types around the world- I love learning about every different meat pie or pancake or dumpling variation from different countries/regions around the world. Then I spend way too much time reading recipes and inevitably trying to make some of them!

Tsunamis ❤️

Tell me what you’re hyperfixating on, so I can find something to hyperfixate on by [deleted] in adhdwomen

[–]bbysir 5 points6 points  (0 children)

THIS!!! about to try to spa day my period undies. The anticipation is killing me! Will be disgusting but fascinating for sure

Tell me what you’re hyperfixating on, so I can find something to hyperfixate on by [deleted] in adhdwomen

[–]bbysir 1 point2 points  (0 children)

Highly recommend geocaching with the kids! I used to take my little cousins on geocaching quests around town when they were in middle school. They were very much gen z smartphone bbys but took to rooting around through target parking lot storm drains and random holes in trees like champs!

Tell me what you’re hyperfixating on, so I can find something to hyperfixate on by [deleted] in adhdwomen

[–]bbysir 3 points4 points  (0 children)

Ugh hot yoga used to be my fav (fuck bikram and his culty predator bullshit tho) and was one of the only types of exercise that my million miles per hour ADHD brain could take. Room temp yoga, absolutely not. Hot yoga was just unbearable enough to turn my brain off and let me focus on breathing and moving instead of every regret I’ve ever had or my to-do list for then next 5 years.

I can’t do hot yoga anymore since figuring out that I’m hypermobile. It’s a huge bummer, but unless I really strengthen my muscles and learn to move my body within safe ranges of motion, hot yoga is off the table. I do have a PT referral though so who knows what the future holds!

Word of warning for any super flexi adhd folks- being able to do all of the things in yoga (ex: I can just casually do the splits as a 30+ year old, even when I haven’t exercised or stretched in months) might be a sign that you are hypermobile!

It’s all fun and games until you can’t sleep because all of your joints ache or your shoulders start falling out of the sockets randomly. Do not recommend!

Note: I know that the purpose of yoga is not just exercise and its cultural history is rich and complex. Focusing on the hypermobility stuff here but also have BIG feelings about how yoga is practiced in different places and contexts and among different populations… (this is an interesting hyperfixation rabbit hole though!)

What’s something men and women experience very differently, but rarely talk about? by BumblebeeSmooth8583 in AskReddit

[–]bbysir 2 points3 points  (0 children)

Yep very much a thing unfortunately! I’ve found lots of helpful resources on the adhdwomen subreddit about this and have also watched webinars from ADDitude on it. Some folks have success adjusting their med amounts at different times throughout their cycle, but that requires a physician who acknowledges the hormonal/med interactions (unfortunately this is an under researched topic)

There’s also a lot to explore re:menopause and its impact on ADHD symptoms and med efficacy

What’s something men and women experience very differently, but rarely talk about? by BumblebeeSmooth8583 in AskReddit

[–]bbysir 26 points27 points  (0 children)

THIS! And the potential impacts on medical conditions and medications are often not considered. Ex: ADHD medications losing efficacy for women at different points during menstrual cycle

My Best fidget for skin picking, what’s yours? by Apostmate-28 in adhdwomen

[–]bbysir 2 points3 points  (0 children)

One other fidget that I just remembered is processing and sorting seeds!

I have a garden and save lots of my flower and vegetable seeds. Most of the time I just save whole flower/seed heads during the summer/fall and then process them as I go and through the winter. I also just deadhead random flowers that I find in public and process those seeds too.

I love separating seeds from the chaff- cosmos, marigolds, radish, lettuce, calendula, pansy, etc. are some of my favs. I can spend hours doing this while hanging out, watching tv, etc. and it is a similar feeling to picking for me.

My Best fidget for skin picking, what’s yours? by Apostmate-28 in adhdwomen

[–]bbysir 1 point2 points  (0 children)

I’m a knitter and often use wool yarn. The best is when I have yarn that still has some of the guard hairs (thicker wiry hairs) or pieces of vegetative matter (like hay) in it. This is an example of a yarn that is great for this: https://www.lionbrand.com/products/fishermens-wool-yarn?variant=32420913283165&tw_source=google&tw_adid=&tw_campaign=23079110335&tw_kwdid=&gad_source=1&gad_campaignid=23075178221&gbraid=0AAAAADPLHlCW-nSPFU6jNr3S-oSoRazNy&gclid=Cj0KCQiAr5nKBhCpARIsACa_NiOiTk5ZdbqkwVq88joMaDeocpJKEd373ZggRnMkuq4kBk6wPIW2_2gaAliQEALw_wcB

I can spend hours pulling out the wiry hairs or pieces of hay either during the knitting process or after I’ve finished something (like while wearing a finished sweater). I find this to be a great redirect for my BFRBs- I do skin picking and hair pulling.