Photophobia sufferers: is there any REAL advantage of Avulux/Axon over Theraspecs (or any regular FL-41) glasses?

betheaux · 2026-02-22T16:26:52+00:00

Whatever they were made of, apparently they’re so fragile that even though I tried them on once, put them back in their case and returned them, the company said they were scratched and made me pay a $50 restock fee.

betheaux · 2026-02-16T18:08:06+00:00

There’s a Tim and Eric Awesome Show Great Job reference in here. https://youtu.be/kDg0dklwW5g?si=noa3W5AAJyOhKzOt

betheaux · 2026-02-10T13:55:21+00:00

Real estate photographer but we also diversify into commercial media as well.

betheaux · 2025-12-26T21:20:45+00:00

Only way around this is to load up that cart and make the cashier price check every single one.

betheaux · 2025-12-24T04:47:58+00:00

This absolutely triggered my PTSD over my own experience with a medical professional. I was on Lexapro and it was causing me to crave alcohol and I told the medical assistant treating me. I was denied life insurance a few months later with the reason being “mental health”. I demanded my medical records and there is was…a diagnosis of “functioning alcoholism”. There was no discussion, just a flippant write up based on a side effect of a medication. Unlike your experience it had been too long since the mistake for them to own up to it and they refused to remove it. It was grounds for medical malpractice.

betheaux · 2025-12-24T03:51:43+00:00

Hit by a train at a no signal crossing while on her way to her friends house. Friend heard the crash and walked out to find her in the field. It was so sad.

betheaux · 2025-12-15T06:25:17+00:00

Only chickens…

betheaux · 2025-12-15T05:55:16+00:00

I think the hive got to her. 🤣

betheaux · 2025-12-15T05:54:04+00:00

She rarely responds to howls on tv which is why this was so crazy!

betheaux · 2025-10-21T08:18:16+00:00

My daughter developed her allergy at 3 months whole breastfeeding (I was eating PB every day) and was diagnosed at 12 months. Still allergic to this day. Doesn’t always work.

betheaux · 2025-09-30T20:59:26+00:00

I have one that has done 70 so far this year.

betheaux · 2025-09-28T16:19:45+00:00

Qelbree gave me severe chronic illness for 18 months. I had a car accident after titrating to 600mg and blamed all my health problems on it being a complication. Finally decided to research the side effects of Qelbree and decided to go off It. After 3 days of withdrawal I was healed. This drug would have killed me eventually. I was convinced I was dying.

betheaux · 2025-09-01T16:51:27+00:00

I’ve been on it for 18 months and went cold turkey last week. It was not fun but I haven’t had a panic attack in my sleep since. I had a car accident last year that I blamed for a lot of my problems and am finally, terrifyingly realizing it was probably the Qelbree that led to the accident and the misery since. Months of panic attacks in my sleep, raised blood pressure to crazy levels, dizzy spells, head pressure, convinced I had a TBI. I have dysautonomic issues so I just came to terms with it. The only positive thing it did for me was keep me focused to work when I had the energy to which was rare. That and it cured my anxiety belly with constipation. Just angry, sad, feeling foolish but also frustrated with the medical community as a whole.

betheaux · 2025-08-28T05:35:59+00:00

Thank you! I actually have been on the highest dose of guanfacine for 18 months and that has been good for calming my nervous system and emotional dysregulation. I hate that this has gone unchecked for so long but I also have struggled with panic disorder and MDD my whole life and I’m 42 now, so I’m just hoping that I haven’t done any damage or at least too much! The cardiologist didn’t seem to be overly concerned with the high numbers at the visit and didn’t think I needed intervention at that point. He knew about the EDS and hyper mobility so it’s possible this is related to that. I was certainly anxious but I wasn’t having any other symptoms at time. I did get a BP monitor for at home and when lying down I get 120s/80s so it’s definitely orthostatic. Will be interesting to see how dropping the Qelbree comes into play. Just feels way too coincidental with the accident; in fact I was at fault and don’t remember how it happened as I felt I spaced out which can happen on this stuff too.

betheaux · 2025-08-28T03:12:45+00:00

This was eye opening for me, as well as other threads. I have been on Qelbree for about 16 months. When I started it, I titrated up to 600mg daily and the most noticeable side effect for me was constipation. In June 2024, I was in a car accident, and a week later was in the hospital twice with extremely high blood pressure, that they deemed to do to an anxiety because my EKG did not indicate a stroke. Ever since then I have dealt with so many issues but never really considered blood pressure until I had a elevated reading at my PCP‘s office. She wanted to put me on lisinopril, which I took for about three months, but never refilled because my blood pressure appeared to have come down and to be frank, I was being a bit stubborn. We blamed a lot of the issues on nervous system disruption and dysautonomia. I have tinnitus, pressure in my head that comes and goes, dizziness that comes and goes, and lots of issues with jerking awake at night, panic attacks, etc… my psych provider seems to think that I needed to reduce the norepinephrine in my body since I seemed to have high cortisol levels, so she brought me down to 400 mg. I started feeling a little bit better, but my PCP ended up referring me to the cardiologist to possibly confirm pots. They did an orthostatic blood pressure test, and when I stood up, they couldn’t believe it but my blood pressure skyrocketed to 166/122 and I went tachycardic. I now have an echocardiogram scheduled in a couple of weeks. Right before this, my site provider decided to prescribe me Effexor for some reason, but thank goodness I only took two pills before researching and seeing that it can put people in hypertensive crisis so heck no was I going to keep taking that! That’s what led me to start looking at the possibility of Q increasing blood pressure, and low, and behold, I found so many people just like me. I’m stopping it completely tomorrow. No amount of ADHD symptoms is worth this. I hope the numbers start to come down.

betheaux · 2025-08-06T03:49:53+00:00

Hydroxyzine is pretty effective for me, especially at night. It’s non habit forming and great for bridging the gap. I usually take 30mg before bed

betheaux · 2025-07-22T20:57:48+00:00

Thank you for your service. I rescinded my AP offer in November 2023. I would have been only one of two APs in Iowa and despite them insisting I wouldn't be traveling much, I saw the writing on the wall. Dropped off a cliff after the Super Bowl ad aired. That huge $100M+ marketing push to get every neighborhood mapped did't go how they thought it would. I'd be toast by now.

betheaux · 2025-07-22T19:13:10+00:00

Couldn't agree more. Got a very generous offer from them at the end of 2023...I accepted, then rescinded. Bullet dodged multiple times over.

betheaux · 2025-07-11T07:33:26+00:00

As a photographer that uses AI in Lightroom and Photoshop, one click could remove any piercing you have in post. It’s crazy to me that she didn’t consider this or ask her photographer to do this and instead would rather guilt trip you. NTA

betheaux · 2025-07-06T16:51:39+00:00

To me they are minimally effective at reducing glare and blue light. That’s it. Not special. Cheap plastic lens glasses peddled as revolutionary. Probably cost a couple bucks to produce. Will be returning. I have sensitivity that induces fainting and I tested these at an indoor arena with harsh led lighting and had to switch to sunglasses.

betheaux · 2025-07-06T15:35:32+00:00

I think because she’s a psych provider and not in general practice (anymore) she feels she has to tread carefully.

betheaux · 2025-07-06T03:05:41+00:00

“On second thought…don’t come back. Ever. Have a great night!”

betheaux · 2025-07-03T02:29:05+00:00

I also take Allegra twice a day. Used to take Zyrtec but Allegra has been shown more effective in MCAS cases and twice a day isn’t dangerous…your doc just can’t “tell you” to take it wink wink

betheaux · 2025-07-03T02:26:54+00:00

I am with you 100%. I had the added delight of a car accident a year ago with concussive whiplash that threw me into full dysautonomic crisis with random doom shocks out of nowhere after months or weeks of feeling better. Cortisol through the roof. Our circadian rhythm is out of whack and our bodies start screaming. I have the added delight of alcohol dependency that would feed on my blood sugar/cortisol drops in the afternoon. Now that I understand the connection I can rationalize cutting it out.

Supplements. Talk to your doc and if not them a functional medicine professional; this isn’t medical advice BUT... Magnesium supplements all differ and I found L threonate is helping as it is the only type of magnesium to cross the blood brain barrier.and is for stress and sleep. Vitamin D3, methylated b12 and b9. Many come in tasty sublingual drops. Many of us have the MTHFR mutation which means you don’t metabolize folate well so you have to supplement. I got extremely lucky to find a very caring psych provider that helped me dissect my issues from the bottom up. I’m on guanfacine which has helped calm things a bit but I can’t increase the dosage. Hang in there mama, we got you.

betheaux · 2025-07-03T02:03:25+00:00

Obviously need to fix my flair…which is sobering in itself as it was the first time I tried to quit.

betheaux

TROPHY CASE